Search found 34 matches

by Chilcotin
Fri Jul 16, 2010 12:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bionic Legs allow paralyzed man to walk again
Replies: 2
Views: 1525

Bionic Legs allow paralyzed man to walk again

I know this really has nothing to do with CCSVI but the interesting question is that the cost of Liberation surgery is a lot less money than 150K for robotic legs when we can't walk anymore. Please note that the person who developed these legs has MS. http://www.ctv.ca/CTVNews/TopStories/20100715/ro...
by Chilcotin
Thu May 20, 2010 11:50 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Anyone on Tysabri and diagnosed with a progressive MS?
Replies: 4
Views: 2469

I have SPMS and just had my 19th infusion of Tysabri on Monday (started December 2008). I haven't had any relapses since starting treatment. I feel that Tysabri is holding my progression...my husband says I have "tai-chi" MS going downhill very slowly :) No real side effects except a very dry mouth ...
by Chilcotin
Thu May 20, 2010 11:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please read if you are from Vancouver, BC
Replies: 6
Views: 2031

Join this Facebook Group for all the current information about CCSVI in BC and around the world.

by Chilcotin
Fri Jan 01, 2010 1:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS - Support UBC Research with a donation
Replies: 15
Views: 4127

I'm hopeful for a very Happy New Year with this MS breakthrough. Thanks to everyone who has made a donation.
by Chilcotin
Tue Dec 22, 2009 9:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS - Support UBC Research with a donation
Replies: 15
Views: 4127

CCSVI Designation

I just checked and the website has been updated. You can now donate to CCSVI research online.
by Chilcotin
Fri Dec 18, 2009 4:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS - Support UBC Research with a donation
Replies: 15
Views: 4127

Christmas Gift Giving Idea

Have someone on your list who is hard to buy for? You can make a donation "In Tribute" for that person. You still get the tax receipt (if donation is over $25) and they are sent a card which you can personalize. It's a win-win situation. https://www.worldclasshealthcare.ca/howtogive Please read inst...
by Chilcotin
Fri Dec 18, 2009 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS - Support UBC Research with a donation
Replies: 15
Views: 4127

Update on how to donate

re:UBC's Research donation link above: At this time if you donate online you can not designate CCSVI Research because it is not set up as an option. They are hoping to have it up and running soon. You can, however, phone them after you make the donation and they will designate for CCSVI research :) ...
by Chilcotin
Tue Dec 15, 2009 11:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS - Support UBC Research with a donation
Replies: 15
Views: 4127

CANADIANS - Support UBC Research with a donation

The UBC group needs to raise $500,000 to start their research. Here is the link to make a donation. Make sure you designate CCSVI research so the money goes to that project. https://www.worldclasshealthcare.ca/homepriorities/2009/12/15/29_0912151049-320 You will receive an electronic tax receipt imm...
by Chilcotin
Sun Dec 13, 2009 8:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV & Doppler Ultrasound in Canada?
Replies: 63
Views: 15210

WOW!!!! This information is AMAZING for me ... I live so close & I will call on Monday & see what I find out! Thank you so much for passing on this info & your time! I will post any info I find out when I call ... I am looking forward to getting these scans done ASAP!!! Thank you again! There is al...
by Chilcotin
Sat Nov 28, 2009 10:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hope for MS? CBC National News Story 27 November 2009
Replies: 6
Views: 2057

Cost of CCSVI

This was under the Q and A section of the CTV W5 website: "Dr. Michael Dake, chief of Cardiovascular and Interventional Radiology at Stanford University School of Medicine (California), is the first doctor to treat CCSVI outside of Italy. He typically charges patients US$80,000. Instead of balloons,...
by Chilcotin
Fri Nov 27, 2009 11:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hope for MS? CBC National News Story 27 November 2009
Replies: 6
Views: 2057

Hope for MS? CBC National News Story 27 November 2009

This story ran on the CBC (Canadian Broadcasting Corporation) National newscast tonight.

http://www.cbc.ca/video/#/News/TV_Shows ... 1344104506
by Chilcotin
Thu Nov 26, 2009 10:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FCSC in Vancouver doing the MR imaging
Replies: 47
Views: 11093

Another thread for BC

Veronica:

Could you post FCSC info on this thread:

http://www.thisisms.com/ftopict-8901.html

I put your information on this facebook fan page:

<shortened url>

Thanks for making the phone call for us BCers.

Erin
by Chilcotin
Thu Nov 26, 2009 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Email from Yves Savoie MS Society of Canada president
Replies: 0
Views: 1805

Email from Yves Savoie MS Society of Canada president

As I've donated to the MS Society of Canada in the past I got a general update email from them this afternoon. Take a look at the PS! I added the website link but it was embedded in the actual email. Thanks to support from coast-to-coast, we were able to reach 97 percent of Members of Parliament in ...
by Chilcotin
Wed Nov 25, 2009 4:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: US Neurologist, Dr. Daniel Kantor's blog about CCSVI
Replies: 13
Views: 3669

Time to go make dinner

Ozark,

Perhaps the definitions were "lost in translation" from Italian to English.

At least US neuros are talking about it.

Time for me to leave the boards and go make dinner :)

Erin
by Chilcotin
Wed Nov 25, 2009 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: US Neurologist, Dr. Daniel Kantor's blog about CCSVI
Replies: 13
Views: 3669

Reply to Ozark

ozarkcanoer wrote:Chilicotin... you owe me a coke, LOLOLOL
That sure was funny, we posted the same link at the same time.

Do you want me to remove mine because you were three minutes faster?

Erin

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