This Is MS Multiple Sclerosis Knowledge & Support Community

I know this really has nothing to do with CCSVI but the interesting question is that the cost of Liberation surgery is a lot less money than 150K for robotic legs when we can't walk anymore. Please note that the person who developed these legs has MS. http://www.ctv.ca/CTVNews/TopStories/20100715/ro...

I have SPMS and just had my 19th infusion of Tysabri on Monday (started December 2008). I haven't had any relapses since starting treatment. I feel that Tysabri is holding my progression...my husband says I have "tai-chi" MS going downhill very slowly :) No real side effects except a very dry mouth ...

Join this Facebook Group for all the current information about CCSVI in BC and around the world.

I'm hopeful for a very Happy New Year with this MS breakthrough. Thanks to everyone who has made a donation.

I just checked and the website has been updated. You can now donate to CCSVI research online.

Have someone on your list who is hard to buy for? You can make a donation "In Tribute" for that person. You still get the tax receipt (if donation is over $25) and they are sent a card which you can personalize. It's a win-win situation. https://www.worldclasshealthcare.ca/howtogive Please read inst...

re:UBC's Research donation link above: At this time if you donate online you can not designate CCSVI Research because it is not set up as an option. They are hoping to have it up and running soon. You can, however, phone them after you make the donation and they will designate for CCSVI research :) ...

The UBC group needs to raise $500,000 to start their research. Here is the link to make a donation. Make sure you designate CCSVI research so the money goes to that project. https://www.worldclasshealthcare.ca/homepriorities/2009/12/15/29_0912151049-320 You will receive an electronic tax receipt imm...

WOW!!!! This information is AMAZING for me ... I live so close & I will call on Monday & see what I find out! Thank you so much for passing on this info & your time! I will post any info I find out when I call ... I am looking forward to getting these scans done ASAP!!! Thank you again! There is al...

This was under the Q and A section of the CTV W5 website: "Dr. Michael Dake, chief of Cardiovascular and Interventional Radiology at Stanford University School of Medicine (California), is the first doctor to treat CCSVI outside of Italy. He typically charges patients US$80,000. Instead of balloons,...

This story ran on the CBC (Canadian Broadcasting Corporation) National newscast tonight.

http://www.cbc.ca/video/#/News/TV_Shows ... 1344104506

Veronica:

Could you post FCSC info on this thread:

http://www.thisisms.com/ftopict-8901.html

I put your information on this facebook fan page:

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Thanks for making the phone call for us BCers.

Erin

As I've donated to the MS Society of Canada in the past I got a general update email from them this afternoon. Take a look at the PS! I added the website link but it was embedded in the actual email. Thanks to support from coast-to-coast, we were able to reach 97 percent of Members of Parliament in ...

Ozark,

Perhaps the definitions were "lost in translation" from Italian to English.

At least US neuros are talking about it.

Time for me to leave the boards and go make dinner :)

Erin

ozarkcanoer wrote:Chilicotin... you owe me a coke, LOLOLOL

That sure was funny, we posted the same link at the same time.

Do you want me to remove mine because you were three minutes faster?

Erin