No stenosis.. time to go another avenue.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
JohnAm
Family Member
Posts: 43
Joined: Sun Oct 18, 2009 2:00 pm
Location: Northern Europe
Contact:

Post by JohnAm »

Hi SCGirl,

I also had the angiogram and venogram with contrast performed (with the big MR machine, magnets and all) still waiting do do the phlebography (venography) with catheter, this proceedure is a bit more invasive.
http://en.wikipedia.org/wiki/Venography

Are you sure your doc did the venography? :)



--
User avatar
SCGirl
Family Member
Posts: 52
Joined: Mon Jan 25, 2010 3:00 pm
Contact:

Post by SCGirl »

I am sure, I had a catheter in both sides of my groin. One for the angio and one for the venogram. I wish I had something to hold onto.. but I am afraid that I don't.
Jenf, best of luck to you! My MS was diagnosed by a lumbar puncture as well as several MRI's. I have never doubted that I have the disease, but will be curious to hear of your results from Vanderbilt. Keep me posted!
User avatar
Johnnymac
Family Elder
Posts: 213
Joined: Wed Oct 18, 2006 2:00 pm

Post by Johnnymac »

SCGirl wrote:but I just know if the foot drop continues or gets worse I will no longer be able to perform my job.
Thank you all for the encouragement!
You might want to look into an AFO device. We got one for my wife about 9 months ago and it definitely helps by keeping your foot at a 90% angle. Very lightweight, and was made from a custom mold to fit snugly. Insurance covered all but I think $60.
User avatar
joanp
Family Member
Posts: 48
Joined: Fri Feb 26, 2010 3:00 pm

Post by joanp »

Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”