drury, i am anxious to hear dr. flanagan's reply about your daughter's tmj issue. the reason being is that a few yrs. back when i was searching for answers i read about nucca "this is before i ever heard of ccsvi or dr. flanagan." i found a nucca dr. and went a few months. i had suffered with tmj a long time-even had the mouth piece made. although i did not improve mobility wise, in that time, it did fix my tmj and low back pain. for financial reasons etc. i quit going. this stayed fixed until last summer when riding in a truck we hit this bump i got jarred and my jaw started cracking "my tmj was back" not as severe but it's back. also my low back pain came back not as severe.
we're all so different. with dr. flanagan's guidance i learned that i needed to go another route first with chiro. then nucca as far as i know right now.
nothing seems to come easy. i hope your daughter gets relief soon. but,in my case, i know the nucca treatments fixed my tmj--and nothing else ever really helped.
CCSVI and CCVBP
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civickiller
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I had my appointment. He didn't think I needed a thermo scan, only xrays. But he said that my atlas changed so much that he was going to have completely change his adjustments. This time instead onme laying on my right side it was opposite on my left side with less adjustment. We'll see. How I feel tomorrow
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uprightdoc
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Hello Drury,
I don't think it would be wise to mix TMJ splinting with cranial work and upper cervical. They are to closely related. More importantly, I think, in light of the injury in which your daughter was struck by a cab while walking and thrown to the ground, I think it is far more important that she get her full spine checked, especially the low back and pelvis, including her legs.
Your daughter has been getting AO adjustments for awhile now and appears to have an unresolved head tilt. It may be permanent due to connective tissue damage or it could be due to a misalignment of the pelvis. Misalignments of the pelvis cause curvatures in the spine and head tilts. She also needs full spine examination for medicolegal documentation.
I don't think it would be wise to mix TMJ splinting with cranial work and upper cervical. They are to closely related. More importantly, I think, in light of the injury in which your daughter was struck by a cab while walking and thrown to the ground, I think it is far more important that she get her full spine checked, especially the low back and pelvis, including her legs.
Your daughter has been getting AO adjustments for awhile now and appears to have an unresolved head tilt. It may be permanent due to connective tissue damage or it could be due to a misalignment of the pelvis. Misalignments of the pelvis cause curvatures in the spine and head tilts. She also needs full spine examination for medicolegal documentation.
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WeWillBeatMS
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Hi Dr. Flanagan,
Well I just had my first upper cervical chiropractic adjustment today. By the way, it was the Blair method that was used, not knee chest which I thought. It dawned on me today that 20 years ago while playing softball that I collided hard on my right side with a teammate in the outfield and was wired shut for 6 weeks with a broken jaw. The interesting thing is 95% of my problems with MS have come from that right side which of course I always told doctors but no answers from any. Lost my hearing in my right ear 8 years ago for no known reason, leaving me only with tinitus and dizziness. My right side of my chest and right leg went numb first when I first started having MS symptoms. My right leg gets weak and numb when it decides to. My right ear gets bright red at times. My right tonsil stays much larger than the left one. And the right side of my head hurts too much to sleep on at night so I usually sleep on my left side as the back of my head and my neck hurt bad too. Really up until a few months ago, I hated just the idea of nighttime coming and trying to sleep with the most excrutiating pain that would originate at the back of my head and the right side and eventually overtake my entire body around midnight. It was a few months ago that my new neurologist gave me some Cymbalta to try for my severe pain especially at night. I hate taking drugs but I have to say it has helped the pain. Anyway, sorry for the novel, it seems to me my tinitus is somewhat less and the heavy pressure that is normally on my right ear has lessened too. Have you ever had patients that had sudden hearing loss get their hearing back after Upper Cervical adjustments? Doc, if I get my hearing back in my ear and this stupid dizziness leaves me alone, I might just hunt you down and give you a kiss. Ha! Ha! Just kidding, don't worry, I'm happily married with two little bambinos. Do you have a website or something where I can buy your book?
