Inclined Bed Therapy

[AndrewKFletcher]

Would love to get a copy of that advert for my Youtube account


Very odd advert, considering that tilting your bed assists the body and prevents Gerd. ( Acid reflux)

Hmmmm I wonder if the drug companies feel threatened yet?

Inclined Bed Therapy costs per year £ Zero
Side effects = Temporary aches and pains while the body adjusts
Effectiveness = Read the Inclined Bed Therapy Threads to see how I.T. helps people to regain control and sensitivity from RR ms PP ms and Sp ms.


Alternatively..............We have the costs of only one drug, people with ms can be on a cocktail of drugs with unknown combined contraindications.

Here are some of those associated health and financial costs.



http://www.mssociety.org.uk/get_involve ... _faqs.html


How effective is Tysabri?
Tysabri is the most effective licensed drug for people with highly relapsing remitting MS. It has been shown to consistently reduce relapse rates by two thirds and to slow disability progression by 40%. Tysabri is considered to slow disability progression by 42% and reduce relapses by 67%.
What are the risks associated with taking Tysabri?
Progressive Multifocal Leukoencephalopathy (PML) is a rare brain disorder associated with the drug Tysabri. There are more than 31,000 people receiving Tysabri worldwide and so far, three people have developed PML.

Of the 30,000+ people taking Tysabri, around 10,000 have been on the treatment for more than 18 months. In all three cases, PML occurred after 15-18 months of treatment with Tysabri. Therefore it is estimated that the risk of developing PML while taking Tysabri is between 1 in 3,000 and 1 in 10,000 chance. Tysabri is also associated with a number of infections, headaches, dizziness, vomiting, nausea, liver damage and infusion reactions.

For more information visit the MS Society’s research pages on Tysabri.
How much does Tysabri cost?
Tysabri is administered by intravenous infusion; the recommended dose is 300mg every 28 days. Tysabri costs £1130 per 300mg vial so over a year the cost of the drug to the NHS is approximately £14,730 per patient.



A more comprehensive breakdown of side effects:
http://www.drugs.com/sfx/tysabri-side-effects.html

[JoyIsMyStrength]

Right, I was just trying to inject humor here without getting into anything that heavy as your point has been made again and again. I agree that certainly IBT would be something to try before resorting to something risky and expensive.

However your stats may be outdated. Look at this quote I found:

As of January 20, 2010, the total number of PML cases has risen to 31, of which 23 were patients who had been receiving the drug for more than two years.

Source: http://seekingalpha.com/article/184730- ... some-risks

This same article reports 4 deaths between 7/2008 and 10/2009. I don't know total number of deaths from when the drug first began trials to date.

Pam

[AndrewKFletcher]

Thanks for the update. The question remains, why risk the side effects and pay the exorbitant costs for drugs that fail to deliver real symptom relief?

More to the point, why not try 2 6 inch blocks of wood under the bed first?

The same goes for surgery. Why fork out all that money, time and effort and run the risk of causing serious harm before trying a more natural solution?

And should this simple method fail, which is unlikely given 2 previous pilot study results and now a third reflecting the first 2, coupled together with the published literature showing a flat bed to be anything but a safe place to sleep. Then a logical surgical approach could be considered.

[pmouse]

Hello Andrew

I am reading everithing on forum about IBT and CCSVI so I do feel that I have ro report my changes.
Also I read everithing I found on net, including your 25 pages research in pdf.
I was amazed and I know this therapy is the right one.

PPMS diagnosed MS from 2005, EDSS 3,5 (now probably some more), no medicine, just alternative healing...

I have been sleeping on IB from 2.1.2010 and noticed many changes:
First 3 days very hard to get asleep, then easier, very warn legs and hands. First changes after two weeks: energy 50 % beter, still stiff legs, vision the same, balance bad, warm legs, easier geting out of the bed,
very thirsty I was at first.

After 4 weeks (now) IBT begins to work.
Energy level: 70 % beter, walking much better, vivid dreams, no WC through night, sleepeng all night, much less pain in legs, better speep through night.

2 days ago I reconstructed my bed (180x190 cm) with wood that it is now inclined for 16 cm. Before I put some blankets anf pilovs under jogy. Now it is realy straight - 5 degrees raise.
So now both with my wife are sleping inclined.

Question:
What if a child (age 3) sleeps with us the whole night on IB? We noticed nothing special.

Regards

[homefront]

Hello Andrew

I haven't posted on this thread before. My wife was diagnosed ppms in 2007 after symptoms beginning in 2005 following miscarriage after 4 months. Her first symptom was nystagmus followed by an intention tremor to right arm/hand and in the last six months an intention tremor to the left hand/arm also.

We raised the bed by 4" in early Dec 09 for a month and didn't really notice any changes. At Xmas we raised it to 6" and headaches that my wife had been getting went away.

We now believe that the movement of her eyes has reduced slightly and she can focus on the lamp in the bedroom and it appears still for up to 30 seconds.

Small changes but in the right direction.

If there are any further changes we will report in.

Thanks for bringing this simple therapy to our attention.

Regards
Peter

[Asher]

Hi guys, last report was 2 weeks into 6” IBT: Swollen purple foot disappeared, no foot spasms at night, I dream again, improved stamina and sexual appetite. Now in 3rd week, dreaming increasing in intensity and vividness, energy further up and I sleep like a baby. If anyone says MS has nothing to do with blood drainage, don't believe them Asher N=1 -Amsterdam, Holland

[Luvsadonut]

I'm looking to start IBT soon does anybody know if it is
safe for a 15 month old baby girl to sleep using IBT?
One of these days she will leave mammy and daddys bed:)

[AndrewKFletcher]

Hi Pmouse

Many thanks for helping to spread the word about I.T.

