Woohoo CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Miss_Feisty
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Woohoo CCSVI

Post by Miss_Feisty »

I have been so preoccupied this year, I have missed this discovery completely. Boy oh boy, do I have catching up to do and I plan to read every post on this topic.

Thank you to those of you who are posting your CCSVI journey so we can share in the process almost first hand.

I had 3 or 4 phone calls about the W5 special yesterday which brought it to my attention or else I would have missed this crucial new information. The good thing....it has caught the attention of those who do not have ms too!

Without missing a beat, my fingers ran to TIMS to see what you all have been saying about it! I have a billion questions, but I'll read through the posts first before bombarding this thread.

Whether this procedure works or not, it is still a new road to explore. I'm certain there will be politics behind it and we are still a while away from accessing "trained" professionals who do the tests, but it is something to look forward to.

I'll be watching tonight....did anyone make a "general" thread announcement, in case this one hasn't been followed by everyone?

Take care everyone.
radeck
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Post by radeck »

The general thread announcement is a very good idea. I believe cheer is away from the computer today. Who wants to make it?
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Arcee
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Post by Arcee »

Radeck, you should! You've been so thoughtful about helping everyone with their images, checking the accuracy of the documentary announcements, etc. that you should have the honor of sharing this news with a broader audience. No doubt you will change someone's life.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Miss_Feisty
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Post by Miss_Feisty »

Go for it.....
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CureIous
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Post by CureIous »

I second that emotion for Radeck our in house work horse lol.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
radeck
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Post by radeck »

I just posted it in the general forum: http://www.thisisms.com/ftopicp-75436.html#75436
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