Good MS Doctor In Kentucky

[DW711]

Hi folks;
I'm new to this forum, and I need some info. My doctor does not specialize in MS, and I'm trying to choose a new one. I have had secondary progressive MS for about 20 years. I'm on copaxone, and a few other maintenance drugs. I am now totally disabled, but I have not given up!
I do know there are some very good looking drugs coming down the pipeline, and I think it would be a good time to line up with a good MS Doctor.
I live in East central Kentucky. Can anyone help?
DW711

[gwa]

DW,

You could check with the Kentucky MS Association and see if they have MS doctors that they recommend or if they know where your nearest MS Clinic is.

Other than that, if you have insurance, look up the neuros that are on your list of physicians and see if any are close to you.

Also, your primary care physician should be able to recommend someone to you.

gwa

[notasperfectasyou]

You may not be too far from Vanderbilt. It may be worth the trip to you after you read about the ABX protocol.

Check out the TIM's board on Antibiotics.

Then check out this board.

Good Luck - Don't ever give up!

Ken

[DW711]

Thanks to both of you for the info. As for as going to Vanderbilt, it's about a 6 hour trip from here. If I was going that far, I' d go on over to Saint Thomas Neurology Group, and see Robert Fallis, he is great, but alas, he left Kentucky......
DW711

[ssmme]

Hi! I have a group of doctors in Lexington, KY called Associates in Neurology(AIN) that I was diagnosed by and still come to. There are several neuros on staff plus some PHD's who research different conditions. Dr. Cary Twyman is one of the doctors and his "pet disease" is MS. He was instrumental in getting this clinic to take on the IIB Tovaxin clinicals which I am enrolled in. The clinic tries to keep up on the latest info and MS discoveries but they don't jump on every fly-by-night drug/treatment. They really look into the treatments and try to home in on the ones that'll have a realistic outcome potential. I'm not going to go as far as to recommend AIN but they may be worth checking out. BTW my GP sent me to them when he couldn't figure out why my left leg was giving out everytime I got overheated from working out or mowing the yard. Once I got in for my first appointment, I was diagnosed within two weeks. They sent me for an MRI after realizing that I had overly "brisk" reflexes only to find that I had brain and spinal cord lesions. The final confirmation came from 2 different bans in my LP that indicated MS. If you end up checking them out, let me know how it goes. I like to hear someone else's opinion on the practice from a patient's point of view. Wherever you go ... Good luck in finding the clinic/doctors that click with you.

Marcia

[DW711]

Hi Marcia;
Thanks for the info. Believe it or not, I had already been considering Dr Twyman. I was trying to stay closer to home, but the local neurologists just don't know MS. I've been battling this stuff for close to 20 years, and with all the info out there, I thought all neurologists would be up on MS. I guess I thought wrong.
I think I'll go ahead and get lined up to see Dr. Twyman. I really like forums like this, it gives us ways of hearing from people in the same"boat" so to speak.
Thanks again,
DW

[ssmme]

I like him very well. Good luck and please give me some feedback if or when you see him. Thanks!

[DW711]

Hi Marcia;
I had my first visit Friday with Dr Twyman. He gave me a thorough exam, and talked with me almost an hour. This was refreshing, in the age of running people through like cattle. While he did not change anything I'm doing now, I believe he is more than capable of making me aware of new treatments when they become available.
Overall, I was very satisfied with my visit! Many Thanks!
Dana