Hi, I was dignosed with RR MS that has progressed slowly over the years. I have tried all the " C R A B " drugs since finally getting an answer in March 1997.
My neuro wants me to start Tysabri, and being a former nurse, I am scared chittless! The PML is what I fear as I have one son still at home, who is soon to be 16 in October.
I thought I made my final decision as of this morning.........now, I am second guessing my decision. I sure could use some strong words, be them good or bad, in regard to starting Tysbri or not.
God Bless and Thank You,
Tammy
Greetings~I am new to this site
- lyndacarol
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Hi GG!
Welcome and good luck with your MS journey!
Have you already started the Tysabri?
I'm kinda in the same boat - my neuro wants me to consider Rituxan but I'm not crazy about putting more drugs in my body before seeing how CCSVI pans out...
I've chased down a local GP who is working on getting me tested and treated if necessary. If it's a dead end for me, then I will consider moving on with other drug treatments. Time is a factor for me so it's really hard to wait!!!
It's worth looking into!
Cheers!
A/C
Welcome and good luck with your MS journey!
Have you already started the Tysabri?
I'm kinda in the same boat - my neuro wants me to consider Rituxan but I'm not crazy about putting more drugs in my body before seeing how CCSVI pans out...
I've chased down a local GP who is working on getting me tested and treated if necessary. If it's a dead end for me, then I will consider moving on with other drug treatments. Time is a factor for me so it's really hard to wait!!!
It's worth looking into!
Cheers!
A/C
If you can't explain it simply, you don't understand it well enough. - Al Einstein