Well I just had my first upper cervical chiropractic adjustment today. By the way, it was the Blair method that was used, not knee chest which I thought. It dawned on me today that 20 years ago while playing softball that I collided hard on my right side with a teammate in the outfield and was wired shut for 6 weeks with a broken jaw. The interesting thing is 95% of my problems with MS have come from that right side which of course I always told doctors but no answers from any. Lost my hearing in my right ear 8 years ago for no known reason, leaving me only with tinitus and dizziness. My right side of my chest and right leg went numb first when I first started having MS symptoms. My right leg gets weak and numb when it decides to. My right ear gets bright red at times. My right tonsil stays much larger than the left one. And the right side of my head hurts too much to sleep on at night so I usually sleep on my left side as the back of my head and my neck hurt bad too. Really up until a few months ago, I hated just the idea of nighttime coming and trying to sleep with the most excrutiating pain that would originate at the back of my head and the right side and eventually overtake my entire body around midnight. It was a few months ago that my new neurologist gave me some Cymbalta to try for my severe pain especially at night. I hate taking drugs but I have to say it has helped the pain. Anyway, sorry for the novel, it seems to me my tinitus is somewhat less and the heavy pressure that is normally on my right ear has lessened too. Have you ever had patients that had sudden hearing loss get their hearing back after Upper Cervical adjustments? Doc, if I get my hearing back in my ear and this stupid dizziness leaves me alone, I might just hunt you down and give you a kiss. Ha! Ha! Just kidding, don't worry, I'm happily married with two little bambinos. Do you have a website or something where I can buy your book?
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
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civickiller
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uprightdoc
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Hello wewillbeatms,
As a matter of fact, or so the story goes, the first recorded chiropractic patient was Harvy Lillard, a deaf black man who worked as a janitor in the building where DD Palmer set up his office. Lillard had his hearing restored.
It would be terrific if you could post your x-rays. I can just imagine what they look like. Some doctors can digitize them but some TIMS patients have simply taken pictures of them in the viewbox which was first suggested by CurIous and the gypsy lady from my Montanna, Ruthless. If you don' feel comfortable posting them here you can PM them to me. In any case keep me posted.
Thanks for the kiss. I won't tell my wife.
As a matter of fact, or so the story goes, the first recorded chiropractic patient was Harvy Lillard, a deaf black man who worked as a janitor in the building where DD Palmer set up his office. Lillard had his hearing restored.
It would be terrific if you could post your x-rays. I can just imagine what they look like. Some doctors can digitize them but some TIMS patients have simply taken pictures of them in the viewbox which was first suggested by CurIous and the gypsy lady from my Montanna, Ruthless. If you don' feel comfortable posting them here you can PM them to me. In any case keep me posted.
Thanks for the kiss. I won't tell my wife.
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uprightdoc
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I would like to add that you should all feel free to tell your novel. That's why it is so important to take a thorough case history, including trauma. How can you overlook such an obvious case history. How could anyone could argue that running into an obstacle hard enough to break something as strong as the jaw couldn't have an impact on the spine and be a causative factor in MS is stunning. I hope to make a special page on my new website for others to tell their stories. The evidence is clear. It's time to connect the dots. One can only wonder if some of your cases could have been prevented with early intervention instead of remnants of what was once a normal spine decades later.
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WeWillBeatMS
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WeWillBeatMS
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Day one after my first Upper Cervical adjustment of my C-1 (Atlas):
-Less cognitive fog.
-Not as dizzy as normal.
-Tinitus in right ear is still there but very slightly less than before adjustment.
-Significantly less pressure on my right ear (the one that I'm deaf in).
-Slept pretty good last night.
-Only got up one time to urinate during the night. (Normally at least 2)
-Feels like I'm taking deeper, fuller breaths.
-Overall positive, optimistic outlook.
-I do have slightly more tingling and discomfort in my hands but then again I did start cutting back on my Cymbalta yesterday too.
I will do my best to update regularly on my progress.
