I was diagnosed with CIS last year after having an episode of double vision (and an MRI) and have been struggling with the decision to start drugs which were recommended to me the day I was diagnosed. However, after my MRI got worse (giving me the "official" MS diagnosis) and I received a second opinion from another MS specialist who also recommended drug therapy I have decided to start. BUT, I am PETRIFIED about it making me feel bad since I currently have no symptoms of MS, just a crappy MRI. I put off googling and searching online since I was afraid of what I would find, and sure enough, most of what is posted on the internet is negative. So I am attempting to reach out to anyone who has a POSITIVE story to share with me that won't scare the you-know-what out of me!!! I completely understand the reasoning behind the drugs but I am also a firm believer in the "if you don't use it, you lose it" mentality which for me means continuing with my life (work, playing with my kids, and heck even doing laundry!) in order to keep those neurons firing as much as possible. So I really don't want the Avonex to keep me from my "normal" life! Of course the doctors made it sound manageable (i.e. flu like symptoms that go away with Tylenol/Advil) but just hoping I can hear this from a real person
Andrea from Canada
For me, injecting at bedtime and "sleeping through" the worst of the side effects didn't work. Sleep was elusive. I have more success managing things by injecting in the afternoon. I am awake and able to take meds in a timely manner and avoid waking up in the middle of the night with fever. By the time I go to bed, the symptoms have peaked and I am on the downhill side. The following day, I don't plan to do much of anything but rest. Some weeks are better than others. Wish I could figure out why. It is what it is, though.
This post is not really what you asked for, but I felt like sharing my story with you. I want you to know that even with side effects, life is still great. I think many people get over any sides effects in a few months. I pray you will be one of those! If not, you will learn the best way to deal with any discomfort. As my husband often says, "Keep your eyes on the big picture." At the end of the day, we all have to make the decisions we feel best and walk on.
As an addition, many people post about hating needles and dreading the shot itself. While it is certainly not something anyone looks forward to doing, in the grand scope of life, come on! My youngest son is a Type 1 diabetic. Didn't hit him until he was 20 years old--a college student/athlete living far from home. Needles are a part of his everyday life--several times a day. I look at his courage and strength and my woes pale. What I wouldn't give to take his disease on myself. Micah is another source of my strength. Find yours--you will handle MS like a champ. What doesn't kill you makes you stronger!!
Lying on the cold bare ground.
Someone came and stepped on me.
That is why I'm cracked you see.
I'm a nut! I'm a nut! I'm a nut! ...