Search found 8 matches

by ccbower88
Fri Jul 08, 2016 2:42 pm
Forum: General Discussion
Topic: Pregnant with MS,scared
Replies: 8
Views: 860

Re: Pregnant with MS,scared

I agree with the others that everyone is different. I personally felt good/great during my pregnancies but had a terrible relapse after each. This was pre diagnosis so I wasnt on any treatment, are you on anything for your ms?
by ccbower88
Thu Jul 07, 2016 4:27 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera and Lymphopenia
Replies: 4
Views: 3157

Re: Tecfidera and Lymphopenia

I was on tecfidera for 9 months but had some tummy trouble and my ms was still unstable. I switched to tysabri and have had no troubles on it (literally no side effects at all so far and ive had 3 infusions). I am jc- so that helped me in my decision to start it. I personally thought the side effect...
by ccbower88
Wed Jul 06, 2016 7:28 am
Forum: Medical Devices
Topic: WalkAide
Replies: 0
Views: 2202

WalkAide

Has anyone had success with this system? I have been tried for the bioness l300 but I cannot afford something that pricey (was quoted $9000). I haven't tried the walkaide and am thinking about setting up an apt to try it out, but I already know it has a $5000 self pay price point and there is no way...
by ccbower88
Wed Jul 06, 2016 6:47 am
Forum: General Discussion
Topic: Handicap permit
Replies: 3
Views: 627

Re: Handicap permit

Hello all, I am wondering if it is difficult to obtain a handicap parking permit? I will be starting back at school soon and had trouble last semester having to park far away from the building. I called my specialist to see if she believes I will qualify, but I want to know if anyone else has had l...
by ccbower88
Wed Jul 06, 2016 5:30 am
Forum: Undiagnosed
Topic: yet another person with lots of issues wondering if it might
Replies: 24
Views: 2351

Re: yet another person with lots of issues wondering if it m

I know this isn't adding much to the conversation, but have you had your kidneys tested as a cause for the blood in your urine? I pass blood (visible often) and protein with my urine and after a kidney biopsy was told it was due to a thin basement membrane. Not sure if this info will be helpful, but...
by ccbower88
Wed Jul 06, 2016 5:20 am
Forum: General Discussion
Topic: Handicap permit
Replies: 3
Views: 627

Re: Handicap permit

I suppose I should add that I have a significant foot drop on my left foot as well as left sided weakness. I use a carbon fiber afo at this time and I do walk with an odd gate due to the severity of my foot drop (I walk normally with my R leg, but I sort of "march" with my L leg to bring my foot off...
by ccbower88
Wed Jul 06, 2016 5:03 am
Forum: General Discussion
Topic: Handicap permit
Replies: 3
Views: 627

Handicap permit

Hello all, I am wondering if it is difficult to obtain a handicap parking permit? I will be starting back at school soon and had trouble last semester having to park far away from the building. I called my specialist to see if she believes I will qualify, but I want to know if anyone else has had lu...
by ccbower88
Wed Jul 06, 2016 4:45 am
Forum: Plegridy
Topic: Anyone on this?
Replies: 5
Views: 7299

Re: Anyone on this?

Sorry this is a little late, I was on plegridy for several months but my ms issues were not improving and I was having terrible flu symptoms while on it that would put me down a week at a time. It was nice not having to inject too often and the side effects are similar to other meds in that category...