other forums?

[MS_mama]

Just curious if other TIMS members also post on other forums (I mostly lurk neurotalk and braintalk, can't seem to get with msworld though). I've noticed some absurd ideas being thrown around re:CCSVI. The latest one that was mentioned lately on another forum-- That only Zamboni is finding 100% of MSers with CCSVI, that small studies have only found CCSVI in only 10% of MSers. Whaaat?? I just wish people would, at the very least, read the freaking abstracts of papers before making such off the cuff comments....

[CureIous]

Thank you for posting this MSMama. That is very interesting. It takes days and days of poring over stuff in here and elsewhere to get even a glimpse of the big picture and all the nuances. One news story cannot possibly even scratch the surface. How someone then becomes an expert to quote studies erroneously that fast is beyond me. I'm still learning oodles and oodles every day in here. July, Aug, Sept, Oct, Nov.

5 months of studying and still just scraping the surface lol. When I started my 5 year apprenticeship, a very intimidating VP who also did said same, gave me some very sound advice, "keep your mouth shut and your ears open".

Thanks for the reminder that we ALL need to keep adding to our knowledge base... It is nice to know though that many on here post elsewhere, I know of at least 5. No time to double dip myself...

Mark

[ErikaSlovakia]

The latest one that was mentioned lately on another forum-- That only Zamboni is finding 100% of MSers with CCSVI, that small studies have only found CCSVI in only 10% of MSers. Whaaat?? I just wish people would, at the very least, read the freaking abstracts of papers before making such off the cuff comments....

Dear MS mama,
- I had one Doppler made by Dr. Simka - positive
I was trying to obtaing the papers for my insurance company:
- I had 4 Dopplers in Slovakia - negative
- I had 2 CTs with contras in Slovakia - negative
- I had 1 MRV with contrast in Slovakia - negative
I am sure it depends on knowaldge and skills of the doctors.
My 2 MRVs without contrast were positev as well, my phlebography during the procedure was positive for sure because they inserted one stent.

Doctors must be trained for this and have enough knowladge.
It is new thing, so of course some find only 10% of stenosis instead of 97% or more.
Erika
I hope new members will read this.