Gibbledygook's antibiotic log

mrhodes40 · Post by **mrhodes40** » Thu Aug 17, 2006 5:02 pm

what a great succinct update Alex! I always love to read how you are doing. I too have vastly less spasm, I almost never take a spams pill reqip for me. I took one 5 mg pill two weeks ago on a pulse...that was the last..
marie

gibbledygook · Post by **gibbledygook** » Fri Aug 18, 2006 12:58 am

Yesterday on my 20th pulse I managed twenty minutes in a row on the cross trainer at the same level as I have hitherto been generally doing 10 minutes and more recently attempting 15 minutes. TWENTY minutes! Yeee Ha! I haven't managed that since early 2004. I was quite shaky after that but still managed my usual 10 minute break afterwards before resuming another 2 separate 10 minute sessions.

I dreamed I was skiing last night except that the pistes were all enclosed like a cattle shed. Maybe that means I could ski but not very far!

This pulse has seen a few phosphenes floating about and a bit of foot burn recurring in the evenings. Also both feet in the evening seem a bit sore. I also have occassional sharp stabbing pains in my hands and thighs. Such a nice disease.

SarahLonglands · Post by **SarahLonglands** » Fri Aug 18, 2006 2:54 am

Gosh, well done! I don't know about the "Yeee Ha!" though - its me who dreams about horse riding. I even bought a plaited horsehair belt. Sad or what?

mrhodes40 · Post by **mrhodes40** » Fri Aug 18, 2006 5:45 pm

It is a lousy disese that takes away ones hobbies. I used to ski well also.
So Sad. I plan to go up there this year and try to at least snowshoe with a nice picnic -cheese and bread and sparklling wine come to mind-in my pack and my darling by my side, although the trail had best be well traveled as I cannot lift my leg over an inch or two...no fresh powder for me!. this is my big plan. I am hopeful. My guess is that if I make 800 yards it would be a miracle so we'll have to park close to the trailhead. See? I have it all planned.
marie

gibbledygook · Post by **gibbledygook** » Mon Aug 28, 2006 3:45 am

I just spent a week in the Swiss Alps and went up to the 3,000 meter glacier at crans-montana on a gloriously sunny day. After a little while I started getting quite a few stabbing pains in my hands which continued when I was down at 1,500 meters. I wonder if high altitude is bad for MS.

gibbledygook · Post by **gibbledygook** » Thu Sep 07, 2006 7:24 am

I completed my 21st pulse on the 4th September. During the pulse my left foot burn reappeared and is still with me a bit today. I also had more movement induced phosphenes. Mynight spasms disappeared but have now reappeared but still only require a small quantity of zanaflex.

Yesterday I managed 20 minutes on the xtrainer, a 10 minute break, then 15 minutes, a 10 minute break, then 13.5 minutes before I HAD to sit down!! This is the longest session I've managed in a 2 years.

gibbledygook · Post by **gibbledygook** » Thu Sep 14, 2006 11:39 am

I have for the last week added 400mg of plaquenil which is used in rheumatoid arthritis and lupus and is also a powerful anti-chlamydial agent. I had bought it a while ago and the pills will be past their use-by date in january so I thought I'd give them a try. The left foot burn reappeared a few days into the plaquenil and has remained but is mild and nothing like last year. I also now have quite pleasant tingling sensations in my right foot something I only used to get after a long period of exercise or walking/limping. I have also seen a few phosphenes but not many. I have also today started my 22nd pulse of metronidazole. I have been taking anti-spasm medication every night but am not always certain that it was required.

I managed 1.2km yesterday in high humidity but wasn't so good today in equally high humidity although I still walked 1.2km it wasn't so, er, graceful.

SarahLonglands · Post by **SarahLonglands** » Fri Sep 15, 2006 4:13 am

Alex, plaquenil is a prescription only drug and I don't think that it being near its sell by date is a good reason to try it, especially whilst on metronidazole, which is the more important of the two. One of the warnings is that it might affect the vision, also kidneys and liver:

http://www2.netdoctor.co.uk/medicines/100004397.html If I were you, I would read through this and think twice.....Sarah

gibbledygook · Post by **gibbledygook** » Tue Sep 19, 2006 8:49 am

I stopped taking the plaquenil having completed 8 days at 400mg. It definitely seemed to affect my right foot which normally has no sensation in it but did have a pleasant tingling sensation whilst on this anti-malarial. I continued taking doxicycline and roxithromycin and also managed 1 day of flagyl. I shall not take any more plaquenil although I do remain intrigued by it.

Anyway I am now not taking ANYTHING for 2 weeks as I'm doing some fertility treatments and have started injecting hormones. Hopefully a 2 to 3 week break from all abx/anti-malarials won't materially alter any nasty bugs lurking in the CNS.

SarahLonglands · Post by **SarahLonglands** » Tue Sep 19, 2006 9:06 am

Alex, I am sending you an email, please make sure you read it.......Sarah

gibbledygook · Post by **gibbledygook** » Tue Sep 19, 2006 9:40 am

The fertility treatment is to store embryos and I would definitely not take antibiotics or indeed any other medication whilst pregnant!! In fact I'm coming off the antibiotics just to extract the eggs and then will go back on once this short treatment is over. I had rather upped the ante prior to this treatment as I don't want any bugs in the embryo/eggs!!!

gibbledygook · Post by **gibbledygook** » Thu Sep 21, 2006 7:59 am

Wow, well I've done 3 days of injecting oestrogen and no antibiotics and my walking is dreadful now!! I can just about manage 500 meters and my right foot is tingling like crazy. I wonder whether oestrogen is bad for damaged nerves, it certainly feels like it although it could equally just be the disease process. Ho hum.

wiggy · Post by **wiggy** » Mon Sep 25, 2006 8:10 am

Are you feeling any better ? Done with those injections yet? I think it is probably the hormones making you feel bad.

gibbledygook · Post by **gibbledygook** » Tue Sep 26, 2006 12:16 am

Hi,

Unfortunately my bad right leg has reverted to bad stiffness levels but no worse than I've had before but annoying when it had seemed to have gone. I'm now limited to about a maximum of 500 meters. They have reduced the level of hormones I inject quite a bit as I seem to be "responding" well. Perhaps that's why my leg feels so bad. Curiously none of my other symptoms have flared; no foot burn, very few spasms, a few phosphenes, right hand same, bladder same. This disease is maddening! Why do some symptoms get worse and not all at the same time?!!
I hate needles! Now I have to inject 2 different types of hormone. Eeeuuuw!

gibbledygook · Post by **gibbledygook** » Wed Sep 27, 2006 6:55 am

I'm sure I read somewhere that constipation made walking harder. I'm now wondering whether my walking has gone to pieces because my ovaries have really swollen massively. In fact the doctors are now worried I may get ovarian hyperstimulation syndrome so they've really reduced the oestrogen amount. I'm struggling to get my jeans on I'm so swollen up. And my bad leg has reverted to mean bad stiffness which it hasn't had in ages. Ho hum. Not sure I want children!!

This Is MS Multiple Sclerosis Knowledge & Support Community

Gibbledygook's antibiotic log

Longer gym workout

Plaquenil and 22nd pulse

Oestrogen

Swollen abdomen bad for walking