LIVABIRD's Poland Adventure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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costumenastional
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Post by costumenastional »

Give me a few seconds haha
Great pics friend!!! Thank you.
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QueenMum
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Post by QueenMum »

Your news is absolutely fabulous! Thank you for posting. Congratulations to both of you & wishing you continued improvements. :D
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caraboo
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hi

Post by caraboo »

Hi costumenational,


It will soon be time for you to go to Bulagaria?, best of luck when it comes.
I go 28th May, hospital 1st june.


Take care
caraboo
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sofia
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Post by sofia »

Such great news from you livabird :-)
It is great for you to feel better, and great for us to have increasingly higher hopes, the more positive results are reported.
Great stuff and enjoy good health :-)
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
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costumenastional
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Re: hi

Post by costumenastional »

caraboo wrote:Hi costumenational,


It will soon be time for you to go to Bulagaria?, best of luck when it comes.
I go 28th May, hospital 1st june.


Take care
caraboo
Wow!!! You spelled my nick correctly :)
I ll be there Monday, the 3rd of May. I ll let you know everything, hopefuly good stuff... My MS is not advanced but there is enough symptoms for me to distinguish if any improvement is placebo effect or not ;)

I hope we ll have some news from others by then. There are a few of us going earlier.

Good luck to all of us.
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Asher
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Post by Asher »

Good luck costumenational!! I'll hopefully be on my way to Poland in the coming moths.
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costumenastional
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Post by costumenastional »

Thank you Asher. Luck is indeed what we all need at this point...
And to keep our feet on the ground until we know better. Sadly, given the fact that results range from minus to plus infinite, each one of us must wait and see for himself and hopefuly share some good news with all others.

But this post was ment for another reason;)

One more time, i wish my best for this wonderful couple who made it.
I wish with all my heart for more improvements to come for them and if i may, i am proud to see married people to fight together and not give up on each other. Life lessons.
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livabird
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shopping day

Post by livabird »

Well spent a whole afternoon at the shopping centre, not once was there pain, Jayne stood up a few times and even took 2 steps. Not once did she need to go to the bathroom, she wore proper jeans for the first time in months and even took them off all by herself, seems trivial but is massive

Liva is now taking a well deserved break, gee i am now finding it hard to keep up with her
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ClaireParry
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Post by ClaireParry »

Those little things mean the world when you haven't been able to do them for a while.

Good on Liva!!

Claire
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alanbrowne
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Post by alanbrowne »

WOW !!!!
This is such a fantastic story, the very best of luck to both of you and hope the improvements just keep on coming :D
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AnnaP
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Post by AnnaP »

Hi Liva's hubby,

It's not trivial,it's massive!!

Claire is right, those little things mean so much.
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livabird
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Day 5 draws to an end

Post by livabird »

Well as Day 5 draws to an end, it has been a very good day.
I took Liva to the Sky Bar and we had a few cocktails each :roll:
We were there a good 2 hours and not once did she have to go toilet, considering before just having a sip of a drink made her go.

She is getting some pins and needles again, but she forgot to take her LDN yesterday so thinks that is what might be the problem.
She still has no pain which is amazing considering all we did today.
She is now going to sleep and we are planning to visit Aushwitz tomorrow.

Night all
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annad
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Post by annad »

Night, you two!
Don't over do it! I can't believe it has been 5 days already . . time flies!
take care!
a
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livabird
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Day 6

Post by livabird »

Well start of Day 6, day i have been dreading.... first needle in the tummy... but I did it and Jayne said i did a great job, did not hurt, what a relief, we are off to Auschwitz soon

Liva is still feeling pretty good although she is very tired, probably did a little too much yesterday.

Still feeling no pain and still very warm. She is very alert. The one thing i noticed while having lunch yesterday is how bright her eyes look.

Will post more later
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livabird
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Day 6

Post by livabird »

Day 6 and we made a very emotional trip to Auschwitz and Birkenau.
I am posting pictures but under a seperate album as they deserve their own space for memorial.
Auschwitz was very daunting and overall such an emotional experience.
To be there is person was so incredible. Going to Birkenau(Auschwitz II) was also an emotional experience as it was quite apparent from entering the gates why this camp was built.
That is all i will say on this, it is something very personal that each person needs to experience on their own.

Liva did very well, putting the emotions aside, she was in tears in one particular place but she is glad she made the journey.

Physically she is doing very well, when we got back to the hotel, she got out of the car all by her self and walked to the back of the car where i was getting the wheelchair out of the boot. Granted she held onto the car, but she felt her balance was good and the fact she walked over was incredible.
She continues to be very alert and bright. Joking around alot which i havent seen in ages.
A little pain but the time in Auschwitz and Birkenau was very very bumpy but she is feeling fine now.

We are hoping to go back to the Bavarian Beer hall for dinner with our new friends tonight and have a few litres of beer 8)

thats it for now

Everyone take care
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