Steroids for PPMS and improvement

[chrishasms]

http://www.scielo.br/scielo.php?script= ... so&tlng=en

[CureOrBust]

Its an interesting study, and for further reading on it, you might like this OOOOOOld thread about the same study.

http://www.thisisms.com/ftopic-5965-0-d ... rasc-.html

[HappyPoet]

Hi Chris,

Great to see you!

Thanks for this link -- I missed the thread (thank you, CureOrBust) when the study was being discussed here which is why I think it's great when "forgotten" studies are brought forward again.

In case you haven't heard, TIMS now has a brand new moderation policy which gives the mods greater authority to make decisions on their own without having to get express permission from Arron. Also, enforcement is now stronger with two people having been recently banned.

Don't be a stranger!

~Pam

[scorpion]

Hi Chris,

Great to see you!

Thanks for this link -- I missed the thread (thank you, CureOrBust) when the study was being discussed here which is why I think it's great when "forgotten" studies are brought forward again.

In case you haven't heard, TIMS now has a brand new moderation policy which gives the mods greater authority to make decisions on their own without having to get express permission from Arron. Also, enforcement is now stronger with two people having been recently banned.

Don't be a stranger!

~Pam

Very exciting HappyPoet. !!!!!!!!!!!!!! Thanks for posting!!!!!!!!!!!!!!!!!!!!!

[sandrab]

I got so excited, talking about PPMS. I recently found out that I don't have RRMS I hve PPMS. No treatment, no cure. I got a book from MS society to help me understand things. I havent talked to anyone with PPMS about anything. I dont understand things very good anymore. Is this normal for PPMS. Am I just going to get dumber and dumber? I don't understand anything you'all said about the steroids. I go see a new neuro next week, I'm changing drs, my previous one was very hesitant telling me my diagnosis, like I would be scared or could change it. I really want to talk to people with PPMS. I want to find out what to expect from others who have been there.
Sandra

[suze]

It seems that everyone with MS is different, so it is impossible to generalise. I have PPMS. The lesions are all in my spine, therefore I don't have any cognitive problems or fatigue. I think damage in the spine is associated with walking difficulties and that is my problem, along with my hands.
I know that PPMS is relatively rare, affecting only 15% of pwms. The normal treatments for MS don't work.
As far as CCSVI goes, it is probably our azygous that is not flowing properly, but as I said, everyone is different.
I reckon the most important things are to try to get your head in a good space, get your diet and nutrition right and don't be hard on yourself but try to keep on truckin'.

[HappyPoet]

Hi Chris,

Great to see you!

Thanks for this link -- I missed the thread (thank you, CureOrBust) when the study was being discussed here which is why I think it's great when "forgotten" studies are brought forward again.

In case you haven't heard, TIMS now has a brand new moderation policy which gives the mods greater authority to make decisions on their own without having to get express permission from Arron. Also, enforcement is now stronger with two people having been recently banned.

Don't be a stranger!

~Pam

Very exciting HappyPoet. !!!!!!!!!!!!!! Thanks for posting!!!!!!!!!!!!!!!!!!!!!

You're welcome, Scorpion.
Very glad you took notice and approve.