CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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mavis
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Post by mavis »

Thank you Dr. Flanagan, it was awesome to learn that the adjustments should not be a problem. I fully intend to inform the doctor of my condition and stent when I see him hopefully sometime in September.

I was diagnosed with MS almost 14 years ago. Going back though I could see the first signs of it many years before the diagnosis, mainly in the form of fatigue.

My main problem is mobility, presently I am trying very hard NOT to be wheelchair dependent all the time. My legs are getting weaker unfortunately.

As far as I know I didn't have any trauma, but wait would the falls while skiing count? If yes, I had plenty of them, 18 - 20 years ago. One of them was particularly bad when I landed on my left (I think) and that side of my face ended up bruising very badly.

Thank you again for your help. I will contact Dr.Sondhi and report what's going on back here.
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mavis
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Post by mavis »

Civickiller and Dorothy, thank you guys for the information. I think I will see Dr. Sondhi, he comes highly recommended. I hope he can help me.
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blossom
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Post by blossom »

mavis, happy poet was a downhill skier at one time. ouch!!
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uprightdoc
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Post by uprightdoc »

Mavis,
You definitely need to get your neck checked. You most likely have pressure on the upper cord causing the weakness in your legs. Trauma can cause MS that shows up years later.
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mavis
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Post by mavis »

uprightdoc wrote:Mavis,
You definitely need to get your neck checked. You most likely have pressure on the upper cord causing the weakness in your legs. Trauma can cause MS that shows up years later.
Thanks Dr. F. I can't wait to see Dr. Sondhi.
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fee001
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Post by fee001 »

Uprightdoc,

It is so good that you are able to give advice and support, without sounding all creepy and sucky uppy, but i I had one I would take my hat off to you.

Seriously though, I have had to be totally on my lonesome finding a chiro, physio and acupuncturist. I was very lucky in finding John, but it could have been an expensive mistake, I had no-one to ask, I took the risk and it paid off.

It heartens me that others dont have to do the same on here., its certainly a way forward.

Happy happy happy

Fiona
I do my own research, and find my own answers Its good to talk
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uprightdoc
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Post by uprightdoc »

Thanks Fee.
I spent several years between 1980-84 studying Applied Kinesiology which includes accupuncture. I also took a separate course and got certification in traditional accupuncture, which led to a course in Traditional Chinese Herbal Formulas and diagnosis.
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fee001
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Post by fee001 »

Hi!


Could something as simple as bumping your head on a kitchen cupboard say, cause your Atlas to misalign, or is tha too trivual.

Praps no-body knows unless tested just before and just after. cudnt be done i a controlled environment either, as then wudnt be an accident and reaction wud be different. I think I think too much.

I must cocerntrate on calm, plus spend too much time on laptop not good at mo. So I suppose I best find something else to do.

Fiona
Last edited by fee001 on Thu Aug 25, 2011 3:09 am, edited 1 time in total.
I do my own research, and find my own answers Its good to talk
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uprightdoc
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Post by uprightdoc »

Striking your head against a cupboard can definitely but not necessarily cause a misalignment. Tonsilitis doesn't cause neck trauma. What it can do is cause the lymph system to back up and swell. This slows waste removal from muscles in the area, which can cause neck pain and stiffness.

My wife and were stopped by a neighbor while walking yesterday. He is a fify-five year old male and a former rock climber among other things. He has two disc surgeries in the neck with fusion and two disc surgeries in the low back with stabilizer plates and screws that have may have since loosened. He got a kidney infection from the last surgery. He is currently on oxycotin and he has a TENS unit implanted in his back so can't get an MRI. He still has right leg pain and the surgeon said that nothing more can be done. While he doesn't have MS yet, he is nonetheless a Mess. He took off his low back brace and pulled up his shirt to show me the surgeries. I did a cursuroy standing exam on the street as neighbors drove by and waved. He wants to schedule a consultation to see if I can figure out what is going on.

Trauma is cumulative; then it reaches a breaking point. It is a major cause of neurodegenerative conditions such as MS. Cases like this one should never get to this point. Trauma, such as from skiing and rock climbing need to be addressed early and all athletes, including the recreational ones, need to be checked regularly.
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fee001
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Post by fee001 »

Hi!

There is a lack of diagnosed young American football players, I presume they have regular checks, not necessarily by a Chiro but someone similar.

There is also a lack of diagnosed rugby players too, its interesting you wud think due to the nature of their sport, there wud be more.

Do you see a lot of American footballers or not.

By the way we must have just done syncronised posting as I just deleted the tonsilitus question.

Fiona
I do my own research, and find my own answers Its good to talk
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uprightdoc
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Post by uprightdoc »

I forgot to mention the patient also has a titanium rod in his right lower leg and has had surgery on both knees. He has exaggerated Q angles (valgus knock-knee deformity) in both legs and circumducts his legs while walking due to a loss of y axis rotation (twsiting) in his low back and pelvis.

I treated many athletes from all different age groups and activities.
There is a high incidence of early onset dementia in athletics associated with head trauma such as in European and American football from heading the ball and head bashing.
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civickiller
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Post by civickiller »

uprightdoc wrote: I treated many athletes from all different age groups and activities.
There is a high incidence of early onset dementia in athletics associated with head trauma such as in European and American football from heading the ball and head bashing.
while i did not play football(im a skinny guy) i played alot of soccer heading the ball alot, body boarding, getting my head whipped all over.
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uprightdoc
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Post by uprightdoc »

You can just as easily misalign the neck heading the ball in soccer and body boarding. Heading the ball can also cause minor concussions and micro brain bleeds. Tackles can cause whiplash.
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fee001
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Post by fee001 »

uprightdoc,

I meant to tell you, acupuncture point U54 very relevant point, when needle was inserted my right leg immediately reacted, it did a second time when needle turned.

I just thought I'd tell you. interesting eh!

Fiona
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uprightdoc
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Post by uprightdoc »

The Bladder meridian is often involved and used therapeutically for head, spine, back and leg pain. It is and extensive meridian. B 54 is over the sacrum of the pelvis. The dragon is fire. Surround the dragon technique is used to control inflammation and the Bladder is a water meridian. In the Ko cycle water destroys or puts out fire.
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