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What part of Canada are you from? We are excited to hear your updates. Hope everything goes well. We hear alot about the events but would like to hear the results as well!
To ales,
Your turn is around the corner! Hope you get the results your looking for too! Ours comes in sept for my husband!
ales wrote:Thanks for the update Anya. My wife and I will be flying into Sofia from Toronto on Monday so hopefully your husband is seeing some pretty amazing results. Thanks for the info.
Ales...safe journey. Hopefully we"ll see you before you leave as my wife and I leave Canada Saturday (24th) for the Monday procedure. When do depart Sofia for home?
We leave the 26th to fly home. By then I hope to be in a better place. Hope to see you all there and just wish all MSers could be there for the Liberation. We will be making before and after videos and posting them.
Does anyone know if you can get general anaethestic in Bulgeria I am still soooooooooooo squeamish. I even asked my hubby to punch me in head to knock me out.
Sorry never got back to you the other day. My hubby caught the comp screen on the recliner when putting it away and smashed it! Oops perhaps he had one too many venos! Never mind he ordered a new one and has put it together as good as new.
Anyway you asked how I'm doing now. Well we are nearly 3 weeks on and everything still good. I'm walking better, One of the pains in my back is away which is amazing. I still have a pain in my right buttock but that is more pelvis related to the awkward walking. The pain in my back though that disappeared I'm not sure if it was muscele related or not but its def away.So it means I can def stand for longer and have no knawing dull constant pain up the middle of my back you know the type that tires you out. If that was all I got I would still be happy to pay the money as nothing got rid of it. My hands and feet feel better prob due to better circulatioin. I can bend the small toes on my left foot better and I think thats whats helping me feel steadier and better walking. My feet are mostly warm but do cool down sometimes but still happy things are getting better. The lump I had in my throat is away now. I do have more energy though a bit tired the past few mornings but think that was more late to bed and early to rise. Today I done 20 mins on the motomed and wasn't tired. That could be due to Boston's More than a feeling blasting through my ipod on repeat. But I was happy!! My hands still feel brilliant like I am on a steroid and my ears when I wake in the morning are not sore anymore though they were once but thats not bad in 3 weeks. I think that's it for now but not too bad for starters. I would like my walking to get even better but its early days and baby steps for me.
The shopping mall was nice and new but the prices werent very cheap. It was nice just to get out for a while and get a change of scenery. My hubby downloaded some sort of tour for Sofia but we passed on it and went to the mall instead. Like you we just chilled out before going home to my gorgeous daughter to get ran ragged! Good luck and I will keep reading to check you are okay after your op (and before since you are a squeamy baby)!
My husband had his procedure done today. In the morning, we went downstairs at 9.00am. Had to fill out some paperwork, blood work and other routine tests were performed. Then, dopler ultrasound was performed by Dr. Grozdinski. Ultrasound showed narrowing in both jugular veins. The azygos vein was not checked by dopler ultrasound. Left vein more narrowed then right one. After that we were taken to the sixth floor, cardio department. My husband was assigned a room and we were told to wait for the procedure. A nurse inserter IV into left arm, shaved inguinal area (this is the area where they access the vascular system). Later neurologist came in to check reflexes and ask additional questions about MS history. (FYI - bring as much medical documentation as possible, unfortinately, we only brought MRI scans and results of most recent MRI) At 3.oopm, my husband was taken to the OP room. The venography showed stenosis in both jugular veins and no stenosis in azygos vein. Dr. balooned both sides a couple of times and said that stenting was not necessary. My husband said that it wasn't as painfull as he expected it to be. The most uncomfortable was the initial puncture in the inguinal area. He didn't even notice when the Dr. Petrov inserted the 'wire" and only experienced preassure (no pain) when veins were balooned. The procedure was only about 45 minutes. They brought him back 1.5 hour later. At this point they administered fluids through IV. He was not allowed to stand up for four hours. Later, he had his dinner (which was suprisingly good, much better then what they sell in cafeteria on the 9th floor).
It is a little early to say anything about improvement. However, while left jugular vein was being balooned my husband noticed that the numbess in his left hand almost dissapeared completely (which he had for 6 years). It only lasted a little bit, however we are optimistic and believe that more improvement is yet to come.
