Search found 119 matches

by DenverCO
Wed Dec 10, 2014 9:32 am
Forum: Introductions
Topic: Violent Stretching Upon Awakening
Replies: 6
Views: 6477

Re: Violent Stretching Upon Awakening

What both of you are describing is spasticity.
by DenverCO
Wed Dec 10, 2014 8:52 am
Forum: Medical Marijuana
Topic: Cannabis
Replies: 13
Views: 9359

Re: Cannabis

I am having incredibly noticible spasticity relief from the transdermal patches by Mary's Medicinals. There are no psychotropic effects and no grogginess. I used to enjoy getting high when I was younger but since being diagnosed 16 yrs ago, every time I've smoked or ingested marijuana it has made my...
by DenverCO
Sat Mar 23, 2013 6:41 pm
Forum: General Discussion
Topic: What can i do to improve my vision - Nystagmus
Replies: 11
Views: 3602

Re: What can i do to improve my vision - Nystagmus

Get a prescription for Namenda. It is a drug for memory but it has proven to completely resolve pendular nystagmus caused by MS. Do your own research because your doctor may not know about it.
by DenverCO
Mon May 07, 2012 11:27 am
Forum: Drug Pipeline
Topic: Myelin Repair - rHlgM22
Replies: 4
Views: 4807

Re: Myelin Repair - rHlgM22

I'll volunteer for 'Phase 1 anything' that is being developed for repair. Skip the mouse.
by DenverCO
Thu May 03, 2012 12:16 pm
Forum: Drug Pipeline
Topic: Myelin Repair - rHlgM22
Replies: 4
Views: 4807

Myelin Repair - rHlgM22

Can anyone provide an update on the status of an monoclonal antibody rHlgM22 for myelin repair?
by DenverCO
Wed Jun 15, 2011 1:19 pm
Forum: General Discussion
Topic: Spasticity...Suggestions for tweaking drug regimen?
Replies: 3
Views: 1337

Magnesium Blood Test

Thanks for the info. What type of blood panel should I request?
by DenverCO
Wed Jun 15, 2011 10:45 am
Forum: General Discussion
Topic: Spasticity...Suggestions for tweaking drug regimen?
Replies: 3
Views: 1337

Spasticity...Suggestions for tweaking drug regimen?

Spasticity is my most debilitating symptom. My legs are stiff and heavy and my gait looks like Frankenstein piked forward at the waist. I do a leg weight routine 3-4 times a week to keep my muscles strong and filled out but the spasticity acts like a ball and chain on each leg. I take 40 mg of baclo...
by DenverCO
Thu Mar 03, 2011 9:40 pm
Forum: Ampyra
Topic: Eager to try
Replies: 12
Views: 5213

Re: ampra

evie1954 wrote:I notice that I can walk faster but not better.
Faster works for me!
by DenverCO
Mon Jan 03, 2011 10:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The thought of it grosses me out
Replies: 28
Views: 5007

Vascular Phobia

Perky & Needled, you get it. Believe me I would do anything to have my life back but I am extremely squeamish about certain vein related things. IVs have been a struggle but I deal with it. I guess my real question is can you undergo the procedure while under general anesthesia and Needled answered ...
by DenverCO
Sun Jan 02, 2011 8:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The thought of it grosses me out
Replies: 28
Views: 5007

The thought of it grosses me out

I cannot even read about CCSVI without having to put my head between my knees. Am I the only one?
by DenverCO
Thu Nov 11, 2010 12:31 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 59925

Tysabri / Ampyra Combo

I received 2 doses of Tysabri years back before it was pulled from the market. My results were incredible. After a few years when it was re-approved I went back on it. My condition had deteriorated quite a bit by then and I didn't experience the mobility benefits but my QOL noticeably improved so I ...
by DenverCO
Thu Nov 11, 2010 12:09 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML risk goes down after 3 years. Anybody else heard this?
Replies: 2
Views: 1911

PML risk goes down after 3 years. Anybody else heard this?

I had my blood drawn to check for the JCV antibody. I was told that the results are coming back 50/50, but that there is evidence that the patients who have been on Tysabri for 3+ years are almost all testing negative. Has anyone come across literature supporting this?
by DenverCO
Tue May 25, 2010 3:37 pm
Forum: General Discussion
Topic: Ampyra
Replies: 0
Views: 1210

Ampyra

Does anyone have results to report yet? I expect delivery of my initial Rx tomorrow.
by DenverCO
Thu Jul 24, 2008 7:57 pm
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 74175

I read your post a few days ago and decided to add capsicum to my monthly VitaCost order. Is cayenne pepper the same thing? I'm taking 2 caps 2x/day and I have an annoying (not debilitating) burning in my stomach for about an hour afterwards. How much should I start with? How rapidly should I increa...
by DenverCO
Wed Mar 26, 2008 7:39 am
Forum: Regimens
Topic: Need Guidance Re: abx
Replies: 3
Views: 2560

Need Guidance Re: abx

I am very interested in starting antibiotic therapy but my brief attempt at research has left me overwhelmed. Where do I start? How do I find a doctor if my neuro won't help me? I'm in an HMO so if I have to go out of network and pay privately are the drugs expensive? What is the test for cpn? Is th...