CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

ccsvi

Post by blossom »

happypoet, when i hear of your improvements and "more to come" it truely makes my heart sing. also for others experiencing improvements.

like dr. flanagan said : dr. zambonni fired the shot heard around the ms world with ccsvi. now, we are finding that that gun used to fire the shot, will be useing different types of ammunition to get the job done. and, "dr. flanagan's" addition to this aresenal of ammunition i'm sure will have some real fire power. "we can't let any of this slip through the cracks" as it has for too many yrs. now. hopefully when he states his case at the upcoming symposium every dr. there is willing to look at consider possibilities and discuss. this whole ccsvi thing and ms is not a one man ballgame. "it will take a team effort".

so, YEAH TEAM. let no stone go unturned. we all they tell us have ms. but we can't forget how different we all are even if we are the same.

happypoet you go girl.

















"
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

Blossom, you don't need surgery. You need x-rays and a basic orthopedic evaluation of your neck and low back would be helpful as well. This would include checking ranges of motion in the neck, lumbopelvic spine and legs as well as standard muscle strength and reflex tests. Personally, I would also check your hips and knees as well and your shoulder joints. Anyway, mostly, you need x-rays to see what sort of condition your spine is in. That's the best place to start.
User avatar
costumenastional
Family Elder
Posts: 743
Joined: Sat Jan 31, 2009 3:00 pm
Location: Greece
Contact:

Post by costumenastional »

Video courtesy of Bo Rochester. Showing the effects of Upper Cervical Chiropractic on the entire spine. These are before and after x-rays that have been morphed together to show how the spine actually changes structurally when the head and neck are realigned.

User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

The Bo Rochester video is interesting but for all you men over fifty please get a complete checkup and stress test from your cardiologist before visiting CostumeNational's youtube site.
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

Dr. Chuck Woodfield and Dr. Haake have now been in communication and Dr. Haake asked how he could help Dr. Woodfield with his research.

Dr. Woodfield is currently in the process of trying to establish research facilities similar to Dr. Haake so this is perfect timing. Among other things, he is currently doing research on a dementia case with Dr. Noam Alperin of the University of Florida using upright Fonar MR studies. The case showed zero CSF flow at the base of the skull. They are using upper cervical intervention on the patient and will do a follow up in two weeks. Things are starting to get very interesting.

Dr. Woodfield is a big fan of using Dr. Haake's protocols. I have seen the protocols. Some of the key points have to do with baseline studies and imaging planes among other things, as well as technical formatting of the equipment. His images are phenomenal.
User avatar
sbr487
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India
Contact:

Post by sbr487 »

uprightdoc wrote:Dr. Chuck Woodfield and Dr. Haake have now been in communication and Dr. Haake asked how he could help Dr. Woodfield with his research.

Dr. Woodfield is currently in the process of trying to establish research facilities similar to Dr. Haake so this is perfect timing. Among other things, he is currently doing research on a dementia case with Dr. Noam Alperin of the University of Florida using upright Fonar MR studies. The case showed zero CSF flow at the base of the skull. They are using upper cervical intervention on the patient and will do a follow up in two weeks. Things are starting to get very interesting.

Dr. Woodfield is a big fan of using Dr. Haake's protocols. I have seen the protocols. Some of the key points have to do with baseline studies and imaging planes among other things, as well as technical formatting of the equipment. His images are phenomenal.
Very interesting news indeed. Sometimes I wonder why scientists dont want to investigate fundamental things. Are certain areas simply out of fashion and dont add anything to CV or people simply dont want to disturb applecart. Or more and more we have focusing on drug based treatments and not on really fixing problems ... I don't know but something is really wrong ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
User avatar
NZer1
Family Elder
Posts: 1624
Joined: Thu Feb 18, 2010 3:00 pm
Location: Rotorua New Zealand

Post by NZer1 »

I asked Dr. Scalafani this question and I believe it needs to be circulated to other Medical Specialists, can you spread the word please, we may have an answer to the repeated angio concern;
Posted: Wed Nov 03, 2010 5:43 am Post subject: Dr. S it appears that people with functioning valves in the blood return flow to the heart don't have symptoms that have been associated with MS. It appears that people without non return valves to the brain accumulate symptoms associated with MS (over long periods of time). It appears the body has found ways to return blood flow to the heart called collaterals which appear to overcome back pressure as the persons blood pressure is not raised. Is it possible that the issue for PwMS is simply that the blood is not restricted from back flow to the brain. If there were working valves to stop the blood flowing back to the brain the malformations would not need to be angioed? If surgeons have been able to replace heart valves is it possible that replacing or installing valves will be the resolution of back flow/reflux issues for PwMS. Regards Nigel
http://www.thisisms.com/ftopic-10680-3780.html
User avatar
Drury
Family Elder
Posts: 237
Joined: Sun Mar 28, 2010 2:00 pm
Contact:

Post by Drury »

Hello Dr. Flanagan,

My daughter of 31 has MS. She was hit by a cab in NYC and thrown onto the windshiled where she smashed her head causing major brain trauma (outer hematoma) along with herniated disc, shoulder, hip, knees etc. and was diagnosed with MS a year after her accident. She had leg weakness a few weeks after her accident and the neurologist said it was due to knee injury. There is no MS in any of our families and I firmly believe that it was the accident caused it.

