Search found 14 matches

by gu1928
Wed Nov 16, 2016 7:28 am
Forum: Undiagnosed
Topic: Could this be MS?
Replies: 15
Views: 4150

Re: Could this be MS?

I hope and wishu you do not have MS
But I would suggest you get spinal tap as well
That might give more insight
by gu1928
Wed Nov 16, 2016 3:55 am
Forum: Undiagnosed
Topic: MS diagnosis
Replies: 1
Views: 1092

MS diagnosis

Can one have MS with normal mri 's of brain,cervical thoracic and lumbar spine and a negative spinal tap...just based on symptoms over the years?
by gu1928
Tue Nov 15, 2016 3:02 am
Forum: Undiagnosed
Topic: mystery diagnosis
Replies: 12
Views: 4182

Re: mystery diagnosis

Lyndacarol,

So after two years did lesions show up on your mri or were you diagnosed based on your symptoms

Gul
by gu1928
Tue Nov 15, 2016 2:40 am
Forum: Undiagnosed
Topic: mystery diagnosis
Replies: 12
Views: 4182

Re: mystery diagnosis

BTW I still do not have a diagnosis.my neuro says wait and watch
by gu1928
Tue Nov 15, 2016 2:21 am
Forum: Undiagnosed
Topic: mystery diagnosis
Replies: 12
Views: 4182

Re: mystery diagnosis

Hi Adrianne Your story is very similar to mine I started my symptoms on my left leg too suddenly 3 years ago Which worsened and now its both legs Still have no answers with clear mri and clear spinal tap and clean emg Like you I have tight band around my knees too with hyperreflexia of the knee tend...
by gu1928
Mon Nov 14, 2016 12:37 pm
Forum: Undiagnosed
Topic: Lyme test
Replies: 5
Views: 2742

Re: Lyme test

Thanks NHE

Isn't getting tested for lyme mean getting tested for all tickborne which includes bartonella?
by gu1928
Sun Nov 13, 2016 11:23 am
Forum: Undiagnosed
Topic: Lyme test
Replies: 5
Views: 2742

Lyme test

Hello folks I recently had a spinal type to look for demylenation / ms and that came back negative I also had lyme blood test Did anyone get tested for blood for lyme disease and had symptoms like MS.I got tested for lyme western blot at labcorp and the test was negative But I got two bands of IGg p...
by gu1928
Sat Nov 12, 2016 2:58 pm
Forum: General Discussion
Topic: Lyme disease
Replies: 0
Views: 942

Lyme disease

Hello everyone Did anyone get tested for blood for lyme disease and had symptoms like MS.I got tested for lyme at labcorp and the test was negative But I got two bands of IGg positive 41 and 58 IGm 23 postive Per cdc standards I was negative I am trying to understand the test was not completely clea...
by gu1928
Fri Nov 04, 2016 3:36 pm
Forum: Undiagnosed
Topic: New here
Replies: 7
Views: 1489

Re: New here

Hi lynda
My D3 was 8 ..the first time I was found deficient..
Second time it was 14 ..now it has come up to 46
Thanks
Gul
by gu1928
Fri Nov 04, 2016 3:35 pm
Forum: Undiagnosed
Topic: New here
Replies: 7
Views: 1489

Re: New here

Thanks Scott for the information Are there more causes of inflammation like mycoplasma ricketsia,..? Or is there a link where I can find this list.. I want to show it to neuro and ask him if he has ruled this out...he is suggesting me to go to mayo clinic in Minnesota..I want him to do all these tes...
by gu1928
Thu Nov 03, 2016 2:30 pm
Forum: Undiagnosed
Topic: New here
Replies: 7
Views: 1489

Re: New here

Thank you Scott for writing to me.I was not given steroid injection for piriformis.. I visited a neuro today for second opinion He said my diagnosis is myelopathy but he is not sure where it is coming from I had spinal tap last Friday. I called in my original neuro office Nurse said test for oliogoc...
by gu1928
Tue Nov 01, 2016 1:41 pm
Forum: Undiagnosed
Topic: New here
Replies: 7
Views: 1489

Re: New here

Also I get occasional headaches too with parasthesias and one of my eyes gets sore and red
by gu1928
Tue Nov 01, 2016 1:38 pm
Forum: Undiagnosed
Topic: New here
Replies: 7
Views: 1489

New here

Hi I am 38 year old female with 3 kids So far I am undiagnosed Undiagnosed for 3 years First symptom was thoracic chest pain Followed by sciatic left leg pain whith negative emg negative mri Few months later chiro and physio said my gait is not right Atrophy developed in left leg Hip mra negative A ...
by gu1928
Sun Oct 30, 2016 1:18 pm
Forum: Undiagnosed
Topic: I wish I could read an MRI
Replies: 7
Views: 2035

Re: I wish I could read an MRI

Hello Christobelle I went thru all ur posts on this site.seems like I am going thru exact same things as u did Longer leg,wobbly,hypereflexia started with one leg now it's both legs.heavy legs..seems like u described my symptoms two years ago Mri's all negatove I am a female 38 years old Please plea...

Go to advanced search