found a fountain of info!

lorienhome · Post by **lorienhome** » Thu Dec 01, 2005 10:34 am

I am new to this site. Due to present MS symptoms, I am working a few french fries short of a Happy Meal. Under normal circumstances= MA- Psych assessor and profiler.
MS. 5 mos. on Minocycline OD. Started on 100 mg BID X 1 week. I discontinued but my wonderful doc agreed with persistance and the dose was cut to 10 mg OD and we have been building. Up to 90 mg OD. Takes about 21 days for the increased dose to assimilate and the MS symptoms to subside. With each increase, the numbness/ instability/ leg weakness/ tiredness, etc come back with a vengence. Working against a cure is the fact that I refuse to give in or slow down until I'm knocked down. Personality defect!
I am so lucky to find this site. Compliments of Colby's mom! If I could ask you all to send me all the links that you are referring to. I have a massive amount of reading to catch up on! Was tested through a naturopath for Candida. Low positive. Asked doc for drugs for it (without letting him know that I had been to a naturopath because he is also selling neutraceuticals), hoping for a script, but he sold me Allysin. The idea being to slow down the destruction of beneficial bacteria in the colon. Haven't noticed a difference.
Vitamin B6- 200 mg OD. Where can I get info on this?
Thank you for the education and please send links!
Lynne

SarahLonglands · Post by **SarahLonglands** » Fri Dec 02, 2005 4:12 am

Hello Lynne, you will find that everyone here who posts in the Antibiotics forum and many in the Regimens forum share your personality defect. I will give you a few links, the best one being a totally different site, started only a couple of months ago by someone from Ohio, named Jim:

CPn Help It covers not only MS but many other diseases also often caused by the same pathogen. In it you will find much information presented both by physicians and patients and easily accessible links to other sites.

One of these is: http://www.davidwheldon.co.uk/ms-treatment.html started after he began to treat me, his wife, for very aggressive SPMS.

This is an article published in an English medical weekly, Hospital Doctor about my recovery:
http://www.avenues-of-sight.com/Ignorin ... dence.html

For information about B6 and anything else to do with supplements, including acidophilus and so on, look here:
http://www.iherb.com/index.html

That should give you a lot to be going on with.

Sarah

MacKintosh · Post by **MacKintosh** » Sun Dec 11, 2005 11:30 pm

Lynne - Your happy meal will be complete again; have no fear. I was one of the lucky ones: diagnosed almost instantly after one MS episode in August and, because my vision was affected, home from work for seven weeks, reading/surfing and learning everything I could about the disease and treatments. I am currently on David Wheldon's protocol (in my ninth week of it) and it stopped the 'brain fog' dead and gave me back my brain function within ten days or so.
Come on over to CPn Help.ORG and you'll find a boatload of us who have your pigheaded determination. I never bought into the 'incurable autoimmune' explanation and as Anecdote told you, we've found something that actually works. Not the easiest route, sometimes, but effective, nonetheless.
Keep studying. Knowledge is power in this case, because it's difficult to find doctors who are progressive enough to go the distance on the regimens. (We can help you with that, as well.)