CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Villagemaid
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Post by Villagemaid »

Just booked flights...AND insurance....lol...
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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isadora
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Question for Trooper

Post by isadora »

How long after you have received a response from Dr. Grozdinsky? My son sent it by mail on March 4, not yet responded. Thank you. Sorry, my English is wrong, I speak French.
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devine
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Re: Question for Trooper

Post by devine »

isadora wrote:How long after you have received a response from Dr. Grozdinsky? My son sent it by mail on March 4, not yet responded. Thank you. Sorry, my English is wrong, I speak French.
I would write back as I believe you should have recieved an answer by now.... good luck
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AnnaP
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Post by AnnaP »

thanks for your help Burg and yes, see you in Sofia.

Good luck Devine
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AnnaP
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Post by AnnaP »

Hi Isadora,

Try this email too just in case: grozdinski@dir.bg

Good Luck
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Vhoenecke
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Post by Vhoenecke »

isadora,

remind him that you sent email March 4 he will move your date up.
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devine
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Post by devine »

As I promised... just came out of testing and guess what... My junglars are blocked one that is critical and the other one close to it.. I might have something else blocked but that we`ll know during operation... In my hospital room and waiting I guess for my blood test to come back so I can get operated on.. EVERYBODY REST ASSURE... IT`S ALL GOOD. I had somebody filming me today and I met this guy who`s wife had the operation done in Poland and came here because it blocked up once again. He told me that in bulgaria it seems to be a little different then in Poland and the results seem to be better... So who ever is worried no need to be.. I will probably write back once I get a chance to after operation..

Good luck to you all and thanks a million for all the wishes...

xoxox
Donna
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isadora
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Post by isadora »

Late response time caused by the difference, I'm from Europe. Thank you to all who have responded me. I read on this forum that the price of intervention is 5000 euro. I have an old friend from university, of Bulgarian origin, whose brother lives in Sofia, he s had directly inform al Tokuda hospital and told me that he s acts between 6000 and 10000 euros. What is the price accurate?
Again, thank you to all and also good luck to all ...[/b]
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devine
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Post by devine »

isadora wrote:Late response time caused by the difference, I'm from Europe. Thank you to all who have responded me. I read on this forum that the price of intervention is 5000 euro. I have an old friend from university, of Bulgarian origin, whose brother lives in Sofia, he s had directly inform al Tokuda hospital and told me that he s acts between 6000 and 10000 euros. What is the price accurate?
Again, thank you to all and also good luck to all ...[/b]
as of today the price they showed me was 49xx.00 so say round it off 5000 euros somebody`s here to take me get operated
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Koko
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Post by Koko »

Hi Devine & McDuffy and all those in or about to go to Bulgaria for treatment. Ill be following your progress closely. Im getting nervous now as I am at the end of June and the date is now 1st June. I guess I feel that I am talking about someone else right now as it feels too good to be true. I also dont want to work myself up into a frenzy in case they dont find anything so I dont want to take myself there know what I mean. Devine I think Westmount owe you a refund!!

All the best

Koko














:) :) :) :) :) :D :D :lol: :lol:
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Koko
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Post by Koko »

Villagemaid - Yeay you've booked your flights!!!!!!!!!!!!! :wink:
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Villagemaid
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Post by Villagemaid »

Thanks Koko....I got a decent deal flying from Vancouver, BC....so that helped alot! I also made my booking with Geya Tours for the hospital-hotel stay...yay!!!!!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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devine
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Post by devine »

hello to all!!!!!!! i`m out of the operating table and well one of the veins came back to normal and I guess the critical one only unblocked at 50% after 3 tries. dr. and I will be talking of stenting after reviewing the results tomorrow. Koko I felt every emotional feeling that could exist and some that I didn`t even knew existed, its normal... but rest assure your in good hands and you will not regret it.. >I will continue to update you of my final results and stenting... has anyone got the stenting done and what can you tell me about it... sorry since you have to ly on your back for 12 hours after operation... it is very hard to write with a computer up side down..
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Koko
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Post by Koko »

Well done Devine I hope you are feeling better already! Keep us all posted on your progress! I guess by all the reading that I have done from all you guys the advise you would give is that even though you may feel you could run a marathon right now that you should calm down and conserve your energy. If you dont you then pay for it later.

Trooper great about your date! Sorry I wasnt on the day you posted about it. Eagle eye Cola spotted your deliberate mistake in the email address! Well spotted Cola.

Devine - REST! Only kidding I can only imagine its like being on a steroid and starting to get that feeling of well being and full of energy minus the blinding headache I used to get on them! :P
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Koko
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Post by Koko »

Meant to say Villagemaid I also booked through Geya tours. It was all really easy and the fact they pick you up from the airport is great. For the last couple of days we are staying at the Greenville so I am not sure if they will also pick us up from there and transport us back to the airport for our return flight. I think the Greenville is nearby to the hospital too so perhaps they would.

Koko
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