Search found 12 matches

by malrd
Mon Oct 24, 2016 7:33 pm
Forum: Undiagnosed
Topic: Possible MS? 'lhermittes' + blind spots
Replies: 25
Views: 4493

Re: Possible MS? 'lhermittes' + blind spots

I have been to en eye doc who couldnt see a cause to my problems - he didnt perform any actual tests though besides blowing in the eye and taking some pictures (which I have learned would not be able to diagnose OP, if it was present). Either way - it is not an 'eye' problem, my eyes themselves are...
by malrd
Tue Jul 26, 2016 9:03 pm
Forum: Undiagnosed
Topic: Should I start medication?
Replies: 7
Views: 2155

Re: Should I start medication?

Several medications are now approved by the FDA for CIS: Avonex, Betaseron, Copaxone, Extavia, Glatopa

These were my options when I carried the CIS diagnosis

http://www.nationalmssociety.org/What-i ... rome-(CIS)
by malrd
Wed Apr 20, 2016 1:04 pm
Forum: Introductions
Topic: Diagnosed with CIS
Replies: 3
Views: 2009

Re: Diagnosed with CIS

Listen to your neuro, pick a MS diet you are comfortable with and follow it, go gluten free, exercise regularly, remove all stresses from your life, get plenty of sleep and take supplements you feel might be beneficial (especially consider D3, B's, and fish oil to to start with). What is a MS diet?...
by malrd
Fri Apr 15, 2016 12:34 pm
Forum: Introductions
Topic: Diagnosed with CIS
Replies: 3
Views: 2009

Diagnosed with CIS

Hey everyone. I've been hanging out over at the Undiagnosed board, but was diagnosed with CIS yesterday. I'm still in the diagnostic process of actual RRMS, so time and tests will tell if that is the case. I have repeat brain and c-spine MRIs next week and rounding out with an LP at the end of May. ...
by malrd
Thu Apr 07, 2016 9:18 am
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

does bending your neck upwards or to the side trigger the buzzing as well? do you have any other symptoms apart from the feet buzzing? i had the feet buzzing , together with a cluster of other sensory symptoms. Seems like i had it worse than you, yet my MRIs of brain and spine were clinically unrem...
by malrd
Thu Mar 17, 2016 6:41 pm
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

Had neuro appointment last week. Orginally said to just forget about the brain lesion, it is likely due to age. I do have a pinched nerved in my back on the right side. My symptoms are mostly on the left with the occasional migration to the right foot. Neuro was a little concerned/confused with that...
by malrd
Thu Feb 25, 2016 7:39 am
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

Yes, Vit D level was 29.3, reference for my lab is 30-100.
This was also nearly a year ago, during the winter, so less sun exposure. I've since been taking a supplement. I will have it rechecked at my yearly.
by malrd
Sun Feb 21, 2016 4:51 pm
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

I'm feeling pretty sad, anxious and helpless right now....I had the EMG which came back abnormal, so I was kind of glad. It showed I had some radiculopathy is my lumbar spine, so an MRI was ordered. The neuro also ordered a brain and c-spine MRI since the shocking sensation is reproduced by flexing ...
by malrd
Sun Jan 03, 2016 9:36 pm
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

Welp, I'm back again. My GP sent me to a neuro. I had the initial appointment last week. I was little less than impressed so far, but I'll deal for now. So I explained my symptoms, she asked a lot of questions then did a very brief neurological exam. Basically peripheral vision, the nose touching th...
by malrd
Thu Nov 12, 2015 6:11 am
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

I had the blood drawn on the morning of 11/3. I took my multivitamin on the evening of 11/1, skipped 11/2. I was under the impression that b12 is water soluable and the body takes what it needs then eliminates the rest. My pee is always bright yellow when I take the multivitamin. I assumed that was ...
by malrd
Wed Nov 11, 2015 4:41 pm
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

Re: What now?

Thank you for your reply! I appreciate it. My serum B12 was 558 pg/mL (reference range 211-911). My folate levels were normal range >15.4 and forgot a SedRate was done with a result of 6. TSH was .987. Everything else was non-reactive or normal. Interesting you brought up homocysteine. I had slightl...
by malrd
Wed Nov 11, 2015 2:26 pm
Forum: Undiagnosed
Topic: What now?
Replies: 15
Views: 3646

What now?

Hi, I don't usually do this, but I'm feeling every emotion possible. It started a few weeks ago. I was at the gym and on the treadmill, I kept feeling a "buzz" in my feet. I didn't think much of it. It happened again on a walk and here and there. A few weeks later, I was at work and felt t...

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