Is anyone familiar with the site patientslikeme?
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notasperfectasyou
- Family Elder
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- Location: Northern Virginia
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Is anyone familiar with the site patientslikeme?
Just wondering. I stumbled on it and I'm wondering if anyone here has tried it out. I can see where it might be interesting, but I can also see where it might be a huge time consumer. Ken
It would be really nice to be able to put links in here
If I have included a bad link, google the word "Scholar", click link for "Google Scholar". Search for the name of the paper and author in Google Scholar.
If I have included a bad link, google the word "Scholar", click link for "Google Scholar". Search for the name of the paper and author in Google Scholar.
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CureOrBust
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- Location: Sydney, Australia
I'm actually a member, and have seen someone else from here there (cant remember her user tag, but she has a photo with red hair I think, and is on Tysabri).
I like their "progress" tracking, however their forum appears to be a lot less organised than here. It also has a feel of more of a support group, while this site has more the feel of people looking for the unattainable answers.
I like their "progress" tracking, however their forum appears to be a lot less organised than here. It also has a feel of more of a support group, while this site has more the feel of people looking for the unattainable answers.
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notasperfectasyou
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Thanks Cure. I'm in the process of learning the difference between support sites knowledge sites. You make a clarifying point for me that I need to think about. Do you feel that using that site is helpful for you or for others? I get the impression that it's just another place where folks will tell me how stupid I am for thinking antibiotics can help or even reverse symptoms. Ken
It would be really nice to be able to put links in here
If I have included a bad link, google the word "Scholar", click link for "Google Scholar". Search for the name of the paper and author in Google Scholar.
If I have included a bad link, google the word "Scholar", click link for "Google Scholar". Search for the name of the paper and author in Google Scholar.
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CureOrBust
- Family Elder
- Posts: 3374
- Joined: Wed Jul 27, 2005 2:00 pm
- Location: Sydney, Australia
I do not think anyone will tell you, you are stupid there. It appears to be too supportive for negative behaviour like that. Not that I have read their forum all that much.
It has an almost FaceBook feel to.
I joined because I thought it may simplify keeping a record of my progress and medication in one place. I have only updated it once. When I joined I got a barrage of welcome notes from long time members. I posted the Zamboni article up there which led to a 15+ page thread here, and it originally only got 2 or 3 responses. There appears to be only 1 forum, a LOT of members and a lot of posts. So things move quickly, and a great deal are "OT" ie not about MS.
It has an almost FaceBook feel to.
I joined because I thought it may simplify keeping a record of my progress and medication in one place. I have only updated it once. When I joined I got a barrage of welcome notes from long time members. I posted the Zamboni article up there which led to a 15+ page thread here, and it originally only got 2 or 3 responses. There appears to be only 1 forum, a LOT of members and a lot of posts. So things move quickly, and a great deal are "OT" ie not about MS.