DrSclafani answers some questions
Re: DrSclafani answers some questions
All the best to you Dr. S.
- WeWillBeatMS
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Re: DrSclafani answers some questions
Get well Dr. Sclafani.
WeWillBeatMS
WeWillBeatMS
Last edited by WeWillBeatMS on Fri Mar 23, 2012 11:26 am, edited 1 time in total.
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Re: DrSclafani answers some questions
Dr. Sclafani--
we're all thinking of you and concerned for your health.
Please check in when you can, and know that you've got a lot of people holding you in their thoughts tonight.
be well,
cheer
we're all thinking of you and concerned for your health.
Please check in when you can, and know that you've got a lot of people holding you in their thoughts tonight.
be well,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Re: DrSclafani answers some questions
Get well soon Dr Healer
Our thought is right there with you
Our thought is right there with you
getafix
Re: DrSclafani answers some questions
I can't think of what to say here that wouldn't violate his privacy, but I have heard from him, and I have heard from several of you worrying about him.
I heard from him yesterday, not today. Waiting is tough.
I heard from him yesterday, not today. Waiting is tough.
Last edited by Cece on Fri Mar 23, 2012 10:30 am, edited 1 time in total.
Re: DrSclafani answers some questions
Hoping the best for the good doctor. I wonder if he will make the SIR conference?
Re: DrSclafani answers some questions
His workshop is scheduled for Monday and again on Tuesday. And he's on the line-up for the CCSVI Alliance doctors' roundtable. Maybe they've heard something. He also has three really good abstracts to present. But the most important thing is taking care of himself.
It looks like I edited my post above but I only edited out the word 'only'! You posted too soon, tzootsi!
It looks like I edited my post above but I only edited out the word 'only'! You posted too soon, tzootsi!
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Re: DrSclafani answers some questions
If i told u once i told you ten times. Stay away from the gabagool sclafani. Hope ur ok...
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Re: DrSclafani answers some questions
Wish you all the best Dr. S; hope you feel better soon!
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Re: THISISDIEULAFOY.COM
well, we now have pathology in common. We both have vascular malformations.
Mine was an arterial malformation of the arteries of the gastrointestinal tract called a Dieulafloy lesion; and your are venous malformations of the cerebrospinal system.
Mine causes acute gastrointestinal hemorrhage and acute anemia. boy, do i miss the oxygen carrying capacity of the red blood cells i hemorrhaged.
I had lost quite a bit of blood by the time I was admitted.
A Dieulafoy lesion is a malformation of an artery of the stomach that does not branch or "arborize" and get smaller as it moves toward its final location. With time, the stomach's lining cells thin until the artery is directly exposed to the gastric digestive fluids and erodes. The high pressure arterial flow then pulses directly into the stomach cavity. This is a rare problem accounting for less than 2% of all causes of gastric bleeding.
I was really efficiently cared for. I was through the ER and into the intermediate care ICU within 90 minutes. After stabilization by fluids and blood transfusion, i was taken to the endoscopy suite where a Dieulafoy lesion was found in my stomach and treated within eight hours of admission by cautery of the bleeding vessel. Once found a Dieulafoy lesion has about 95% permanent cure. I wish MS were like that.
I was discharged the next day. I am ok, but really tired because of severe anemia. I have a lot of blood to make in my body to get back to normal. Unfortunately, my doctor advised not to travel because rebleeding while in the airplane could be fatal.I thought about following many of your lead and not follow my doctors' instructions but i feel really tired now and won't travel. So disappoiinting not to present all my lectures at SIR. It was to be a crowning moment of my career.
I want to thank you all for your wishes. it meant a lot to me.
any questions?
Mine was an arterial malformation of the arteries of the gastrointestinal tract called a Dieulafloy lesion; and your are venous malformations of the cerebrospinal system.
Mine causes acute gastrointestinal hemorrhage and acute anemia. boy, do i miss the oxygen carrying capacity of the red blood cells i hemorrhaged.
I had lost quite a bit of blood by the time I was admitted.
A Dieulafoy lesion is a malformation of an artery of the stomach that does not branch or "arborize" and get smaller as it moves toward its final location. With time, the stomach's lining cells thin until the artery is directly exposed to the gastric digestive fluids and erodes. The high pressure arterial flow then pulses directly into the stomach cavity. This is a rare problem accounting for less than 2% of all causes of gastric bleeding.
I was really efficiently cared for. I was through the ER and into the intermediate care ICU within 90 minutes. After stabilization by fluids and blood transfusion, i was taken to the endoscopy suite where a Dieulafoy lesion was found in my stomach and treated within eight hours of admission by cautery of the bleeding vessel. Once found a Dieulafoy lesion has about 95% permanent cure. I wish MS were like that.
I was discharged the next day. I am ok, but really tired because of severe anemia. I have a lot of blood to make in my body to get back to normal. Unfortunately, my doctor advised not to travel because rebleeding while in the airplane could be fatal.I thought about following many of your lead and not follow my doctors' instructions but i feel really tired now and won't travel. So disappoiinting not to present all my lectures at SIR. It was to be a crowning moment of my career.
I want to thank you all for your wishes. it meant a lot to me.
any questions?
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
Patient contact: ccsviliberation@gmail.com
Re: DrSclafani answers some questions
Very relieved to hear you are home and healing.
Stay away from the gabagool and the baby aspirin!
Stay away from the gabagool and the baby aspirin!
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Re: DrSclafani answers some questions
Dr. Sclafani, I'm so glad the problem was treatable and you're recovering. Take care of yourself and get lots of rest.
How did you like being the patient?
Dorothy
How did you like being the patient?
Dorothy
Re: DrSclafani answers some questions
Best Wishes, and get well!
Donnchadh
Donnchadh
Kitty says, "Take that, you stenosis!"
Got MS?.....Get Liberated!
Got MS?.....Get Liberated!
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Re: DrSclafani answers some questions
Was this something that suddenly ocurred and asymptomatic or were
You suffering over time? Will you have to
Cut down on gnocci?
You suffering over time? Will you have to
Cut down on gnocci?
Re: DrSclafani answers some questions
wishing you a speedy recovery with lots of rest.
God bless!!
God bless!!