Tell me about CCSVI

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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Just_Me
Family Member
Posts: 88
Joined: Wed Oct 07, 2009 2:00 pm

Tell me about CCSVI

Post by Just_Me »

How do I know if I am a possible candidate for that?
Where is the closest place to So California that is doing it?
Is it still experimental with a huge waiting list?
Frank
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Posts: 543
Joined: Wed Jan 03, 2007 3:00 pm
Location: Germany

Post by Frank »

At the current moment CCSVI is highly experimental - but CCSVI research is moving on a rapid pace. Though the early results (diagnostic and intervention) look promising and maybe in a year or so it might become a real therapy option, for various reasons I dont think its a feasible plan for now (too early in the research process, too few educated centers envolved, long waiting lists, expensive).
Again the CCSVI forum (especially the stickiy-threads on top) would be a very good starting point.

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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