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- cheerleader
- Family Elder
- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
Sorry, LR...
this is an ongoing frustration. Jeff's dopplers didn't show anything, either. Only with the MRV could we see the complete closure of his left jug and the occlusion in his right. The doppler operator was sure all was fine, but Dr. Dake saw, once he was inside, the flow was refluxing into Jeff's brain.
How to explain this? We believe the dopplers may not be able to get up high enough to see the reflux into the brain...Jeff's blockage was very, very high in his jugs.
Marie has talked about the problems with doppler operator interpretation on here, as well. Don't stop looking into alternatives (CT scan, etc.) I'm hoping with you and Alex working across the pond, we'll find some doctors who can help.
I'm sorry, L
cheer
this is an ongoing frustration. Jeff's dopplers didn't show anything, either. Only with the MRV could we see the complete closure of his left jug and the occlusion in his right. The doppler operator was sure all was fine, but Dr. Dake saw, once he was inside, the flow was refluxing into Jeff's brain.
How to explain this? We believe the dopplers may not be able to get up high enough to see the reflux into the brain...Jeff's blockage was very, very high in his jugs.
Marie has talked about the problems with doppler operator interpretation on here, as well. Don't stop looking into alternatives (CT scan, etc.) I'm hoping with you and Alex working across the pond, we'll find some doctors who can help.
I'm sorry, L
cheer
Last edited by cheerleader on Thu Jul 23, 2009 12:53 pm, edited 1 time in total.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- cheerleader
- Family Elder
- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
A venogram/MRV is a simple dye injection in your arm....no pain. A venogram uses radioactive dye and an x-ray machine, an MRV uses gadolinium and an MRI machine.LR1234 wrote:Thanks Cheer.
I will have to wait and see what the prof says when he discusses with his colleagues. I don't like pain so a venogram is daunting for me but If I have to have it I would rather them do the balloon procedure at the same time if they find stenosis.
It is the balloon/stent procedure which uses a catheter, and goes into the vein thru the groin.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com