NEW!--MS-MRI Mich. conference--Haacke/Sclafani/Hubbard

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
drbart
Family Elder
Posts: 103
Joined: Tue Apr 06, 2010 2:00 pm
Contact:

Post by drbart »

MrSuccess wrote:With all due respect for all CCSVI investigators .... I think we have found an excellent CCSVI spokesperson in Dr. Hubbard

I would have great confidence in Dr. Hubbard being the one speaking to the media on behalf of CCSVI . :idea:

We have several other outstanding CCSVI literate spokespersons .... but they lack MEDICAL credentials ....
I particularly enjoyed Hubbard, a neurologist, presenting really cool neuro-vascular research, and then asking why other neuros aren't even intrigued, and WTF is up with the hostility.
Last edited by drbart on Thu Aug 12, 2010 7:40 am, edited 1 time in total.
User avatar
elliberato
Family Member
Posts: 82
Joined: Wed Aug 04, 2010 2:00 pm
Contact:

from ms-mri

Post by elliberato »

*****important****from the ms-mri website!

Thank you all for attending the CCSVI Fundraiser in Warren, MI on Saturday, August 7th. We were happy with the turn out and the opportunity to meet everyone individually, it was an informative meeting.

Any future CCSVI events will be posted on our website at www.ms-mri.com

NOTE: We do ask that you not post any portion of the fundraiser meeting on the web, such as Youtube, Facebook, etc. at this time. We are working on a version that has the approval of all of the speakers that presented at the event. Also, some of the individuals that spoke at the event would not like their personal information broadcasted on the web at this time. Please respect their privacy and remove the videos ASAP. Thank you.
User avatar
fogdweller
Family Elder
Posts: 412
Joined: Tue Dec 08, 2009 3:00 pm

Post by fogdweller »

drbart wrote:I particularly enjoyed Hubbard, a neurologist, presenting really cool neuro-vascular research, and then asking why other neuros aren't even intrigued, and WTF is up with the hostility.
Great video! I especially liked hearing how common vein angioplasty is, and how safe it is. I am quite familiar with arterial angioplasty, and was already knew how safe it was generally, but learning about vein angiouplasty and that it is even safe was interesting.

As far as the neuros, I think Dr. S. got it right as the last comment on the clips ... Godamned arogance.,

They don't want to believe that for the past 30-40 years they have been telling their very sick MS patients that it is an autoimmune disease and despite all their constant work there isn't much to do aobut it, and it turns out they are flat wrong.

Also the comment early on thast neuros are used to telling their patient's that their symptoms are untreatable and discouraging "false" hope. I had a neuro tell me that he didn't know anything about Zamboni or his work, but he could tell me what it was, another crazy dr. selling false hope. His attitude was clearly that the proper mental attitude for an MS patient was HOPELESS despondency. I was furious, couldn't even sleep that night, and never went back to him.

He is in Santa Rosa California. Anyone want his name?
User avatar
Billmeik
Family Elder
Posts: 696
Joined: Fri Nov 27, 2009 3:00 pm

Post by Billmeik »

these speeches are awesome. I only see 1, 10,11 12,13
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

I managed to watch two Dr.Hubbard videos, but that's all the time I have for now. Hope they're still there when I get back.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
User avatar
PCakes
Family Elder
Posts: 850
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada
Contact:

Post by PCakes »

Hey Billmeik..there is a dropdown menu above the video window and to the right of ' MsLogicJock' ..you'll find the rest in there.. hurry hurry..sounds like they may be taken down.. :(
User avatar
Shayk
Family Elder
Posts: 786
Joined: Fri Feb 06, 2004 3:00 pm
Contact:

Videos--Delete Links for Now

Post by Shayk »

Hi all

Even though it's disappointing, it seems to me that people who posted links to the videos might want to think about editing and deleting the links in their posts out of respect to the conference presenters--per their request. They've indicated they're working on a version that will be posted on the ms-mri site.

Per elliberator
*****important****from the ms-mri website!

Thank you all for attending the CCSVI Fundraiser in Warren, MI on Saturday, August 7th. We were happy with the turn out and the opportunity to meet everyone individually, it was an informative meeting.

Any future CCSVI events will be posted on our website at www.ms-mri.com

NOTE: We do ask that you not post any portion of the fundraiser meeting on the web, such as Youtube, Facebook, etc. at this time. We are working on a version that has the approval of all of the speakers that presented at the event. Also, some of the individuals that spoke at the event would not like their personal information broadcasted on the web at this time. Please respect their privacy and remove the videos ASAP. Thank you.
When we're all anxious for more info it's hard to do this, but it seems like the right thing to do under the circumstances. I haven't checked to see if the links are still working, so maybe everyone's already deleted any links.

Sharon
User avatar
hannakat
Family Elder
Posts: 128
Joined: Sun Jan 10, 2010 3:00 pm
Contact:

Post by hannakat »

I got up to #7 and now cannot access them...says they are private. I sure hope I can find them on the web site............
User avatar
Billmeik
Family Elder
Posts: 696
Joined: Fri Nov 27, 2009 3:00 pm

Post by Billmeik »

ya there was 16 of them and it was really good. I wonder what was said that wanted to stay private? Really ccsvi has taken a lot of shots lately but this was all good. The fact that haake is starting to put up numbers (30/36 so far) is great news.
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”