She has been seeing an Atlas Orthogonist on and off for well over a year and more so recently. She fell about 10 days ago and landed on her chin and smashed her knees again. She saw the chiropractor again and he adjusted her neck but it goes out regularly. She has multiple lesions in spine and neck.

We are interested in CCSVI also and she had an MRV in Albany but the results showed no stenosis although they could not see the Azygos properly. The doctor said she may well have reflux but was not sure what could be done about.

I would really appreciate your input.

Thank you very much for all the time you give to this website.

Drury
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

Hello Drury,
What are your daughter's chief complaints. Is the leg weakness the only problem. If so, the neurologist said that it was due to her knee injury. That indicates to me that he found no evidence of neurological weakness. On the other hand, many types of orthopedic problems can cause pain and mechanical type muscle weakness. For example, if you injure your hip or knee it can cause difficulty climbing stairs. You said that your daughter injured her shoulder, hip and knees in the car accident. She also recently fell on her knees.Has anyone checked her low back, legs and hips. I would also like to know where the herniated disc is. Is it in her neck and if so how bad is it? What does the report say?
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

Dr. Flanagan:

May I ask you if you have any recommendation for a chiropractor specialist for the analysis / treatment of "you-know-what" in Taiwan; preferably in the Taipei vicinity.

I cannot go abroad momentarily due mainly to MS (EDSS >8, non-self-ambulatory, etc...)

Any help will be appreciated; respectfully

Algis
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

Hello Algis,
Unfortunately, to protect their turf and prevent competition the medical monopoly and pharmaceutical industry have made it illegal to practice chiropractic in Taiwan. They are probably around but you will have to ask around for a referral.
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

Thank you Doctor;

I needed confirmation tho.
User avatar
Drury
Family Elder
Posts: 237
Joined: Sun Mar 28, 2010 2:00 pm
Contact:

Post by Drury »

Dr. Flanagan,

Just for the record my daughter's accident was Oct 05 and she saw the neurologist about six weeks after that but there was so much going on he was not really focusing on her legs giving way but she did have 2 MRI''s of her cervical spine. She saw so many different doctors over that year including an orthopedist, a specialist for her jaw as she could not open her mouth fully for about 6 weeks and then a TMJ doctor who fitted her with a mouthpiece but her jaw is still not right, etc. It was the orthopedist who sent my daughter to a new neurologist in Dec 06 as he thought she might have a disc pressing on a nerve and she was diagnosed with MS in Jan 07.

Her problems are leg heaviness and weakness, tripping, balance is bad, numbness in feet, bladder issues, neck issues, blurry vision sometimes, going up and down stairs is now much more of an issue.

She has recently had an MRI of her right knee due to pain and diagnosed with a bone infarct. She is about to have an MRI of her other knee and left shoulder/arm. The orthopedist checked her hips by manually rotating them I think but lower back I am not sure about. She did say just the other day that she cannot bend down for long.

Here is the interpretation of the MRI report of Dec 05:
I am listing the discs that seem to have been affected.
At the C5/6 disc space level, disc space changes are noted. Disc herniation is identified deforming the anterior subarachnoid space without evidence of impingement of the cervical spinal cord. Disc space changes are noted. The disc herniation is central and right in orientation without evidence of neural foraminal extension.
Disc bulges are noted at C3/4 and C4/5 etc.
At C2/3 loss of disc signal is seen with preservation of disc space height without evidence of disc herniation etc.
Impression:
C5/6 Disc herniation abuts the cervical spinal cord on the FLEXION view.
C3/4 and C4/5 Disc bulges without significant change when comparing FLEXIONS AND EXTENSION views to the NEUTRAL position.

I hope this is not too wordy.

Thank you very much Dr. Flanagan

Drury
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Post by uprightdoc »

Drury, You aren't being too wordy. Your report is almost professional. There is nothing severe enough in the cervical spine to cause your daughter's current symptoms. Furthermore, she is seeing an AO chiropractor so I am assuming for now he is getting the job done which is perfect. Nonetheless, your daughter has leg heaviness, numbness in the feet, bladder problems, balance problems and difficulty climbing stairs and occassional blurriness of vision and ongoing neck tension and apparently she is getting left shoulder complaints as well. The signs all suggest to me that she has tenison in the lower spine and cord, most likely due to a pelvic misalignment.
Does your daughter have any curvature problems or low blood pressure that you now of?
User avatar
Kathyj08
Family Member
Posts: 74
Joined: Fri Jan 08, 2010 3:00 pm
Location: Indiana, USA

Post by Kathyj08 »

Dr. Flanagan,
I had my first appt. with the upper cervical chiropractor today but need to go back for a couple additional x-rays and some neuro testing. (today was just a consult)
I was quite happy with him, he seems to be a great listener which is a good start.
I am wondering about the rolling thermal scan they did on me and how much it actually tells them. Is this something you are familiar with?
The technician did alot of oohing and aaawing while looking at the report but at the same time I could tell she was trying to be professional about it.
Most things were within the normal range like 0.1, 0.2, 0.3, etc. but when she got up to the C1 it was a 6.0.
The only other areas that were not normal were the L4 and L5 but not anywhere close to the C1 reading.
The Dr. says after 2 more x-rays he will analyze everything and see if he believes I would benefit from his services.
That sure would be cool if he can help!
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”