CCSVI treatment available in the U.S.!

[Trish317]

Trish 317 - You say his initial call was in May?? My son's call was the first week in June. Can you remember when Flash's first call was? I'm just wondering how this waiting list is moving along. Of course when you hear of someone getting done it makes you even more anxious to get your own appointment, doesn't it? Waiting is very difficult for us.

God Bless,
Guider

I think Flash's first call was May 12 but I'm not sure. My darling man made his first call on May 18 but he didn't hear anything so he called again on May 24. He got his first call back on May 26. He gave them all the basic information but he has not received a call back from one of the doctors yet.

He got the email that everyone else got a week or so ago. Waiting is very difficult but I think he's more patient than I am, and he's the one suffering with this horrible disease. I'm blessed to be in love with an amazing man. He's my Superhero.

[Guider]

Trish

It's obvious you are in love with your darling man. I do so hope that things will soon come together for you both. It's funny isn't it how the family members of those suffering whatever are so much more intolerant than they themselves. I guess it's our overwhelming feelings of helplessness that takes over. We want to fix it - and fix it NOW.

Well according to your dates you should soon be getting a call in the near future. Good luck.

Guider

[Drury]

FlashHack,

Thank you for the update and wish you all the very best.

Time to rest now.

Drury

[prairiegirl]

Great to hear that you have been treated, FlashHack. All the best to you in health and healing; will look forward to your updates.

[Cece]

Congrats FlashHack!! And thank you for bringing back information. 100 patients a month? And that is divided between three doctors, so 33 per doctor per month; about 8 per doctor per week; so 1 or 2 a day on top of regular duties? If my math is right, that doesn't seem as impossible as it sounded at first.

[Trish317]

Trish

It's obvious you are in love with your darling man. I do so hope that things will soon come together for you both. It's funny isn't it how the family members of those suffering whatever are so much more intolerant than they themselves. I guess it's our overwhelming feelings of helplessness that takes over. We want to fix it - and fix it NOW.

Well according to your dates you should soon be getting a call in the near future. Good luck.

Guider

You used the perfect word, Guider....helplessness. I would turn over heaven and earth to help my darling man. I started researching MS and everything about it the day he got the diagnosis in June 2007. I found two things that seemed to be viable options.....LDN and CCSVI. I couldn't convince him to try LDN and the neurologist he was seeing was against it. But, when I found CCSVI, he believed it might be part of the answer. He's an engineer, and his scientific mind saw the logic in it.

So, now we wait. As I said, he's more patient than I am. He's pragmatic and I'm emotional. I guess it's true that opposites attract. lol!

I'm so thankful for all the support and information that I've found here at TIMS.

[BooBear]

Congratulations, Flash!!!

I may be the next to go on this thread- exactly one month from today!!!

[BadCopy]

Congratulations, Flash!!!

I may be the next to go on this thread- exactly one month from today!!!

Great to hear FLASH ! Sorry I have to laugh, I call you Flash for short. It reminds me of the dog from Smokey and the Bandit. And what is even funnier is that Flash in the name of any MSer. Most of us lost the FLASH part. But now that you are done I hope it describes you well.

And I will probably be right after you BOO

[Cece]

I am in there too, after Boo and before BadCopy.

[brave]

Hello MSers
Has anyone from those who received a long e-mail from Albany clinic last week, heard anything further from the clinic?
I'm worried maybe that e-mail was sent to keep us hopeful but no real hope.

Thanks,
brave

[BadCopy]

aaaaaaaaa

[newlywed4ever]

I am in there too, after Boo and before BadCopy.

Any my daughter and I have Aug 5 appts!!! All prayers & positive energy accepted

[Rieja]

It's been almost seven weeks since my first callback (June 2). I did receive the email so now it is just waiting time. 700-800 and 100 a month means at the most (at the current time) it will be 7-8 months... not too shabby for something most docs are not on board with in the US.

[Cece]

Any my daughter and I have Aug 5 appts!!! All prayers & positive energy accepted

This is the first thread where I've really noticed how often people are going to these appointments in twos: mother/daughter, nephew/aunt, etc. What a double impact this treatment will have on those families! Prayers & positive energy sent!!

[Rokkit]

And the newlywed4ever situation is very interesting, as I recall, she and her daughter have different forms of MS. Can't wait to hear what the doc finds. I hope they do the left entry thing.