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this guy is a complete ass. you think that $200,000 per grant not trial is going to make a difference. its still chump change compared to the millions they spend on drug GRANTS. plus he has the nerve to mention
" Each of these is utterly ridiculous. Moreover, I would suggest that such ideas are insulting to the MS Society staff, who help people with MS on a daily basis, and to all the participants in fundraisers for MS research."
if they where so admit about helping us MSers why after almost a year they STILL have done nothing further more i am sick and tired of hearing about this protocol BS. are comments are ridiculous and insulting to the staff. poor baby. now they know whats its like to be treated unfairly....maybe if he stopped with the verbal diahrea and actually started to take some positive concrete action on CCSVI we may start respecting the ms society again (highly doubtful though). ya, funding research NOT including CCSVI.
The only thing the Manitoba chapter did for me was inform me "We don't pay for that!" and said it in a rather blunt and rude tone. I wasn't asking them too, I needed the breaks on my wheelchair fixed that the SMD (society for manitobans with a disability) had failed to fix properly, and when asked for a repair man had yet to send one out after three days of waiting. And THAT is the REAL MS Society and all their counterparts.
Here's a wonderful radio interview on CBC of a Canadian man who has become quite involved on our Facebook page. Christopher is interviewed from Poland...where he just had angioplasty. This is just incredible --
tazbo wrote:Did anyone happen to save a copy of the article prior to it's being spirited away? I would love a copy if 1 exists. p.m.me if you would prefer.
Thx
Me too please...I've tried every which way to get it and no go.
It says, "Everyone wants a quick fix, so it's relatively easy to believe in the media hype over the radical new approach to MS. It suggests that the disease is due to a narrowing of the veins that lead into the brain and spinal cord."
In fact, veins carry blood away from the brain, not toward it. The chronic cerebro-spinal venous insufficiency (CCSVI) theory suggests that it is a blood "drainage" issue, not a flow into the brain, that may be related to MS.
The article says, "This restricts the flow of oxygen to the brain and causes nerve damage that leads to MS symptoms such as spasticity and paralysis. The cure is, in essence, an angioplasty -- inflating a tiny balloon in the blood vessel to increase blood flow."
In fact, the theory does not relate to oxygen in the blood at all, rather, it relates to iron deposits that are created in the brain when blood flow back to the heart is slowed or stopped or even backed up, into the brain and spinal parts of the central nervous system (CNS). Iron, not oxygen is the theoretical culprit.
It says, "so far, nothing has confirmed (Dr. Paolo) Zamboni's claim on a significant scale."
In fact, initial results in a study of 500 people in Buffalo, N.Y., indicate that more than twice as many people with MS have this condition than people without MS, and the study used scanning techniques that were not as comprehensive as Zamboni's. Naysayers have said that, because not 100 per cent of the MS patients showed the condition in this trial, the first study in Italy was negated. Does that two-to-one ratio not tell you something statistically? Anyone who understand basic statistics would say that it does.
The article states, "Another rarely reported detail is that Zamboni's research showed the most improvement in those with the mildest form of the disease and who typically go into lengthy periods of remission anyway. Patients with pronounced secondary and primary forms of the disease showed limited improvement after six months and none at 18 months. The veins narrowed again in almost half the patients."
This quote shows that the author knows little about nervous system damage, or about MS. Nerve damage in general is mostly irreversible. The "liberation treatment" and CCSVI theory do not claim, and never have claimed, to cure this damage that has already been done. The claim is that it may result in a stoppage of the progression of MS.
Patients who already have significant damage in their CNS due to multiple sclerosis are not likely to "heal" due to this process; they may just stop getting worse.
In early stages of MS, some "healing" of the brain damage happens naturally. That is why we have "relapsing-remitting" cases where people go for periods without symptoms. As the disease progress, this healing becomes less able to bring people back to normal function. This is how MS works. If at any point, the progression is slowed or stopped, isn't that a good thing?
If the author bothered to do any meaningful research into this theory or of MS as a disease, this article could have been much more accurate and been useful, Instead, it throws a totally inaccurate wet blanket over what might be a very significant medical finding.
