Anyone on this?
Anyone on this?
I have been on rebif for 10 years or so and am tired of the grind, I've stuck with it for so long because it's worked well. Which is another reason plegridy is interesting to me.
So anyone have recent experiences to share? Otherwise I'd lean towards an oral option, probably gylenia.
Thanks friends.
Re: Anyone on this?
Re: Anyone on this?
Biggest issue is the flu-like-symptoms: fever, chills, aches and pains - the works. As for efficacy, I go in next week to see how well it's working. No major relapses, so that part is good!
Cheryl
Re: Anyone on this?
Hi cjtmn,cjtmn wrote:For me, this is my first DMD and it's been a rough adjustment. I had 2 great injections 2 and 4 weeks ago. Then my injection 2 days ago yielded difficult side effects again. I'm hoping that was an anomaly and the next shot goes well again.
Biggest issue is the flu-like-symptoms: fever, chills, aches and pains - the works. As for efficacy, I go in next week to see how well it's working. No major relapses, so that part is good!
Are you taking anything for the side effects such as ibuprofen?
Re: Anyone on this?
As for my routine, I do the following:
1. LOTS of water for 2 days before and 2 days after injecting.
2. 440mg Aleve 1 hour before injecting - I typically take it around 7-8pm and inject 1 hour later.
3. If I'm really hurting at bedtime, I will take 1 Gabapentin before going to sleep so I can rest.
4. 440mg Aleve 12 hours after the last dose; then Inplay it by ear. If I need it still the next night, I will take 220mg. If it's going ok, I will skip it.
I'm usually fine by the next day. Tired, but no additional meds needed.
Hopefully this helps someone. The side effects from this do get better over time. I have also noticed that when I inject my tummy, the side effects are much lighter than when I inject my thighs (I don't do arms).
I will do a better job of checking back in!
- HeatherMintyCool
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