This Is MS Multiple Sclerosis Knowledge & Support Community

I had the procedure in 2010 with amazing results that lasted 2 years then things when downhill. I repeated the procedure in 2014 with many initial small gains but I feel I waited too long. Money was a huge factor for me. I continue to follow this board to keep informed about new info, insurance cove...

Seeking anyone who has experienced improvements from a second venoplasty. I was rrms and had treatment in November 2010 with dramatic improvements. It held for 2 years and this past year I have been on a slow declining path. I feel as though I'm entering the world of spms. Before I make my decision ...

Day 6 for me. I've taken the advice found here and so far minimal side effects. I'm not a get up and cook breakfast kind of a girl and prefer to stay away from most premade foods. I made a quiche to last all week. Baked Frozen pie crust, 1/2 C cheese, 6 eggs beaten with 1/2 C milk, 6 precook sausage...

I am also considering a second procedure. I was treated at Georgetown in 2010 with dramatic symptom improvement. It lasted 2 years with gradual return of most symptoms within the past 6 months. My concern is money for the procedure. I keep hoping the medical insurance community will come to their se...

My plan was/is to share my own ccsvi intervention and outcomes with him as I was treated at Georgetown in 2010.

Hi Cece. It predates ccsvi but he was always talking about the research. I tried to email him but Cleveland would only give me a snail mail address. I guess I should follow through with that.

Dr. Alexander Rae-Grant is a neurologist. He was my neurologist in Pennsylvania until he moved to Cleveland.

I think my post was misunderstood. I too have been here since the beginning(4/09) and read everything on TIMS. I went to the symposium in NY last summer. I am mostly pleased with the speed of the research. I think the original NMSS direction was a waste of valuable time and their response/publicly s...

Let’s face it, most of us do not have 20 years to wait for the research to catch up and be accepted by the medical community of doctors, insurance companies and drug companies. Having the procedure almost two years ago was life altering for me. I still maintain many of my symptom improvements and ha...

Not possible. I had symptom improvement the next day. I was able to walk with my feet next to each other. I walked with my feet 1 1/2 feet apart for over two years prior to the surgery. The babinski sign disappeared, I could stay awake longer and had cut back my provigl dosage. Migraines ceased. Ner...

I found the ccsvi thread at the bottom of the page April 2009. Thank you Joan. Pursuing treatment changed my life. I agree the forum has changed. I was thrilled to see Christine's experience. I have been contemplating the right time to address my ccsvi symptoms slow return. My procedure was November...

Wow! We is the states need to somehow expose the same because I'm sure the same back-room conversations are persisting here.

Interesting...I was told I had horners prior to my ms dx and ccsvi treatment

This is so exciting! Thank you to all who will be attending and sharing information. I recognized a name on Cheer's original list...R. Neville, USA was at Georgetown until Dec. 2010.

Copyright it!