tazma wrote:I saw that post on another site, I wouldn't pay him much attention, he's negative on almost any new idea and spews opinions without facts.
If he or others share that opinion, well not much you can do. You can't mold this site to make people like that happy.
You're right. I just thought people might like to see how this is being perceived elsewhere, because that particular poster is not the only one. On the specific question of the "kookiness" of bloodletting, yes, bloodletting is an accepted treatment for hemochromatosis and other causes of iron-overload (I was amazed when my sister mentioned a case using leeches where she was doing some clinical work). But this is used for excess
serum iron levels. I am not aware of MS patients commonly having raised serum ferritin levels.
True, my comments lately can be perceived as inflammatory. But as I have read some of the CCSVI papers more carefully, I have noticed things that don't explain the pathology of MS, or things that don't always add up. And that is why I continue to post; to convince myself that this theory is viable.
Since the CTV news program, many new people have joined and that is good. But some, I think, are what might be called "trolls." Some haven't even been diagnosed with MS, and are telling members here that they are too passive for not picketing hospitals to get CCSVI treatment. I took exception to this criticism, because, as I have learned over the last year and a half, most members here are anything but passive. Just look at the number of people willing to participate in clinical trials, or try their own treatment programs.