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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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MSUK
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Post by MSUK »

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MS-UK - http://www.ms-uk.org/
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cah
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Post by cah »

The german MS-Society (DMSG) has taken the first step in late october last year and haven't been gone any further afterwards. While other MS societies have dedicated links for CCSVI on their website, be it positive or negative, there wasn't a single word about CCSVI from them since their dismissive statement. And even to find this you have to be aware of CCSVI as you have to keyword search it on their website - it's not linked otherwise (or very carefully hidden). They just hush it up completly. Their silence is deafening. Instead, they give a warning about self medication with green tea. :roll:

If only someone could convince them to leave out the second step of Schopenhauer's way and directly move on to the third. Or, if there really is no other way, at least move on to the second.
"There is only one good, knowledge, and one evil, ignorance." Socrates
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sbr487
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Post by sbr487 »

I think they (not the society but the neuros) went a step further and came up with a paper which concluded that CCSVI was unrelated to MS. And we are banking on these neuros to take care of MS patients. They are a disgusting bunch to say the least ...
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Post by LR1234 »

I hope the neuros DO prove that CCSVI is not related to MS .
Then we can go to vascular surgeons and be treated for CCSVI without any opposition from the neuros as at that point its no longer their business!!!!

I don't have to ask my neuro if I need to be treated for my thyroid condition same as I won't be asking them about my CCSVI problem!
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sbr487
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Post by sbr487 »

Actually, the german neuro team (that wrote the paper) have a template they plan to use in future too. If there is any discovery related to MS and not on the autoimmune path, this template will be used. It contains keywords like "valueless", "risky" ...
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Post by BooBear »

I have said it before- the medical community cannot have it both ways.

If CCSVI futher complicates, is induced by, or is the CAUSE of MS, treat it.

If CCSVI has no connection to MS, TREAT IT.

There simply cannot be any good that comes from impaired blood flow from the brain. So enough with the shennanigans and let us get well!
Three veins angioplastied.  One renewed life.  
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thisisalex
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Post by thisisalex »

sbr487 wrote:Actually, the german neuro team (that wrote the paper) have a template they plan to use in future too. If there is any discovery related to MS and not on the autoimmune path, this template will be used. It contains keywords like "valueless", "risky" ...
do you happen to know a source to this german paper? I have heard about it, but couldnt read it...
thank you!
alex
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cathyb
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Post by cathyb »

Hi!

Can someone post the gist of this "article" or just the link to it in its current language? I would LOVE to know how the neurologists have concluded that CCSVI is unrelated to MS, since this means:
1. CCSVI is separate and we can treat it.
2. They know enough about the MS disease process to conclude that anything is or is not related to it.

Thank you VERY much!
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cah
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Post by cah »

Abstract

Currently, the hypothesis that altered venous hemodynamics might play a causative role in the pathogenesis of multiple sclerosis (MS) is being controversially discussed. This new "venous hypothesis" postulates that obstructions of the cervical venous system cause an increased pressure of the intracranial venous system and that in turn intracranial congestion disintegrates the blood-brain barrier initiating the inflammatory process in MS.The "venous hypothesis" is analyzed and evaluated with regard to the following aspects: first concerning the validity of published data, second with regard to the plausibility in view of the currently approved pathogenetic model of MS, and third with regard to the compatibility with preliminary neurosonological findings in a small but unselected cohort of patients at our department.The authors conclude that the "chronic cerebrospinal venous insufficiency (CCSVI)" cannot represent the exclusive pathogenetic factor in the pathogenesis of MS. In our cohort, only 20% of the patients fulfilled the required neurosonological features of CCSVI. So far, the pathogenetic relevance of these findings remains speculative. Thus, based on the current scientific position we cannot justify invasive "therapeutic" approaches, especially if they are performed outside of clinical trials.
From here: http://www.ncbi.nlm.nih.gov/pubmed/20386873

Full paper is in german language.
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Post by concerned »

Schopenhauer's sort of successor, Nietzsche, said "truth" is only "a mobile army of metaphors, metonyms, and anthropomorphisms."
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