How did you learn about CCSVI?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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cheerleader
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Location: southern California

How did you learn about CCSVI?

Post by cheerleader »

If you're on Facebook, come on over and take the CCSVI Alliance survey.
No negative campaign ads, no robo calls, no punditry, no election frenzy. You just have to "like" us to comment.
One question...
How did you learn about CCSVI?
polls close at 8pm PST, and results will be posted on the page--

http://www.facebook.com/pages/CCSVI-All ... 2427429118

thanks!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Gordon
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TIMS and CTV

Post by Gordon »

TIMS and CTV

Thanks Cheer
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cheerleader
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Location: southern California

Post by cheerleader »

You're welcome, Gordon....CTV was the big winner in our informal survey--From Facebook
RESULTS are in:
a. web forum ---30
b. Facebook ---18
c. Newspaper ---9
d. blog----------5
e. friend or family--17
f. doctor----------2
g. Television-----70
h. You Tube-------2
i. other----------1

The biggest winner was Avis Favaro's CTV W5 report! Congratulations and thanks to Ms. Favaro!
Web Forums (mostly ThisIsMS.com) was the runner-up
with Facebook and Friends and Family a tie for third

Thanks to all who participated! Stay tuned for more CCSVI Alliance surveys-
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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PCakes
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Post by PCakes »

cheerleader wrote:"...we have an amazing online community.
I'm just one gal who loves someone with MS. Really.
My best to everyone fighting to cure this horrific disease,
Joan"
Joan Beal ~ Jan 5, 2010 **
The 'how' varies.. The 'who' is constant.
Thank you

**
dunkempt
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Post by dunkempt »

The 'how' varies.. The 'who' is constant.
Thank you
Me too.
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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MaggieMae
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Post by MaggieMae »

Can you imagine when CCSVI finally gets national TV attention.
dunkempt
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Post by dunkempt »

Can you imagine when CCSVI finally gets national TV attention.
:-) What happened up here was that everyone in the country who knew you had MS thought of you, and got in touch to make sure you heard about this Zamboni thing too, and then it did start to become a political issue.

And yet we still had to leave the country for diagnosis or treatment...

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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