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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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scorpion
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checking in

Post by scorpion »

Any new breakthroughs/progress in the last couple of months to report? I know, I could go through the threads but I thought this would be easier and quicker!!!
LR1234
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Post by LR1234 »

They are now treating us Europeans in Poland:)

People seem to still be doing well after the procedure but no miracle recoveries to report yet:)

L
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whyRwehere
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Post by whyRwehere »

a documentary on a canadian station 21st November and another paper out the 24th Nov.
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cheerleader
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Post by cheerleader »

Hey scorp-
I do a greatest hits kind of posting on the Facebook page I started. Click on the blue CCSVI in MS letters under my sig to get there. The latest news is at the top, but you can scroll down and read the notes for all the updates. We've got the Canadian news piece on air this weekend, the Globe and Mail feature on Sat., the Liberation paper and the Jacobs research next week. Like Leanne said, not one biggie to point to, just more procedures at Stanford, new ones in Poland, more news, more research coming in.
Hope you're well!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Needled
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Post by Needled »

And Jacobs releasing initial results of their CTEVD study before the end of the month. Don't know if I've seen a specific date for that anywhere.

EDIT: Cross-posted with Cheer. I should have waited another minute!
Last edited by Needled on Tue Nov 17, 2009 12:50 pm, edited 1 time in total.
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Loobie
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Post by Loobie »

Check my blog out at http://myhopefuljourneyintoactualmsreco ... ogspot.com I've been doing pretty well and that's good news at least to me!
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Ruthless67
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Post by Ruthless67 »

Cheer,

I swear, I'm such a Newbie when it comes to forums, facebook, etc.....I went to what I believe is your CCSVI Facebook.

http://fi-fi.facebook.com/pages/CCSVI-i ... 0796282297

But I can't find the Click on the blue CCSVI in MS letters under my sig to get there. The latest news is at the top, but you can scroll down and read the notes for all the updates.

Can you help?
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cheerleader
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Post by cheerleader »

You're on the right page...I made a direct link, that's all.
look below this writing and you'll see
"CCSVI in MS" in blue
If a person clicks on those letters, it takes them directly to the Facebook page- that's all...but you're there already.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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CRHInv
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Post by CRHInv »

Marie posted a pretty exciting update today!
http://www.thisisms.com/ftopic-7318-day ... s-105.html
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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