CCSVI....worldwide!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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cheerleader
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CCSVI....worldwide!

Post by cheerleader »

OK. I'm a little verklempt, so excuse me, but there are new CCSVI webpages and facebook pages and charitable groups starting everyday, and it just is so incredible to me how people from around the globe are uniting to get this research out there.
check it out: link to CCSVI sites

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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CRHInv
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Post by CRHInv »

Wow! This is great! I can't wait to start checking all this out.

verklempt = Overcome with emotion / gobsmacked

(Thanks for the new vocabulary too. You never know what you will learn around here! Verklempt is a good word, I think I would use it before I would use gobsmacked for sure!)
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Sharon
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Post by Sharon »

Yes, Cheer you have reason to be a little verklempt. It is just amazing -- one year ago there were a few of us on TIMS -- then you and Marie persisted in getting us to look and read the research -- along came the pioneer "stenters" ---your trip to Italy --- the W5 documentary --- the CCSVI Facebook ----AND, we have an explosion!

I had to change my Google alert parameters --- it fills up in hours where it use to take a week

Job well done!

Sharon
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Mechanicallyinclined
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Post by Mechanicallyinclined »

Cheer I thought I was Verklempt a long time ago until I found out what the word meant lol. But you have reason to be proud!
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magoo
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Post by magoo »

I can't wait to see the future unfold. Because of you we all have different lives now. Some filled with hope and some already feeling the improvements. I sometimes forget you have done all of this and you don't even have MS. That is extraordinary! We all feel your compassion and we all benefit from your indomitable spirit. Thank you:)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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cheerleader
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Post by cheerleader »

verklempt is a wonderful yiddish word my nanna Sadie used when she was touched by something her grandkids did...it's more about being happy to see other folks running around getting stuff done, while you sit in a comfortable chair and watch...
:wink:
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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SandyK
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Post by SandyK »

Thank you so much! Your work has been tireless and life changing for so many. All I can do to honor your hard work is match your vigor and talk with as many people as possible about CCVI.
Diagnosed 1994, Self EDSS is 6.5
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