I am coming here because I am assuming there are many MS patients that know a lot about a lot.
Here is my issue: I don't have great insurance and not a huge amount of money to have tests run for an issue that maybe I jumping the gun on. So here is my story.
In about March of 2012 is when everything really started. I didn't see a problem them, but looking back I can put my pieces together.
I started off thinking I had a severe case of Restless Leg Syndrome. Which came about very suddenly, within a couple weeks. Not only did I have the restlessness in my legs I had severe nerve pain. I was awake literally every night, for most of the night. If I was sick with anything my legs were insane. I just could not hold them still. If I made them stay they built up almost like an anxiety in them. One night I got up to sneak to the restroom and I was so weak, I just sat down and started crying. My hubby helped me back to bed. The next day I seen a Dr and I had a bladder and kidney infection.
There was a day was shopping and was super fatigued, but just chalked it up to my monthly cycle. (things are worse during my cycle) When were finished I was so weak I sat down twice going from the car to the house. I actually don't know how I stayed upright. I laid down, took a 2 hour nap and was much better when I got up. my legs had a strange sensation, but they were not weak.
I went through a faze where I was struggling to hear and understand what was being said. Words were mumbled sounding. I went to the Dr, my ears were clear, he did a hearing test, he said I would benefit from hearing assistance. because of the cost I decided it was cheaper to say "I'm sorry what was that", "what was that again, and I'm sorry, just one more time" because it took 3 times in many cases for me to catch it. Funny thing is, that was over a year ago and I can hear just fine now. So why for 6 months was it so hard? and magically get better. (there was nothing physically wrong with my ears)
Back to my legs, at night I was in so much pain that my Dr gave me a Rx for naproxen (Aleve) he thought was if we could get pain under control I could sleep. Naproxen didn't help and Oxycodone didn't help. It was like my brain just didn't know I took it. So after a really bad night I went back to him and he gave me Mirapex. I was wonderful, I slept for 6 hours a night. But I could not feel my legs, yeah I could feel them if I touched them, but just to sit there it was like I had nothing below my waist. (side effects were another story)
6 months after this all started I started going to a chiropractor. after 2 weeks I was no longer taking the Mirapex. I only took the pain meds for a week or so, because they didn't work anyway and I am not a fan of putting pills into my body.
So here we are 2 and a half years later. Over all I should not complain, because I am not in the place I was a few years ago, but things are different. In stead of having constant pain, I get shots of pain, mostly in my legs, they only last few about 10-30 seconds.
I get dizzy spells where I loose my balance. but I don't fall down and again it only lasts for a few seconds. its not like I am walking around dizzy, all day
This is one of the hardest things to explain. my legs don't feel right when I walk. like the swinging motion is out of sync. sometimes instead of taking 1 step to the side, its like my legs do this shuffle, shuffle step. Almost like a clumsy step? I don't know, I feel it but nobody else sees it.
Comprehension is an issue sometimes and really takes me a minute to process what was beings said. so my hubby cant throw to much at me all at once or my mind is overwhelmed. Then I'll cry.
When I get upset or nervous I have a hard time forming my words, I notice it more then others.
these are all things that are not as big of an issue as the fatigue I get with them. there are days that walking from the car to the door at a store is enough to make me sit at the first spot I see.
I am a 43 year old female, the only meds I take is levothyroxine for underactive thyroid. I am 20 pounds overweight, and walk where ever I can. At the end of the day most things don't prevent me from my life. There is no major illnesses in my family history.
Oh yes and I joined Zumba. Some days are fun and great and some days my mind wont let me legs do what they should. I know the move coming up, but there is like this delay. Thank fully it is a small class we laugh out loud (as I want to cry inside) and I there is a move that I have to turn a circle, I will just about fall over because my balance and I get dizzy.
So I guess my question is, Am I reading to far into what is going on? Am I going to waste my money going to the Dr? If it would be MS, is there such thing as "too early" to detect it on the MRI. I have my first appointment with nero on July 27
Any opinions or info would be great
Am I paranoid? or juming to conclusions on MS
This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
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