My friend has a soccer-playing 19 yr old son who has been diagnosed with this. They want to give him the standard plasmapheresis and immunoglobulins. His mother has dormant CIS. I guess it gets priority treatment; he is still in hospital.
It is said to be triggered by an EBV infection. (too many Barr(e)s) He just had mono.
I don't want to make trouble for anyone here; does anyone here know if this is possibly treatable also with Liberation? I'd be obliged.
Guillain–Barré syndrome
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1eye
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Guillain–Barré syndrome
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Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
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Rieja
- Family Member
- Posts: 82
- Joined: Tue Jan 12, 2010 3:00 pm
- Location: Pittsburgh PA - USA
- Contact:
My father has it currently. I also know 3 people that had it in the past. I do not know enough about it to claim any CCSVI link.
I do know that the 3 people that had it, all recovered. It just takes a long time. My father is doing well also but we think it will be about a year before he recovers fully. Everyone says it just a long recovery process.
(for those keeping tabs on me: me=MS, one bro=AVM in head resulting in stroke at age 33, father=GBS - all Dx in less than year. It's a good time in my family
)
I do know that the 3 people that had it, all recovered. It just takes a long time. My father is doing well also but we think it will be about a year before he recovers fully. Everyone says it just a long recovery process.
(for those keeping tabs on me: me=MS, one bro=AVM in head resulting in stroke at age 33, father=GBS - all Dx in less than year. It's a good time in my family
)