FYI, I am a 40 yr old male and had sudden hearing loss in right ear in 2003. I was diagnosed w/ MS in 2005. Thank God I am still ambulatory and able to work full time and support my wife and two children. In 1991 I broke the right side of my jaw while playing softball. I played hockey as a kid and teenager in Michigan (1980-1990). Presently on Tysabri & Cymbalta 60mg daily (but as of yesterday cutting it down to 30mg to wean myself off very slowly as long as pain doesn't increase too much). I was tested w/ ultrasound & an MRA/MRV in early 2010 but did not show CCSVI so I have not had the Liberation procedure yet. I need to go get retested for CCSVI preferably with a venogram.
I am more confident than ever that...
WeWillBeatMS
-Less cognitive fog.
-Not as dizzy as normal.
-Tinitus in right ear is still there but very slightly less than before adjustment.
-Significantly less pressure on my right ear (the one that I'm deaf in).
-Slept pretty good last night.
-Only got up one time to urinate during the night. (Normally at least 2)
-Feels like I'm taking deeper, fuller breaths.
-Overall positive, optimistic outlook.
-I do have slightly more tingling and discomfort in my hands but then again I did start cutting back on my Cymbalta yesterday too.
I will do my best to update regularly on my progress.
FYI, I am a 40 yr old male and had sudden hearing loss in right ear in 2003. I was diagnosed w/ MS in 2005. Thank God I am still ambulatory and able to work full time and support my wife and two children. In 1991 I broke the right side of my jaw while playing softball. I played hockey as a kid and teenager in Michigan (1980-1990). Presently on Tysabri & Cymbalta 60mg daily (but as of yesterday cutting it down to 30mg to wean myself off very slowly as long as pain doesn't increase too much). I was tested w/ ultrasound & an MRA/MRV in early 2010 but did not show CCSVI so I have not had the Liberation procedure yet. I need to go get retested for CCSVI preferably with a venogram.
I am more confident than ever that...
WeWillBeatMS
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
Everyone and Hi Dr.
I have a question that is fascinating me at the moment. Due to current circumstances I have become less mobile etc and some new symptoms have appeared.
The one that interests me most is that I now stutter badly and have difficulty getting my mouth around words. Here the bit that makes me laugh, when I think I don't stutter and the biggie is that I understand myself.
Joking aside is there any thing that you think, could be something I can attend to. I have also noticed that I get a clicking nose in my right ear when I am typing on the computer and it is I have found through experiment associated with turning my head to the right. This reminds me of the symptoms I get that warn me that my Trigeminal Neuralgia is about to kick in.
As I am typing I am thinking head position and neck alignment and of course my back, I just sat up straight as I said that, as I am much weaker over all and posture has slumped. So I am guessing the muscular tension of stress and the physical weakness increase will all build to increase my symptoms and has maybe brought on the stutter and speech issues. It is the stutter that I would be interested in knowing where the point of effect is though.
Another bazaar side effect of the situation I'm in is that I have gone from needing to sleep 9 plus hours at night and 2 plus hours in the afternoon to overnight changing to 3 hours at night and 1 hour in the afternoon, sure I am weak as anything but I do not sleep, I just lie there. I have mediated for years and I have been getting help at the moment for the depression and general need for counselling, so I am naturally worried but not devastated so to say. So this sleep change overnight has me puzzled, could it simply be a fight or flee reaction?, I guess it is still early days and I am likely still in shock amongst other things. Any thoughts any one?
Take care,
Nigel
I have a question that is fascinating me at the moment. Due to current circumstances I have become less mobile etc and some new symptoms have appeared.
The one that interests me most is that I now stutter badly and have difficulty getting my mouth around words. Here the bit that makes me laugh, when I think I don't stutter and the biggie is that I understand myself.
Joking aside is there any thing that you think, could be something I can attend to. I have also noticed that I get a clicking nose in my right ear when I am typing on the computer and it is I have found through experiment associated with turning my head to the right. This reminds me of the symptoms I get that warn me that my Trigeminal Neuralgia is about to kick in.
