This Is MS Multiple Sclerosis Knowledge & Support Community

Hello folks, Just back from Vandy, had a good visit w/ Dr. Sriram, he believes things are going AOK, just going to take some time as expected. Not going to start INH @ this time as Dr. Sriram would like to wait another 6 months before we change things up. MacKintosh sorry to hear about the backslidi...

Hello folks, Hope everyone is doing well! On day 17/21 of the third pulse and things are getting better mentally but seem to be going down hill physically, losing more in motor skills. Have an appt. W/ Dr. Sriram on Monday and we'll see what he thinks of the progression or the lack thereof. It seems...

Hello folks, Thanks for the links, CB. It seems to be the next logical step. I have an appt. w/ my local nero on the 9th and a appt. w/ Ram on the 20th, I'll see about getting this added to the mix. Hello Sarah, Mac, Jim things seem to be improving a bit, more mental than phyical but all in time I g...

Hello folks,

Is INH compatible w/ the abx?

Roy

Hello folks,

Coming up for air before I start my 3rd pulse of 21 tomorrow. Nothing new to post though.

How's everyone been?

Roy

Rica

That's wonderful!! Sounds like the ABX is working. Keep the faith and the posts coming.

Roy

Hello folks,

Thanks Sarah for helping to clarify.

Likewise Rica I wouldn't miss it and yes any kind of reversal will be a step in the right direction, as you and Sarah can attest to.

Roy

Hello Deb and folks,

How true that is. Like I say, nothing ventured nothing gained.

Thank's for the well wishes.

Roy

Deb,

Yes, Harold DX me with MS 18 or so months ago with PPMS.

As you know testing negative doesn't mean that you don't have the bug.

Roy

Hello folks,

You are correct Deb, there is not a Vandy protocol that I know of. Dr. Sriram and Moses treat the patients as each case dictates. What they have myself on is nothing that I've never heard of.

Robin you are also correct in their findings on cpn.

Roy

How true Marie.

Roy

Very well put, like you Bromley I never believed in the auto-immune theory either. Your body doesn't turn against itself. I started on Dr. Weldon's protocol in August and then switched over to Dr. Sirram's protocol @ Vandy in October. Not much to report except that the brain fog and the fatique has ...

Hello Rica, It was a little rough the first 7 days but after that it was just another day. The flagyl started not to taste as bad as it did to start with. Terry is doing OK with the treatments. She has not started the flagyl pulses as of yet. Been trying to get her to post her ABX log but she hasn't...

Hello folks,

Happy Anniversary and Happy New Year Sarah and David.

Now that's a first Sarah, a lady that forgot her anniversary, I can understand David forgetting as it sounds like he did too. LOL

Thanks for all the support folks

Roy

Hello folks, Thanks for your concerns, just following Dr. Srirams orders. After much debate decided to go ahead and try the 21 on and 7 off to see what effects it may hold. It can't be any worst than the progression that I've seen the past year. famous last words. I'll keep you posted as to the prog...