Anyone with GOOD Experiences on Rebif??
- NiftyBunny
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Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
I know you said you and your husband are squeamish about injections, but I would recommend doing the shots manually. I am not a big fan of needles myself, but I got over it. All things considered, the needle itself is rather small compared to Avonex or the size of the needle for a lumbar puncture. With the Rebiject, you don't have as much control of the speed at which the liquid is going in to your system. I found it was going in too fast and causing a lot of pain in the process. I also found the action on the Rebiject was like a jackhammer. Manual injections are really easy once you get the hang of them. Neither you nor your husband should be afraid of them! My husband took over doing my injections and the process goes so much faster. I think from the time I ask if he's ready to do it and throwing away the syringe is all of 45 seconds. I also learned to do them myself. You might also try evacuating the air from the syringe before injecting it.
Re: Anyone with GOOD Experiences on Rebif??
- NiftyBunny
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Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
I use auto injection, I can't do manual, my hands shakeNiftyBunny wrote:I appreciate everyone's support... but as I said please STOP telling me to not use the Rebiject anymore. I don't have problems with it... I do not find it to be too brutal, it barely bruises me and I don't have to see the needle and can do it without any help. I'm sure that like anything it depends on the person... it may not be the best option for everyone, and if you like the manual injections better then all the power to you. I have chose the machine. It works best for me in my situation and I definitely do not want to try manual unless I have to. To anyone going on Rebif and reading this, if you want to try the machine, try it. I have no problems with it.. yes, it stings, but that is the medication, not the machine and its over fast. I don't want this forum scaring people off from trying the Rebiject because some people have decided against it. It truly is individual.
too much, I won't tell you not to use.auto inject
I CAN'T do manual, and I don't want to hear ways to manually do it
You can't fix my shaky hands nor can you make it so I don't walk w/o a cane, nor not trip on stairs
- NiftyBunny
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Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
'Froggie wrote:If the Rebiject works for you, that's great! I'm fortunate to not have the hand shakes and a husband who's extremely proficient with giving shots. One less thing for me to worry about. I too, however, trip on stairs and even flat surfaces like sidewalks. My vision is sufficiently compromised where my depth perception is really bad. Going down stairs is difficult and I avoid them when possible. We all have to do what's efficacious for ourselves.
I.don't want to sound like oh yay, someone else who trips
on flat surfaces, its so embarrassing, having ppl.stare like wtf is
wrong w/you? I hate going out in public, in grocery stores I find holding on
to the cart helps me walk in the store
Its about as much as I go out, besides to bead shoppes
Re: Anyone with GOOD Experiences on Rebif??
Have you ever explored physical therapy? It might help with your mobility. I did a short stint not too long after I was diagnosed and I was re-learning how to walk. It may sound trivial, but it's amazing how much we have to overcompensate and focus on not tripping, falling over, etc. The therapist's goal was to have me not look at my feet so much and to walk without over-thinking it. Easier said than done, but it's worth a shot.
Re: Anyone with GOOD Experiences on Rebif??
No.$.
And no insurance
Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
I feel like hell, rundown, shivery, headache, diheara
And I'm never calling ms lifelines again, she was a cold b*tch
I hate this
My neuro didn't listen yesterday
I'm so tired of this
I HATE MS
- NiftyBunny
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Re: Anyone with GOOD Experiences on Rebif??
Re: Anyone with GOOD Experiences on Rebif??
Right now I'm dealing with leukocytopenia, which is likely a side effect of the Rebif. I'm also scheduled for six hours of neuro-pscyh testing this Monday. Am I happy with my cognitive functions being compromised? No! I am, however, grateful that I can still walk and talk.
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Re: Anyone with GOOD Experiences on Rebif??
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