
Gosh, Hi! My name is Marie. I am a nurse and I've had MS for about 15 years. I am about an edss 4. I read pubmed all the time and am into the non autoimmune model for MS (big believer) and am also into antioxidants and other supplements. I also use LDN. It makes me have a sense of well being and improves my sleep but impacted my mobility not at all.
My MS attacked after a week in bed with a URI and a high fever. When I came out of the bed I could not walk with out spasticity and I had obvious arthritis. It was seronegative for 7 years. I developed sciatica about 5 years ago with radiculopathy. All of these things can be caused by CPn or Lyme. I had a large hike in Mt Rainier in shorts (what was I thinking) about 3 months before getting ill. I had lots of bites.
Luckily, I found a local MD who treats MS with abx and I copied and gave her the Whledon stuff and VU stuff. I am very excited to use this regimen.
Oddly, the last time I took an abx for a UTI I had to take Bactirm as I was resistant to my ususal rx. Instead of feeling well on day 2 with a return of energy and sprightlyness, my head ached I was extra off balance and kept hitting the door jamb, and dizzy. Stayed that way until I got off the med at day 7 when I bailed. I had worried it caused an exacerbation. Now I read that bactrim is a med that can kill CPn. I'm thinkin' this is a very positive sign! A little herx!
Does anyone recommend waiting until it's cooler to go through that herx reaction time? How big a deal is it? Are we talking terrible? What helps?
Shall I keep the LDN while on abx? I beleive the Medical Hypotheses version of what happens in LDN with it intervening the the glutamate and peroxynitrates cycle. In part that might hamper immunity locally though it should also be protective of the nerve. Does the abx we use require the immune system to kill the bugs or just to come in and clean up the dead material? IF it just cleans up the peroxynitrates are not important to the cleanup operation, in my understanding (which is modest). We get to cellular levels and it's complex.
Hello to everyone! I will read with interest you posts. I am thankful to have something new to try. I am convinced traditional medicine will be years away from using this routinely. I am grateful to have a chance to use it now. Thank you to Sarah and David for sharing this protocol with everyone.
Blessings!
Marie