Mike's 100 Day Story
- hmtucker
- Family Elder
- Posts: 100
- Joined: Tue Nov 28, 2006 3:00 pm
- Location: Versailles, Kentucky
- Contact:
Lars,Lars wrote:It just occurred to me that not only have I never done the "long walk", I don't even know what it is.
At least at my study site, it's a 500 yard walk. They do time how long it takes to complete the walk but it is not required that you have to be able to complete it in any specified time limit.
Mike
- CureOrBust
- Family Elder
- Posts: 3374
- Joined: Wed Jul 27, 2005 2:00 pm
- Location: Sydney, Australia
- JanethePain
- Family Elder
- Posts: 224
- Joined: Wed Jun 13, 2007 2:00 pm
- Location: Historical Glendale, OH: Home of the Squirrrels
- Contact:
I'm beginning to think the protocol was translated into Martian for some sites, considering how different it's practiced.Lars wrote:Mike,
Seems a pretty good indication (albeit obviously difficult) of ones daily functionality. I guess I don't get why Opexa would bother requiring it if it isn't across the board at trial sites. It has no statistical significance when not done uniformly.
Lars
The "long walk" is 21 times up and down one of the lesser-trafficked corridors at my site. I pick up a couple of brochures (I'm learning a LOT about epilepsy!) and just do the walk, careful to remember to touch the big old red circle on either wall.

Jane the Pain
- JanethePain
- Family Elder
- Posts: 224
- Joined: Wed Jun 13, 2007 2:00 pm
- Location: Historical Glendale, OH: Home of the Squirrrels
- Contact:
What I want to know is how many of us got tied up with sites that used the Martian protocol...Lars wrote:To reiterate, never done it, never discussed it, and never heard of it. It may be part of the standard EDSS test but it is obviously not part of Opexas requirements. And again, more ??????'s I wouldn't mind a long walk now and again.
Peace,
Lars

Jane the Pain
Maybe not the Martian protocol but run by Martians??? does than count...LOL!JanethePain wrote:What I want to know is how many of us got tied up with sites that used the Martian protocol...Lars wrote:To reiterate, never done it, never discussed it, and never heard of it. It may be part of the standard EDSS test but it is obviously not part of Opexas requirements. And again, more ??????'s I wouldn't mind a long walk now and again.
Peace,
Lars
Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
- JanethePain
- Family Elder
- Posts: 224
- Joined: Wed Jun 13, 2007 2:00 pm
- Location: Historical Glendale, OH: Home of the Squirrrels
- Contact:
Man oh man, Cheryl, I wish I could send you something to get this thing cleared up before the holidays.av8rgirl wrote:Maybe not the Martian protocol but run by Martians??? does than count...LOL!JanethePain wrote:... What I want to know is how many of us got tied up with sites that used the Martian protocol...
Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.
Once upon a time, a well-meaning 'Net friend linked me to some stuff about bee-stings. Now while I would never consider that (bees are our friends), if it had a prayer of working, maybe I could arrange some mother-in-law sting therapy. I rate mine (the m.i.l., I mean!!!) just slightly less toxic than cobra venom. Think it might work? Or shall I pitch this idea to the Defense Department?

Jane the Pain
First off, I am allergic to bee stings...second off, I already have a MIL that is probably in the same category. We could probably market them together and make a mint!!!JanethePain wrote:Man oh man, Cheryl, I wish I could send you something to get this thing cleared up before the holidays.av8rgirl wrote:Maybe not the Martian protocol but run by Martians??? does than count...LOL!JanethePain wrote:... What I want to know is how many of us got tied up with sites that used the Martian protocol...
Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.
Once upon a time, a well-meaning 'Net friend linked me to some stuff about bee-stings. Now while I would never consider that (bees are our friends), if it had a prayer of working, maybe I could arrange some mother-in-law sting therapy. I rate mine (the m.i.l., I mean!!!) just slightly less toxic than cobra venom. Think it might work? Or shall I pitch this idea to the Defense Department?
LOL!
I don't think the neuros care about how I am feeling as long as their precious protocol isn't violated....
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford