CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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silverbirch
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Post by silverbirch »

Dear Dr and forum

Three x-rays were taken and need to be analysed to give an accurate diagnosis as to where my problem lies.

Dr Heidi did say that I was a twisted sister my next appointment is next week.

Along with the x-ray’s Dr Heidi carried out a physical examination and from what she said my head is not sitting as it should on my Atlas.

My chin – when I turn my head to the left or right the chin should run in line with the shoulder my does not therefore I believe supporting evidence that problems are a foot. My shoulder is 30% one way and 40% another.

I also have one leg longer that the other – I’ve forgotten why that is.

Blood pressure – this I found interesting in a normal person blood pressure will read the same if taken from either arm
In my case my blood pressure had two different reading this was demonstrated when Dr Heidi took my blood pressure from my left arm reading lower than a different reading from my right arm reading higher ( or the other way around) this is often the case when a person has an aliment problem.

Also another interesting thing I had learnt your brain regulates your blood pressure I was under the impression it was the heart.

Dr Heidi listens and took a lot of notes and is well aware of CCSVI and the chat in the forum. She was very approachable she oozed in confidence and my husband and I very relaxed.

A suggestion of a gluten free diet to start with – this I have no knowledge of and would welcome any input from the forum xx

Silver
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NZer1
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Post by NZer1 »

An article of interest;
Acta Radiol Suppl. 1976;347:395-401.
[Intraspinal venous hypertension due to multiple anomalies in the caval system. A major cause of myelopathies]
[Article in French]

Aboulker J, Aubin ML, Leriche H, Guiraudon G, Ancri D, Metzger J.

Abstract
Increased venous intraspinal pressure is described as a venous system disease, resulting in numerous unexplained paraplegias and tetraplegias. The chronic venous stasis in the intraspinal plexuses, into which the circulation of the spinal cord is drained, is due to the association of multiple abnormalities (stenoses, compressions, thromboses) on the major pathways of the caval and azygos system. The abnormalities, most of which are not known, are demonstrated by a special procedure, the cavo-spinal phlebography, and some of them are subjected to surgery.
http://www.ncbi.nlm.nih.gov/pubmed/207125
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NZer1
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Post by NZer1 »

Another article of interest;
[Cavo-spinal phlebography in myelopathies. Stenoses of internal jugular and azygos veins, venous compressions and thromboses]
[Article in French]

Leriche H, Aubin ML, Aboulker J.

Abstract
Increased intraspinal venous pressure, resulting according to ABOULKER in numerous spastic paraplegias and quadriplegias is due to multiple venous abnormalities demonstrated by cavo-spinal phlebography. The most frequent are stenoses of the internal jugular veins, the left renal, the left iliac veins, the azygos veins and compressions of the innominate venous trunks. These abnormalities cause a permanent stasis in the intraspinal plexuses through excessive supply or insufficient drainage. Out of 80 patients, 60 per cent had at least 2 abnormalities, 38 per cent at least 3 abnormalities.

PMID: 207127 [PubMed - indexed for MEDLINE]
http://www.ncbi.nlm.nih.gov/pubmed/207127
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Post by uprightdoc »

Silverbirch aka "Twisted Sister" - please keep me posted of your progress as I am doing a retrospective analysis on some of you and will be presenting initial overview findings and results to Dr. Haake at the Albany Nov 10 meeting.

Basically for a gluten free diet you need to eliminate all wheat products. Unfortunatley wheat is in many prepared foods, breads and cakes etc. so make sure you read labels. Better yet, skip prepared foods. Substitute rice, buckwheat, oatmeal, or potatoes for starches. Ask Dr. Heidi for further advice.
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NZer1
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Post by NZer1 »

Hi Dr.'s, I need some advise please. I am aware that my neck and thoracic areas are painfull, stiff, clicking allot and may be out of alignment at present and want to have an assessment and treatment. In my area there are 2 Chiropractors who in my understanding are not trained in Upper spine care like your self(s). I have been seeing one of them for many years. He is good at the basics, and specialized in sports injury most of all. I have never in 10 years had any xrays done for him, (he does not have xray equipment). He was very helpful when I was trying to find a dx for my symptoms mostly numbness and tingling about 5 years ago when MS was suspected.
I am of the belief that adjusting without first knowing what is 'seen' is not going to advance my situation. Because of my injury history and MRI's showing degeneration, I have often had aches and pains that seem to naturally resolve rather than from adjustments. I think that is more to do with the lesion on my C2 area and vascular and CSF flows settling.
Naturally I have a very inquisitive mind and like to understand what is happening physically. If I have had ongoing compression issues from teenage years, I am wondering what is physically happening when alignment is 'out' or adjustments are used. I assume that the fluid disc material has compressed and because it is oval, one 'side' has decreased clearance and there are many issues that will happen. Nerve impingement exiting the cord, cord being effected by bulges, cord stretch having to travel around bulges, lesions effected by cord flexation, muscle strain, spasm, scaring, fatigue any number of issues minor to major.
With my situation where there is not a specialist, I am at a loss knowing how to approach having the best care. I don't want to go to people who are blindly assuming that I may have what they believe is happening without tangible proof. Probably not a good start for a patient / health carer relationship, but I have too much life experience to go on faith alone.
Do you think that I will need xrays to show alignment before having 'treatment'? Who would you recommend I get to view the xrays and advise me on treatment? Any other advice?
Thanks regards Nigel
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Post by NZer1 »

Just finished writing my question above and look what arrived in my inbox, thanks Dr. F

Cervical Subluxations and CCSVI
uprightdoctor | October 30, 2010 at 6:49 pm | Categories: Uncategorized | URL: http://wp.me/p11lYi-BZ



In a previous post I discussed the role of the vertebral veins, also knowns as the vertebral venous plexus (VVP), in causing chronic craniocervical venous back pressure (CCVBP) and subsequent neurodegenerative conditions and diseases such as multiple sclerosis. Like CCSVI, CCVBP can lead to chronic venous backups and edema in the brain. It can also affect cerebrospinal fluid (CSF) pressure gradients and subsequent flow and volume. Correct CSF volume is essential to brain cushioning, protection and support. Consequently, in addition to MS, CCVBP may play a role in normal pressure hydrocephalus (NPH), which has been associated with Parkinson's and Alzheimer's disease.


verterbral arteries
I next discussed the vertebral-basilar arterial supply to the brain and its likely role in chronic ischemia which, like chronic edema from backed-up veins, is one of the main suspects in demyelination and other neurodegenerative conditions and subsequent diseases. Lastly, I posted pictures of the tight neurovascular tunnels the VVP and vertebral-basilar arteries must pass through in the upper cervical spine and foramen magnum in the base of the skull on its way to the motherboard of the brain, the brainstem.



In light of the above, the picture below on the right is of Greek techno music producer, CostumeNational of fightforccsvi.com. The picture was taken with his permission from Dr. Scalfani's MS website forum called, ThisIsMS.com.

The forum is a wonderful group of MS patients who have provided me with a rare opportunity and unbelievable insight into the mystery of MS that they openly and gladly share. Weakened by their condition, they are nonetheless strong and quite fiery in spirit. Together they have formed a formidable group that is shaking up scientists and researchers around the world. Their determined efforts are helping lead the way and shape future research not only for solving MS, but other devastating neurodegenerative conditions as well such as Alzheimer's and Parkinson's disease, NPH, Huntington's chorea, ALS, PLS and others to numerous to mention here. It is invaluable to say the least to have so many cases to study and follow in one location. They provide a wealth of information that demands further retrospective analysis and investigation such as I in the process of doing now on a much larger scale.

This particular type of picture is called an open mouth odontoid image because

the odontoid process of the second cervical vertebra, called axis or C2, is in the center of the image. It's called the odontoid process because it looks like a tooth that sticks straight up from the body of the vertebra.

The odontoid process fits neatly into a notch in its mate directly above called Atlas or C1 beneath the base of the skull. The odontoid process permits greater pivotal action in the upper cervical spine. In my opinion, the odontoid process also reduces the size of the body of the vertebra, which may help to reduce pressure in the area during head and neck movement. The red line indicates the center line of the spine. The triangular dart-like shapes pointing upward are the spinous process of the cervical vertebra. In a normal spine, they should all line up on the red line.

If you look through the open mouth you will see one of the darts is way off to one side. You will note by the marker on the film that it indicates the right side. That particular dart is the spinous process of the second cervical vertebra (C2) called axis. The degree of misalignment in this case is severe.

According to CostumeNational, about eight years ago or so, he was riding a motorcycle when he crashed into a car, which threw him to the ground landing on the right side of his shoulder and head. The force of the fall from the weight of his propelled body magnified by the speed he was traveling at severely snapped his neck to the left and left him unconscious.

As the x-ray evidence clearly shows, when he came to later in the hospital, although no one knew it at the time, his head and neck were no longer aligned properly. Instead it remained in the wicked tilt to the left the same as it was after impact. Eight years later he started to develop optic neuritis in his left eye on the low side of the head tilt. Head tilts cause the brain, blood and CSF inside the cranial vault to shift to the low side just like water in a glass, which can increase pressure on the optic nerve and may play a role in optic neuritis.

Interestingly, he had no lesions in the brain but he did show hyperintensity signal precisely at the location of the kink in the upper cervical spine. The highly suspicious characteristic symptom of optic neuritis was next followed by cerebral, as well as cord signs and symptoms identical to MS. Nonetheless, without brain lesions, his case falls into the uncertain category of cracks, a no-man's land not considered to be classic MS, which is crazy.

There is a major principle in neurology when it comes to the brain and the cranial vault, called the Monroe-Kellie principle. According to the Monroe-Kellie principle there are essentially three elements inside the cranial vault which include the brain, blood and CSF. Since the cranial vault is a closed container for the most part, if the volume of one of the elements increases, then one or both of the other two elements must decrease in volume. A brain tumor for example can compress blood vessels as can Chiari malformations mentioned in previous posts. Likewise an increase in blood or CSF volume can compress the brain.

The same principle holds true for the spine and spinal canal, which, like the cranial vault, is for the most part a closed container. In other words, there is no free space inside the spinal canal. Instead, the space between the inside walls of the spinal canal and the cord is filled with the VVP. Therefore a kink in the upper cervical spinal canal as in the case above puts a kink in the drainage system of the brain and cord. It also causes venous back pressure and hypertension around the cord. Lastly, it increases resistance to CSF flow on its way back to the brain from the cord.

In my next post I will discuss precision line analysis used by upper cervical chiropractors to analyze mechanical strains such as the one above. After that we will then look at some of the common signs and symptoms of MS which share a lot in common with AD and PD.
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Post by HappyPoet »

Hello Dr. Flanagan,

I'm extremely happy to report that my upper cervical (Atlas Orthogonal) chiropractic treatment is going extremely well. I can now walk without a cane and can use stairs again because my feet are not numb anymore. :D

My left foot numbness has now remitted 100% after three Atlas adjustments. My right foot numbness remitted 100% after my first Atlas adjustment (as I previously reported). Never before in ten years of having foot numbness during relapses has my numbness remitted this quickly, this completely.

I believe patients with spinal lesions and/or symptoms should make an appointment for a consultation with an upper cervical chiropractic doctor. Patients deserve no less than a complete picture of their spinal column consisting of both X-ray and MRI.

For anyone in the Albany, NY area looking for an excellent upper cervical doctor who uses the very gentle and completely painless Atlas Orthogonal technique, I highly recommend Dr. Craig Wehrenberg in Clifton Park, NY (518-383-9000).

Regarding getting my CD of X-ray images to you, I use a Mac, and I can't open the folder that contains the images. I want you to have the images and would like to know if you have a snail-mail/PO Box address so I could send you a copy of the CD? Or perhaps you know how I can open the folder that contains the images?

Thank you again for all your help. My history of relapses and remissions of numbness shows that I wouldn't be walking for several more months if it weren't for you and Dr. Wehrenberg.

~ :D Poet
Last edited by HappyPoet on Sat Oct 30, 2010 2:52 pm, edited 1 time in total.
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silverbirch
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Post by silverbirch »

Happypoet this has been a lovely posting to read - as Im attending a NUCCA Dr Heidi here in London(contact given by Dr F) this Thursday I go for the results of my three x-rays along with my first adjustment ?

