So, I stopped it for a few days to see. Sure enough, my symptoms started clearing up. So I thought, maybe it was a fluke. I started up the Tecfidera again, and within a few days, all that I just described was back. Several times I stopped for a few days, then started again, just to make sure. Yesterday and today I stopped again after getting pretty close to a relapse if not in one. I think I am going to give it up for good. I just can't justify risking it, when I don't usually get much recovery after a relapse.
I think not all of us have the same disease. That or there is some die off effect, but I haven't heard other people mention that. Interestingly, Rebif did the same thing. It made me much worse.
So now, I'm going back on interferons, I don't care, they worked, I got over side effects. I was offered Aubagio. Sorry, I'm vain, I'm not losing my hair!
I'm 57, I'm thinking that by getting swimming more often to steady my walking and throwing the cane away forever..I have little care to leave the house lately...Peeing myself suddenly in the grocery store IDK..
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Last post by ebrownkirkland
Thu Feb 01, 2018 12:42 pm