Why not list CCSVI on Patients Like Me as a treatment?

[Sarahbellum]

There are some posts about CCSVI but no members report this as a treatment.

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.

[chrishasms]

123

[GiCi]

CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
GiCi

[mose]

CCSVI is an anatomical and physiological condition and cannot therefore be defined as a treatment. The treatment of CCSVI consists of dilatation of the strictures in the jugular veins or of the placement of stents to keep the veins open.
At the present the treatment of CCSVI cannot be called treatment of MS because the relationship between CCVI and MS, as a relationship of cause and effect, has not been proven.
GiCi

beautifully put.

[mormiles]

I believe Marie is reporting her CCSVI treatment in that forum. However, Marie's case is complicated by other factors and shouldn't be viewed as a typical representation of the treatment and recovery. Sorry, unless others start posting in the treatment forum, this forum is the best place to track CCSVI treatment. Others may feel as I do---that passage of time will hopefully give them more confidence in posting about it a little bit further afield.

[sou]

Hi.

Whatever the relationship, since CCSVI is present years before MS it can't be a result of it. How can restoring the blood flow to normal be harmful?

sou

[Sharon]

Sarabellum -

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.

TIME is my answer. I am on the site, but I do not follow it anymore. I choose to get away from the computer and do other things.

Sharon