May have MS, here's my story

[YingYang36]

Hey everyone, I am a 20 year old third year University student that has some ongoing chronic symptoms. I think a good chunk of theme indicate MS.

Not sure how to open up about this but here it goes.

- November 2012, I began to experience "malaise" and muscle spasms in my back and ears. Doctors couldn't figure it out so they sent me out and said not to worry about it.

- December 2012, groin has a bad burning pain only to soon shoot down the whole right leg. They assumed it was an infection, treated me with antibiotics, was better again.

- January 2013, urge to urinate became frequent, slight sting in urethra. Doctor says bacterial prostatitis, given antibiotics to feel better after a month.

- March 2013, no more feeling in pelvis or genitals as if nerve circulation is fading. Further tested. Urologist says chronic non-bacterial prostatitis. Given more antibiotics.

- May 2013, after a jog, I notice an unbearable burning sensation between my rib cage and belly button. Prescribed with anti-acids. I still get this symptom time to time and convinced it's the "MS Hug."

- June 2013, pain is no longer exclusive to burning. I begin to feel fullness and pressure in stomach, pelvis and perineum. Also notice an electric shock like feel in my back sometimes.

- September 2013 - April 2014, Generally just a rough school year. I lived on residence. Was dealing with what I thought was chronic prostatitis. Suffered depression from this as a presumed prostate condition limited my sex life. Abdominal pains became more consistent. Numbness and Tingling sensations developed along with stabbing ones too. Doctors tell me I don't have evidence of Prostatitis at all and that pain would more likely be related to Pudendal Nerve Entrapment. This had me excited, I mean yes, I was in pain but I didn't feel emasculated. Went from thinking I was stuck with something with no cure whereas something had viable treatment options and surgery as last resort.

Summer 2014 - I was pretty happy. Started going to the gym with my friends. Got a full time summer job. Started physio with a pelvic specialist. Her exercises relieved some perineum and pelvic discomfort. I was prescribed Lyrica by my doctors for numbness and tingling. The abdominal pains crept away for most of the summer. I had some real bad back pain so I saw a chiropractor. After a night of drinking with 2 hours of sleep before work, of course I had a headache but a very irritable pins and needle right leg that hurt to walk with. Just assumed my pudendal nerve and sciatic nerve were stressed and slept the pain off.

September 2014 - Starting third year. Generally excited. So excited, I only got 3 hours of sleep. After moving in, I was a mess! My back pain was beyond 10. Numbness, tingling all in the back and that MS Hug feeling that went on for my whole first week of school. I was blindsided by this attack as my back didn't act up since seeing a chiro. My lyrica at this point was offering little relief.

Which brings us to this month. My doctor doesn't know I think I have MS. I'm awaiting her call though. We've been treating this as an ongoing undiagnosed chronic pain condition. When someone suggested MS, my intention was to shrug it off but then they said something about Relapse-Remission. After hearing that, it made me think how the past two years my life has basically been weeks on unexplainable pain, better for the next few, hurting for another few weeks, feel like a million bucks next month. Once someone explained Lhermittes sign and MS Hug to me. Can't be sure until diagnosed I know, so until then, it's just a bad pain episode for whatever reason.

I'm lucky enough to be slightly pain free as I write this but what happens after this? I mean, I'm beyond scared of the future. What I've read makes it sounds like everyone gets a decade or two of chronic episodes with pain free days followed by a more progressed form taking over from there. The pain already is crippling at times, have I progressed further? Only the doctor can tell but still. This condition is going to turn my world upside down. I admire all those that go on with this, I really do. However, I just can't see a future where I become too overwhelmed by pain and eventually take my life. I don't want to kill myself though because I love my Mother and brother too dearly. It also sucks because I wanted to become syndicated television screenwriter. Not giving up on my dream now but Multiple Sclerosis would probably like to kick that out the window too.

It sucks too because before this life as already hard. Me and my brother with a single mom. She tried so hard for us to have a good life and made it possible for us to go to college, even if I finish the degree, what good will it do me? I'll be out of work for weeks at a time. I'm getting too far ahead of myself now. I'm fingers crossed it's something like spinal stenosis or something but I feel the odds are 1 to a billion.

Anyways, thanks for reading guys. Sorry if my post offends anyone. I know I'm not actually an MS member yet and I'm already flipping off the handle for my future, it just sucks is all. Hope everyone else is feeling genuinely good though!

[lyndacarol]

Click on "new messages" in the upper left-hand corner. I have sent you a PM.

[Youarethecure]

Whatever it is you need to deal with it. Taking your own life is a joke and shouldn't even be thought about. There is no room on this earth for pure BS like that. Excuse me for being so blunt and rude about it. I have lost family and friends to suicide.

This is just a tougher path through life and will make you a stronger and better person.

Try to not make a prognosis about your future when clearly you do not know too much about MS. Learn all that you can learn about MS and what you can do to fight back against it. There are plenty of people that have "mild" cases of MS that can live a somewhat normal good life. All of us have the potential to live good "normal" lives.

I am 25 and was diagnosed early this year. It seems like its the end of the world but IT IS NOT... trust me. Pull through that and find the "silver lining".

Now with all that being said hopefully its something else and your fine !!

Best wishes,

Chris

[jimmylegs]

hi and welcome yy, where do you go to school iima?