welcome to the forum and sorry to hear you've having such a nasty go of it :S
my own experience isn't similar, but there will likely be others here who can relate
question: considering your pain and other symptoms, as well as the possible stress/anxiety element, have any docs so far ordered any nutrition testing? if so, do you have your own copy of results? have you been referred to a nutrition specialist at all? has anyone asked you for a food/fluids/supplements/meds journal? do *you* think could there be any reason to suspect a nutritional connection to your symptoms?
might be an idea to try to rule that potential aspect out at a minimum.
hope you find some answers soon!
take control of your own health.
pursue optimal self care, with or without a diagnosis.
Welcome to ThisIsMS, sickofthepain. Some of your symptoms are similar to mine – I have tingling and numbness in my extremities. I have the diagnosis of MS; this may not be the reason for your symptoms, but it should be considered.sickofthepain wrote:sorry for this long long story but i'm at my wits end................at a young age (about 18) i had a trapped nerve,i couldnt walk,lift leg or anything for over 2 year,i had 3 epidurals,spinal blocks,had a cast pot from my waist up to my neck,i also spent months in hospital on traction at different times,i was told it was a trapped nerve(sciatica).I eventually recovered but over the next 20yr i would suffer from a really bad back which would occur for no reason and would have me bed ridden for weeks on end,this would happen every couple of years then every couple of month,in the end i lost my job due bad time keeping..then 7 year ago i also started getting really bad pain in my foot,it was agony like someone was ripping the veins out my big toe,it was so bad i couldnt stand even the bed sheets on my toe,i was having night sweats were i would have to get up and wash the bedding 2 or 3 times a night i was that soaked(normally i'm not a sweaty person)i was going the toilet 27 times a night for wee wee's,i went the docs,they sent me for an ultrasound on my foot,it eventually i was diagnosed with reynauds disease,over the next 5 year my toe was just numb and i could hardly walk on my feet,my feet felt like they were on fire,i am attending the pain clinic and they sent me for yet another epidural,this epidural did stop the the numbness in my toe but the pain came back with a vengence and has never stopped,then as if i havent got enough problems i started getting really bad neck pain,so bad that i cant even move my neck or turn my head,this has been happing to me constant over the last few year,sorry for the such a long story but also over the last 7 year since my foot start i have been going numb along my side of my chest,which causes me stress,my feet would feel like i'm walking on water,all squidgy or they would feel like i was walking on crushed glass,for years the docs have fobbed me off telling me its anxiety,when i knew it wasnt because it was happening to me,things got so bad at xmas 2013,i couldnt walk on my feet due to the crushing glass,i started getting pins and needles in my arms and hands,tingling feelings like electricity flowing through my top half of body,it also felt like i had a mobile fone vibrating in my pocket all the time,went docs again and i was finally sent me for a brain scan as he suspected parkinsons disease,the scan came back 2 month a go and i was told i have several cysts and spotting on my brain,thats all i know because thats all i have been told,i have a neuro appointment in may 2014,,it doesnt stop there only 3 weeks agon i started getting horrible eyeball pain,that hurt so Bad.,went bad the docs they said a trapped nerve,but now i have gone blind on a couple of times,not a dark blind,like a grey cloud and it only lasts a couple of minutes,i get nerve pain allover my face and feels like it goes numb,when i close my eyes 1 still feels like its left open,i am getting pain all over by body,hands,knuckles even in my legs and struggling with everyday things,what is wrong with me and please dont say stress and get more stress and anxiety through getting told this,,please has anyone else had these symtoms
Who are these doctors you are seeing? Is it possible that the "trapped nerve" was a misdiagnosis? In my opinion, you need to start over with a good GP or internist, someone who is compassionate and enjoys being a "disease detective." I suspect that you have seen a neurologist and your problems have been "locked" into neurology. Too often, a specialist will only consider a patient's problems fall within his area of specialty. I have read: "doctors are experts in, and only test for, those parts of the body in which they specialize."
Doctors of Functional Medicine seek to find the root of the problem, rather than simply treat the symptoms.
I have no medical background, but suggest that you work with your GP and consider the following recommendations from the University of Chicago (Numbness/pain in the toes, feet and the "pins and needles" in your arms and hands are classic descriptions of peripheral neuropathy.):
http://peripheralneuropathycenter.uchic ... #bloodtest
All the best to you.Blood tests
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels (Nutrient deficiencies, such as B12 and others, can cause "neurological" symptoms.)
Thyroid, liver and kidney functions
Oral glucose tolerance test (A separate "fasting blood insulin test" is a good idea, in my opinion.)
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease (Wheat/gluten sensitivity can also manifest as "neurological" symptoms.)
Hepatitis C and B
Do you have fatigue or just pain? If so, how would you describe it?
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