AmbiCat wrote: ↑
Fri Apr 26, 2019 3:28 pm
My neurologist wanted me to look more into what CIS is, after ruling out everything that could've caused my numerous symptoms and increasing disability over the past week (first time this has ever happened). My C-Spine MRI yesterday showed a signal change in my spinal cord, so today he started me on a high dose of steroids to try to break the symptoms.
I've read that the probability of progressing past CIS and into MS is 60-80% if the MRI showed damage. For those of you who started out with CIS and were later diagnosed with MS, how long was it until your second set of symptoms started? And did your doctor start you on MS meds from when they first diagnosed you with CIS, or did they wait until your second episode?
I'm really lost at the moment. It's been a rollercoaster of emotions this week, since all of it started 7 days ago. Is there anything that I should definitely know, or any questions I should ask when I see my doctor again next week? He's going to have an MRI of my brain done next, and probably a lumbar puncture at some point too.
At this point I'm stuck between half relieved that I finally have a possible answer on why I haven't had control of parts of my body for the past week, and dreading my life to come if I really do have MS at 29 years old. Any advice on things to ask for or to read up on would be appreciated.
On reading your post I note that the MRI revealed "a signal change in my spinal cord". I suggest having the area in question massaged with the aim of releasing the muscle spasms which I believe are at the origin of this « attack ».
Perhaps you and your Neurologist can consider the following information.
Scientific knowledge often evolves through fortuitous «accidents. » The accident in this case is that 1) I relieved an MS attack inadvertently through a Shiatsu massage, 2) my neurologist recognized an unusual medical incident had occurred which was confirmed by 3) a world renowned Neurologist before a class of MDs and 4) I kept a journal concerning this event 5) which I compared to my medical file all of which 6) I brought together while writing my MS healing blog.
Why ignore this incident ? What harm could a massage do you ? Why not ask your Neurologist to oversee the « treatment ». Maybe you can avoid more steroids ?
Below is a truncated version of a May 5, 2013 blog post on https://www.mscureenigmas.net
« Dr. Christopher Pallis and Shiatsu Massage
My first known MS attack paralysed my right arm. My San Francisco HMO Neurologist said that mine was
an unusual case and asked if I would come to be examined by a renowned British
Neurologist who would be giving a Master Class at the Hospital.
After examining me Dr. Christopher Pallis drew on the board a
tube like structure, making a partial “bite” in it, explaining that this
was an unusual case since the lesions didn’t go all the way through as
evidenced by the fact that the right leg was not affected like the right
Dr. Pallis had drawn a spinal cord on the board. This was 1980 before the use of the MRI. He didn’t have an explanation for this anomaly. Today, I do.
How is it that the “attack”didn’t “eat through”the entire spinal cord
which would have left me unable to walk?
My answer. The Shiatsu massage of 38
days previous. My notes show that when I went to the Emergency
room on May 2 my upper spine burned fiercely. After the massage on May 9 I felt
a total relief. The massage must have stopped the blood back jets onto the spinal cord. By May 14 I was feeling much better.
I inadvertently saved my legs by
getting a Shiatsu massage. Yes, the MS attack struck the spine on which the massage could be particularly effective. My Neurologist was puzzled, he was getting ready to launch me into steroid
treatment, but then the whole process stopped. No one asked if I had done
anything to arrive at this. Too bad Dr. Pallis didn’t think to ask.
I now believe at the first onset of MS symptoms one should get a massage.Why not? I
can’t see any possible harm, and the benefits may be beyond anyone’s expectations."
Truncated version of the May 5, 2013 blog post.
Wishing you the best in your current struggle,