Although I am a little confused the x rays taken were of the neck I never had an open mouth x ray ! Is this done for certain cases or would it be that I did not meet the criteria ? maybe the good DR'S could shead somelight on this ??

Happypoet I hope you get to sail again but if I was you ebay the Ski's

How is your spacisticty ?
AKA Twisted Sister ( in this thread )
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blossom
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Post by blossom »

hello dr. flanagan, just letting you know i'm still alive and truely appreciate what you are doing for me and all the others here. hopefully this coming week is better for me.

I HAVE A QUESTION THAT I'M SURE APPLIES TO OTHERS HERE. for those of us that need more than a upper cervical chiro. and we can only stand a very short time and that's holding onto something and we're probably a little shakey and not standing very tall at best----how can we get x-rayed? at least a full spine. even if i try to stand straight "holding on" wouldn't that interfer with a true picture of what is going on?

years of weakness of muscles wear and tear, the crooked way so many of us in wheelchairs sit as a rule because of more weakness on one side or the other etc. i am told my back is humped out on my weaker side don't know what that's about-probably because i've compensated when trying to walk and do anything. i kinda think an x-ray of myself at this point may resemble a pretzel.

anyway, you know where i'm coming from about this. i hope there is a credible way to get a full spine x-ray and other x-rays for those of us in this condition. i want to do all this so badly as i'm sure many in my condition do. but will a chiro. still be able to? i'm hopeing that since they work on new born babies there is a way.
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NZer1
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Post by NZer1 »

Hi Blossom, I have thought about this too. I think that we need to also think about how we are in natural form. If we stand in a way that is different to normal I would think that we give a false impression of the lay of the land.
Thinking about flows in particular there will be differences when we are in our MS pose compared to our smile for the camera pose.
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Post by uprightdoc »

NZer1, For anyone with serious neurodegenerative diseases of the brain and cord there is simply no substitute for specfic upper cervical chiropractic care.
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Post by uprightdoc »

Amen Twisted Sister. It's time for Poet to hang up the skiis. Unfortunately it's a little chilly here for sailing.

I don't know why Dr. Heidi didn't take an open mouth odontoid but she comes highly recommended by Dr. Chuck Woodfield of NUCCA. Sometimes people on the other side of the pond simply chose to do things a tad differently, sort of like driving on the opposite side of the road but it still gets you there.
Last edited by uprightdoc on Sun Oct 31, 2010 2:33 am, edited 1 time in total.
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Post by uprightdoc »

Blossom,
I strongly suggest you schedule a visit with an orthopedic surgical facility. They will have wheel chair access and bathrooms for your convenience and there should be one nearby. They will also have a table bucky for you to lie on while the x-rays are taken. You can get specific upper cervical x-rays later. Tell the doctor your long history of trauma and more recent fall onto your knee and the neck and back pain you get. Have them take AP and Lateral cervical and lumbar x-rays. If they have the cassette have them also take one long 14x36 AP view of your entire spine similar to the one Fernando posted way back. Curvatures problems and other issues as I suspect you have don't change from lying down to standing up positions. So forget trying to find a good chiropractor for now. Go to an orthopedist and get the basic x-rays first.
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Post by blossom »

dr. flanagan, thank you again. i will try to pursue this as soon as possible. now, remember this is new to me and i'm sure others. after i hopefully get the correct x-rays, do the orthopedic surgical dr. treat me "i hope not" or do i just get copies of x-rays and then try to find the right chiro. for the job? how will i know what kind i need? hopefully they will have a written report along with the x-rays and you will again be the kind and compassionate and dedicated dr. we are all getting to know and you will guide me.

hopefully along with all your good qualities "patience" is also one of them. here lately it seems i'm getting a little dense and i apologize for that. it is very aggrivating for me for sure, as i always was pretty sharp and this is another thing ms "and maybe some senior moments" is makeing life even more diffiicult. hopefully, if i get my spine straightened out and "get my head on straight" some or "can i dream" all these miserable things will go away.

the best.
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Post by Cece »

HappyPoet wrote:I'm extremely happy to report that my upper cervical (Atlas Orthogonal) chiropractic treatment is going extremely well. I can now walk without a cane and can use stairs again because my feet are not numb anymore. :D
This is the best thing I've read all day.
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