As I am typing I am thinking head position and neck alignment and of course my back, I just sat up straight as I said that, as I am much weaker over all and posture has slumped. So I am guessing the muscular tension of stress and the physical weakness increase will all build to increase my symptoms and has maybe brought on the stutter and speech issues. It is the stutter that I would be interested in knowing where the point of effect is though.
Another bazaar side effect of the situation I'm in is that I have gone from needing to sleep 9 plus hours at night and 2 plus hours in the afternoon to overnight changing to 3 hours at night and 1 hour in the afternoon, sure I am weak as anything but I do not sleep, I just lie there. I have mediated for years and I have been getting help at the moment for the depression and general need for counselling, so I am naturally worried but not devastated so to say. So this sleep change overnight has me puzzled, could it simply be a fight or flee reaction?, I guess it is still early days and I am likely still in shock amongst other things. Any thoughts any one?
Take care,
Nigel
The following is a copy of a post I made on Cece's thread: the Eye Doc blog
Thanks again, Cece!
~~~~~~~~~~~~~
Cece, thank you for finding this terrific article, "Update on Ehlers-Danlos and CCSVI," written by Dr. Diana Driscoll, an eye doctor who has EDS and had angioplasty for her CCSVI.
Thanks again, Cece!
~~~~~~~~~~~~~
Cece, thank you for finding this terrific article, "Update on Ehlers-Danlos and CCSVI," written by Dr. Diana Driscoll, an eye doctor who has EDS and had angioplasty for her CCSVI.
Here's another fantastic article by her, titled "Dr. Diana Driscoll With an Exciting Ehlers-Danlos Update."Dr. Diana wrote:Meanwhile, I must thank Dr. Michael Flanagan for tirelessly helping me through all of this. He is absolutely brilliant in the areas of CSF flow and anatomy of the brain and cervical spine. I am one of those people who needs to understand everything, but he has hung in there with me through it all, even though I’m sure he’s had to repeat a number of things for me as I digest them and apply them both to myself and the many other EDS/M.S. patients I correspond with.
Edit: I forgot to include the link to the actual The Eye Doc Blog so members can read the entire articles!Dr. Diana wrote:May I please introduce you to Dr. Michael Flanagan? He is a brilliant doctor who has been studying and researching this condition (and how it relates to M.S., Parkinson’s, and Alzheimer’s) for about 25 years! The anatomy of the skull and upper cervical spine is complicated, but the CSF (cerebral spinal fluid) flow pattern is extremely difficult to understand. Dr. Flanagan understands it down to the tiniest detail. He was able to explain to me what I have been unable to put into words for years.
Last edited by HappyPoet on Sat Feb 26, 2011 5:55 am, edited 1 time in total.
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blossom
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ccsvi
NZer1, i am not one to take much medication. but the stress can really do a person in. i reluctantly went on zoloft when i was going through my personal battle from hell "which lasted in court near 8 yrs." i had good results. i often said zoloft saved my life the xhusbands life and his girlfriends life. the stress still did a number on me physically, but, it did keep my thoughts in a sane and clearer state. it also seemed to help the physical pain. i have not taken anything for over 5 yrs. now.
this is what helped me, but we are all different, so i would not tell anyone what to do. but, if you do try any antidepressent "be sure your sister is keeping track of your mood" because it can be tricky.
sometimes the big black hole we are thrown into--not by choice--is too hard to get out of without a helping hand. remember your cyber tims friends are here and are sending healing thoughts and prayers. things will get better.
this is what helped me, but we are all different, so i would not tell anyone what to do. but, if you do try any antidepressent "be sure your sister is keeping track of your mood" because it can be tricky.
sometimes the big black hole we are thrown into--not by choice--is too hard to get out of without a helping hand. remember your cyber tims friends are here and are sending healing thoughts and prayers. things will get better.
Thanks blossom your words hit the spot.
I understand the x relationship part as this is not my first marriage breakup. The first had me suicidal and I didn't cope with being split from my 3 and 5 year old children who I had been with 24/7 due to working at home. I do now appreciate the coping lessons I learned from so many people at that time. Its not easy the second , nor is it easy not to understand at all why this time failed. I have learned to laugh for sanitys sake. And I see the leaving of my wife as "when you gotta go you gotta go", to stop the tears.