Please feel free to use my information to help more people with ms.

Your child will like feeling warmer in bed and being more comfortable, and will enjoy better health, fighting off colds and flu more easily and resisting most of them, while others will inevitably be infected around him / her.

Thanks for your progress update, look forward to more reports in the future

Andrew

[AndrewKFletcher]

Hello Andrew

I haven't posted on this thread before. My wife was diagnosed ppms in 2007 after symptoms beginning in 2005 following miscarriage after 4 months. Her first symptom was nystagmus followed by an intention tremor to right arm/hand and in the last six months an intention tremor to the left hand/arm also.

We raised the bed by 4" in early Dec 09 for a month and didn't really notice any changes. At Xmas we raised it to 6" and headaches that my wife had been getting went away.

We now believe that the movement of her eyes has reduced slightly and she can focus on the lamp in the bedroom and it appears still for up to 30 seconds.

Small changes but in the right direction.

If there are any further changes we will report in.

Thanks for bringing this simple therapy to our attention.

Regards
Peter

Thanks Peter

These sight improvements we are reading about should generate some interest from doctors involved in this field.

Having the improvements you and your wife have noted must be phenominal and by no means a small improvement. Sight is perhaps the most precious of all our abilities.

Andrew

[happy_canuck]

Hi folks,

I haven't reported in for awhile, sorry about that!

We have been on an incline since Nov 30; increased to full 5 degrees Jan 2.

- BP upon waking 108/74; pulse 65. Those who followed my earlier posts know my BP peaked at 233/110 January 8th, so these lower numbers are very good news. I backed off the BP pill that I was given Jan 11 to bring the pressure down quickly and am now taking the same dose I was on prior to the rise Dec 28. My GP says to monitor daily as we wait for my specialist appt. in March.

- spasms in legs in afternoons/evenings have almost totally stopped

- feet still go purple, but maybe not as bad (subjective though)

- numbness on right hand not quite as bad

- no snoring at all from hubbie since Day 1 of IBT

So, after two full months, I can say we will definitely keep our bed inclined. The health benefits aside, it's just more comfortable!

~ Sandra

[AndrewKFletcher]

Hi Sandra

Glad to hear your blood pressure is within the normal range again.

Great job of keeping check on your BP btw.


On the CCSVI Facebook, how do I contact the person who posts?

I ask because I want to add this poll to the wall so that we can stimulate more votes. Looking for 500 votes to form a complete posture picture of ms.

http://www.thisisms.com/ftopic-voteresu ... erasc.html

We have 58 voted so far, but I think we can agree it is looking very interesting already. 500 votes is not a lot to ask considering there are around 7 thousand people with ms or with a family member who has ms on the Facebook CCSVI group.

If we could reach them it would not take long to get 500 votes.

Andrew

[Cece]

Just to toss my experiences in here (all good): a month ago I started with an inch raised, two days ago bumped it up to three inches. On a flat bed, I am only able to sleep on my right side. When I am on my left side, I can only last a minute or so; it's hard to describe what hurts, but it's my head and feeling like I have to move to get relief. Well, on my inclined bed, I can sleep in any position.

No noticeable symptom relief at this point, but I haven't had it inclined for long. I did have tingly feet when I first raised it the little bit, that only lasted a few days, and when I raised it again, I noticed some tingling in my right leg. Not sure what that is.

I will definitely be keeping my bed inclined. I really didn't expect much from it but am thrilled to be sleeping more comfortably.

[AndrewKFletcher]

Move your bed up to 6 inches when you feel confident enough. This is the angle that produces significant reversal of ms.

Thanks for your letting us know you have begun to experiment with the angle.

Sleeping flat is an unscientific habit

Andrew

[William57]

Hi Andrew,

I notice that you every time mention an inclination of 6 inches for obtaining a 5 degree elevation. Probably this gives to certain parts in world a wrong idea.

Here in the Neterlands and probably also in Scandinavian countries the standard bed length is 200 cm. So, for obtaining a elevation of 5 degrees you should elevate the bed with +/- 17,5 cm (7 inches).

I guess that also in America a lot of people have beds of 200 cm (6 ft 6) in stead of 180 cm (6 ft). I do not know what the standard length of bed is in the UK, but I guess you know better than I do (I gues 180 cm).

Furthermore, I am deeply impressed by you by your ongoing message of the IBT for over many years. Finally, it sinks in the regular medic world by Dr. Zamboni's research. For me, you did the pre emptive research on narrowed veins.

I now sleep for several weeks on a 4 degree inclined bed (my wife is a bit reluctant to incline it more, I'll try it within a month or so). Since a week my nightly toilets visits are narrowed down to 1 or 2 times; that was +/- 4, 5 times a night.
It could be coincidence, but I am happy with the 'coincidence' with the inclined bed, so I keep my coincidence inclined

Good weekend to you all (did you all have read the newsletter from 'Buffalo'? It great news!)
http://www.bnac.net/wp-content/uploads/ ... 4-2010.pdf

William

[Astrid1961]

Hello Andrew, I am not very good in english writing, sorry.

I have a question, maybe it has been asked before, but i can't find it.
I have my bed since januari 10, 2010 inclined.
I wonder if it matters how i sleep? I sleep always on my belly. And what about the use of a pillow.

I have ppms, since 4 years, and in my family are many vein problems.

Astrid