Excited, numb, scared, you name it -- liberation today!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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HappyPoet
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Post by HappyPoet »

Oh Bluesky!!!

I am SO HAPPY for you and your children.
I'm crying tears of pure JOY.

I will keep praying for more improvements for you, and more will come with time, I just know it.

You were the one who gave me the courage to keep going forward when life got hard. You were the one who showed me how to be gracious under fire. You were the one who taught me more about compassion than any other. You are the one who time and again led me out from the darkness into the light. You are my inspiration. You are my angel with the halo of gorgeous, fiery hair.

With our liberations coming less than a week apart, I find myself humbled by life. From the help of prayers, dreams, wishes, hope, tears, and luck, we just might be able to turn our decade-long, two-forum virtual friendship into a real-life friendship with a real-life hug. Until then...

{{{{{{{{{{Bluesky}}}}}}}}}}
~Pam
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IHateMS
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Post by IHateMS »

very happy for you and your kids
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CRHInv
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Post by CRHInv »

Thank you so much for the wonderful account of your journey. I am so hopeful for you and your family! Please take it easy though. You have a lot of healing to do. Your children want you to have the very best outcome and I know they will pitch in. Mine always surprised me.
Take good care!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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hannakat
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Post by hannakat »

Doing the happy dance for you Bluesky! Thank you so much for your honest, thoughtful, detailed account. Knowing what to expect makes it much easier! Less fear of the unknown! THANK YOU and will be waiting to hear more good news!
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blossom
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Post by blossom »

so happy that you got through all that and are already seeing improvements. thank you for shareing your story. keep healing and improveing. the very best thoughts and prayers sent your way.
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dlb
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Post by dlb »

Wow, Bluesky!
Such a wonderful & detailed report. I think your 1st post procedure post was very important, so we all know the big picture. Your improvements are HUGE and I think it is just going to take some time for your legs to gain the strength and muscle tone that has been diminished over the past few years. Every happy ending makes it seem less daunting to go ahead with a procedure. It is not that I'm skeptical because from the first this has made sense to me. In fact when I went to my GP with my first MS symptoms, looking for answers for what was going on, I told him that it feels like I have poor circulation & asked what a blood clot in my leg would feel like - but I kept saying to him that it feels like I have poor circulation?? So, for me thais has just made sense, but I'm wary because I have a very mild case. Having said that, I'm anxious to have testing/treatment before that changes. Enough about me... this is YOUR thread. I'm just sooo excited by your post-procedure posts. I wish you continued improvements. Please rest & heal well!
Deb
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MS_HOPE
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Post by MS_HOPE »

Bluesky, what an incredible, difficult journey you've been on, one you've handled with such admirable grace. I'm so very happy to hear of your wonderful immediate improvements, and send you positive, healing thoughts for the coming days, weeks, months.... Please rest up and take good care of yourself.
CCSVI:  Making Sense of MS
Cece
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Post by Cece »

Bluesky, congrats on the improvements. What a world we live in that this is now possible. I am so happy for you and your kids.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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CCSVIhusband
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Post by CCSVIhusband »

So glad "our" doctor was able to help you Bluesky!!! ... we just heard from him again yesterday morning ... (must have been before your procedure based on the times you said).

Isn't he great? - and the rest of the staff? They were fantastic there ...

Rest up! I think, if I can give advice to everyone, it is rest up after the procedure. You feel like you want to test everything out ... but rest up!

My wife is going back tomorrow for a re-evaluation of the iliac vein for May-Thurner (and possibly a stent). The azygous and jugulars are being checked again as well, just in case.

Though again based on the symptoms being gone for over a month now, that the ones that came back were related to the iliac vein!


All the best Bluesky ... I'm sure the sky is blue "there" today! It certainly was when we were there!
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SandyK
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Post by SandyK »

Your progress is great to read. Best wishes to you and your family :)
Diagnosed 1994, Self EDSS is 6.5
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ozarkcanoer
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Post by ozarkcanoer »

Bluesky...

I'm so glad that you wrote such a wonderfully detailed report. You get an A+ !! I am going for Liberation in Baltimore on August 17 so your story is especially touching to me right now. I am so anxious and scared. So every story I read gives me more confidence. It is so good that we can share our CCSVI stories here.

ozarkcanoer
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BooBear
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Post by BooBear »

I am thrilled for you, Bluesky!!!!!!!

Thank you, thank you for the detailed report- I get done in a couple weeks myself, so it was very meaningful!

All the best to you for a speedy recovery!

Now rest so you can dance later! :)
Three veins angioplastied.  One renewed life.  
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ccsviadvocate
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Post by ccsviadvocate »

Thank you Bluesky for such a great description of what you went through. It really helps to know that goes on and what to expect. I don't have M.S but my husband does. We are on the waiting list for the procedure and cannot wait for it to happen. I think it will be like a second birthday for him.....
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Katie41
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Post by Katie41 »

Bluesky,

What a wonderfully detailed post. Thank you so much. I'm so happy for you that, although there were "bumps", so much was able to be done! Loved the story about your kids! They sound great!

Here's to continued improvements, large and small!

Katie
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bestadmom
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Post by bestadmom »

Bluesky,

Your story is one of the most touching I've read and you deserve only the best. Take it slow and easy. The blood thinners make us MSers feel weak. Over time you will gain strength, just be careful and let your body heal.

I can't wait for your next installment. It will get better from here on in.

Michelle
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