I must've heard it from bmk, I would pm him...and pklittle, that means you weren't checked for May Thurner? Not sure how far you are from dr. Siskin for a return trip but May Thurner is known and recognised, any vascular doc could check you out for it.pklittle wrote:Did the doctor tell you this? I am particularly interested, because I must have been one of his last to have it from the right...Cece wrote:Yes. When bmk had his treatment (two weeks ago?) Dr. Siskin did from the right, but as of one week ago, Dr. Siskin is now a left-side guy.
CCSVI treatment available in the U.S.!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Dr. Arata in CA
I emailed the doctor in CA that was posted here about cost and this is my reply:
I work with Dr. Arata, I checked with him on the cost of the CCSVI treatment, he stated that for the MRV exam it costs approximately $1,000.00 maybe more depending on the facility, and for the CCSVI surgery it can be anywhere from approx $5,000-$50,000.00 dollars depending on facility charges as well.
I didn't find this very helpful. I don't have 50K. Why is the West Coast so much more money?
I work with Dr. Arata, I checked with him on the cost of the CCSVI treatment, he stated that for the MRV exam it costs approximately $1,000.00 maybe more depending on the facility, and for the CCSVI surgery it can be anywhere from approx $5,000-$50,000.00 dollars depending on facility charges as well.
I didn't find this very helpful. I don't have 50K. Why is the West Coast so much more money?
Diagnosed 1994, Self EDSS is 6.5
On June 16, he was batting on the right side, now he is batting on the left side. I confirmed this with the good Dr. on 6/25. I suspect he is now a switch hitter, who will mostly bat left.Cece wrote:I must've heard it from bmk, I would pm him...and pklittle, that means you weren't checked for May Thurner? Not sure how far you are from dr. Siskin for a return trip but May Thurner is known and recognised, any vascular doc could check you out for it.pklittle wrote:Did the doctor tell you this? I am particularly interested, because I must have been one of his last to have it from the right...Cece wrote:Yes. When bmk had his treatment (two weeks ago?) Dr. Siskin did from the right, but as of one week ago, Dr. Siskin is now a left-side guy.
bmk
I'm writing to ask if anyone knows the names of any recommended Drs (vascular?) or maybe investigational radiologists who would remove an obstructing valve in the jugular vein.
Right now, I'm near the Buffalo area. It's hard for me, but I'll travel if I must.
I just don't have a clue of who can help.
Thank you,
Sofia
Right now, I'm near the Buffalo area. It's hard for me, but I'll travel if I must.
I just don't have a clue of who can help.
Thank you,
Sofia
bmk1234 wrote:On June 16, he was batting on the right side, now he is batting on the left side. I confirmed this with the good Dr. on 6/25. I suspect he is now a switch hitter, who will mostly bat left.Cece wrote:I must've heard it from bmk, I would pm him...and pklittle, that means you weren't checked for May Thurner? Not sure how far you are from dr. Siskin for a return trip but May Thurner is known and recognised, any vascular doc could check you out for it.pklittle wrote:
Did the doctor tell you this? I am particularly interested, because I must have been one of his last to have it from the right...
bmk
Hmmmm.. I was done on Monday 6/14. I think I'll email him to see if I can get checked. It is just a 2 hr flight for me. I live 15 min from a major airport, and the Albany Medical Center is just 15 min from their airport. I'll let you know what he says. I just gotta know whether I have this May Thurner or not cause I am still feeling no benefits, zilch.
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happy_canuck
- Family Elder
- Posts: 270
- Joined: Sat Nov 28, 2009 3:00 pm
- Location: Victoria, BC Canada
- Contact:
Payment method?
Hi folks,
Anyone know what the AMC takes as payment when you don't have insurance? I was hoping I could use Visa or Amex when I go next week.
Cheers,
Sandra
Anyone know what the AMC takes as payment when you don't have insurance? I was hoping I could use Visa or Amex when I go next week.
Cheers,
Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
If you have symptoms of May Thurner you can have it checked locally and insurance will pay. My Aunt had it checked on her locally this week.pklittle wrote:bmk1234 wrote:On June 16, he was batting on the right side, now he is batting on the left side. I confirmed this with the good Dr. on 6/25. I suspect he is now a switch hitter, who will mostly bat left.Cece wrote: I must've heard it from bmk, I would pm him...and pklittle, that means you weren't checked for May Thurner? Not sure how far you are from dr. Siskin for a return trip but May Thurner is known and recognised, any vascular doc could check you out for it.
bmk
Hmmmm.. I was done on Monday 6/14. I think I'll email him to see if I can get checked. It is just a 2 hr flight for me. I live 15 min from a major airport, and the Albany Medical Center is just 15 min from their airport. I'll let you know what he says. I just gotta know whether I have this May Thurner or not cause I am still feeling no benefits, zilch.
bmk
Symptoms of May Thurner are: leg swelling and pain, blood clots, deep vein thrombosis
"Patients with May-Thurner syndrome are often young and middle-aged women, and they frequently present with left lower extremity swelling or pain" (http://www.ajronline.org/cgi/content/full/183/5/1523)
Dr. Zamboni has suggested it is linked more to progressive cases, not relapsing remitters. This is logical enough since it is near the spine, not the brain.
"Patients with May-Thurner syndrome are often young and middle-aged women, and they frequently present with left lower extremity swelling or pain" (http://www.ajronline.org/cgi/content/full/183/5/1523)
Dr. Zamboni has suggested it is linked more to progressive cases, not relapsing remitters. This is logical enough since it is near the spine, not the brain.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Got my procedural email from Albany today. It really seems real now!
My insurance will cover most of the costs. I am delighted!
I will be making travel arrangements today. Fortunately, I travel a lot in m line of work, so I may even be able to swing a couple of free nights at the recommended hotels.
I am so excited!
My insurance will cover most of the costs. I am delighted!
I will be making travel arrangements today. Fortunately, I travel a lot in m line of work, so I may even be able to swing a couple of free nights at the recommended hotels.
I am so excited!
Three veins angioplastied. One renewed life.
cost
BooBear wrote:Got my procedural email from Albany today. It really seems real now!
My insurance will cover most of the costs. I am delighted!
I will be making travel arrangements today. Fortunately, I travel a lot in m line of work, so I may even be able to swing a couple of free nights at the recommended hotels.
I am so excited!
What is the cost for your procedure?
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happy_canuck
- Family Elder
- Posts: 270
- Joined: Sat Nov 28, 2009 3:00 pm
- Location: Victoria, BC Canada
- Contact:
Re: cost
I am going to Albany next week -- cost is $3000 venogram; $2000 balloon angioplasty; $2000 stent (if needed).dania wrote:What is the cost for your procedure?
Cheers,
Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
$
Is it per balooning and per stent? I mean 2000$ times number of ballooning? What about follow up?