The support from my TiMS support team has saved me in ways I cannot express. Thank you.
Back to the topic in hand I have not had much luck with drugs doing what they are supposed to so far other than Gabapentin managing TN pain. My GP is on holiday at present and I am booked for the morning he returns for his input. I will write down the zoloft and ask him. Thanks blossom. (Sister is watching me like a hawk)
Enjoy,
Nigel
I understand the x relationship part as this is not my first marriage breakup. The first had me suicidal and I didn't cope with being split from my 3 and 5 year old children who I had been with 24/7 due to working at home. I do now appreciate the coping lessons I learned from so many people at that time. Its not easy the second , nor is it easy not to understand at all why this time failed. I have learned to laugh for sanitys sake. And I see the leaving of my wife as "when you gotta go you gotta go", to stop the tears.
The support from my TiMS support team has saved me in ways I cannot express. Thank you.
Back to the topic in hand I have not had much luck with drugs doing what they are supposed to so far other than Gabapentin managing TN pain. My GP is on holiday at present and I am booked for the morning he returns for his input. I will write down the zoloft and ask him. Thanks blossom. (Sister is watching me like a hawk)
Enjoy,
Nigel
Dr. Flanagan,
Thank you very much for your reply.
Regarding my daughter's splinting (I trust that means the mouth piece that she wears during day and the one she wears at night?) did you mean she should stick with having upper cervical work only while she is being treated for TMJ? I would hate for her to be doing something that could end up causing her more harm. Her TMJ doctor knew she was getting AO adjustments when necessary.
I hear what you are saying about getting the full spine checked and hope we can get an appointment next week prior to her having CCSVI which is the following week- insurance permitting. I did put a call in and am waiting to hear.
By the way is a head tilt obvious? The only thing I have noticed is that she sometimes turns her head cautiously.
Dr. F it is so very kind of you to be here for us all and I truly hope you know how much we appreciate it.
Drury
Blossom
I am sorry you have TMJ again and the low back pain. So do you think the two are connected? It seems extraordinary if they are - any thoughts Dr. Flanagan? What is nucca? forgive me if you have said in the past as I am a bit out of touch. Will you get the nucca treatments again?- I hope so as they obviously worked before.
NzerI
I think it makes sense that you would have a problem sleeping given what you are going through. It is easy to be logical and try to laugh away the sadness but is there any harm in actually feeling the loss and letting the tears flow once in a while? Might relieve the tension and let you sleep. I am happy you have your sister close by and I am sure you will get your sleep pattern back. In the meantime try to be good to yourself and I hope things will get brighter for you soon.
Drury
Thank you very much for your reply.
Regarding my daughter's splinting (I trust that means the mouth piece that she wears during day and the one she wears at night?) did you mean she should stick with having upper cervical work only while she is being treated for TMJ? I would hate for her to be doing something that could end up causing her more harm. Her TMJ doctor knew she was getting AO adjustments when necessary.
I hear what you are saying about getting the full spine checked and hope we can get an appointment next week prior to her having CCSVI which is the following week- insurance permitting. I did put a call in and am waiting to hear.
By the way is a head tilt obvious? The only thing I have noticed is that she sometimes turns her head cautiously.
Dr. F it is so very kind of you to be here for us all and I truly hope you know how much we appreciate it.
Drury
Blossom
I am sorry you have TMJ again and the low back pain. So do you think the two are connected? It seems extraordinary if they are - any thoughts Dr. Flanagan? What is nucca? forgive me if you have said in the past as I am a bit out of touch. Will you get the nucca treatments again?- I hope so as they obviously worked before.
NzerI
I think it makes sense that you would have a problem sleeping given what you are going through. It is easy to be logical and try to laugh away the sadness but is there any harm in actually feeling the loss and letting the tears flow once in a while? Might relieve the tension and let you sleep. I am happy you have your sister close by and I am sure you will get your sleep pattern back. In the meantime try to be good to yourself and I hope things will get brighter for you soon.
Drury