Search found 3387 matches

by lyndacarol
Sun Apr 28, 2019 12:30 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 3730

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

AmbiCat, you wrote, "I've had Fibromyalgia since I was 15,…" I suspect you were vitamin D deficient in your teens: Misdiagnosed Vitamin D Deficiency (9 min.) with James E. Dowd, MD, FACR, ABIHM: https://www.youtube.com/watch?v=aeLz5cBKJ3I Interviewer: Because of what you said where a lot of doctors...
by lyndacarol
Sat Apr 27, 2019 12:39 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 3730

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

"He tested everything." When he tested your vitamin D level, what were the number results and the units of measurement? Vitamin D in clinically isolated syndrome: evidence for possible neural protection. (2016) EM Mowry, D Pelletier, Z Gao, MD Howell, SS Zamvil, E Waubant http://www.ncbi.nlm.nih.gov...
by lyndacarol
Tue Mar 19, 2019 5:39 pm
Forum: General Discussion
Topic: Gadolinium enhanced MRI scans may not be necessary
Replies: 0
Views: 162

Gadolinium enhanced MRI scans may not be necessary

Gadolinium Not Necessary for Follow-Up MRI Scans in People With MS EVERYDAYHEALTH, March 12, 2019 https://www.everydayhealth.com/multiple-sclerosis/gadolinium-not-necessary-follow-up-mri-scans-people-with-ms/ Heavy metal has long been a part of routine follow-up care for people with multiple scleros...
by lyndacarol
Wed Feb 13, 2019 3:33 pm
Forum: Parenting Kids With MS
Topic: MS and Autism
Replies: 3
Views: 6239

Re: MS and Autism

In view of the following articles, perhaps children with autism should also be tested for a possible vitamin D deficiency: Autism (2018) Vitamin D Council, Dr. John Cannell http://www.vitamindcouncil.org/health-conditions/autism/ Vitamin D and autism, what's new? (2017) John Jacob Cannell https://li...
by lyndacarol
Fri Dec 28, 2018 2:01 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1055
Views: 115080

Re: all things vitamin D

Vitamin D and remyelination in multiple sclerosis (2018) Abstract Introduction Several studies have found an association between multiple sclerosis and vitamin D (VD) deficiency, which suggests that VD may play a role in the immune response. However, few studies have addressed its role in remyelina...
by lyndacarol
Thu Dec 06, 2018 12:42 pm
Forum: Undiagnosed
Topic: Constellation of symptoms
Replies: 32
Views: 3292

Re: Constellation of symptoms

here are my blood test results Part 1 (Mar and Apr) Part 2 (Mar, Apr, Jun) Part 3 (Jul) Your 25-OH Vitamin D level in Mar & Apr 2018 was 65 nmol/L (your lab's reference range: 50-140 nmol/L). This is the equivalent of 26 ng/mL which is frankly deficient in my lab's reference range of 30-100 ng/mL. ...
by lyndacarol
Wed Nov 28, 2018 3:17 pm
Forum: Natural Approach
Topic: General Nutrition/MS Research
Replies: 126
Views: 6171

Re: from the archives: 1964 case: vit D toxicity, mag recove

Vitamin D-Intoxicated Patient With Hypoparathyroidism Hypercalcemia, Acute Cerebellar Ataxia, and EEG Changes: Magnesium Sulfate Therapy (1964) Abstract 1 "A patient presenting with an acute cerebellar ataxia, nausea, and vomiting of approximately one week's duration was found to have a serum calci...
by lyndacarol
Mon Mar 26, 2018 1:36 am
Forum: Stem Cells
Topic: HSCT for MS
Replies: 1
Views: 1664

HSCT for MS

Here's an interesting article about one MS patient's experience with a haematopoietic stem cell transplant (HSCT).

http://www.bbc.co.uk/news/resources/idt ... _sclerosis
by lyndacarol
Thu May 25, 2017 10:02 am
Forum: General Discussion
Topic: CIS and having children?
Replies: 7
Views: 1020

Re: CIS and having children?

Hello, I’m new,... A bit about me: I’ve been CIS for about 3 years, on Betaseron, and my neurologist said I was at an extremely high risk of having another event within the first year, based on my MRI scans. As far as I know, I’ve never had another event. I only have the numbness in my feet sometim...
by lyndacarol
Wed May 24, 2017 3:52 pm
Forum: General Discussion
Topic: New MS diagnosis
Replies: 7
Views: 906

Re: New MS diagnosis

Things that helped me include: 1) "The Wahls Protocol" a book by a medical doctor with MS who tried the MS drugs to no avail and then after doing a lot of research developed a diet that has dramatically improved her life: http://terrywahls.com/the-high-cost-of-todays-drug-therapy-part-2-how-i-saved...
by lyndacarol
Tue May 23, 2017 1:42 pm
Forum: General Discussion
Topic: What's going to happen to me?
Replies: 10
Views: 1132

Re: What's going to happen to me?

My location in Canada also seemingly and statistically made me more predisposed to developing M.S regardless. We have the highest M.S rates in the entire world. Welcome to ThisIsMS, purpleberry. If you have not had the vitamin D blood test called "25-hydroxy D," I suggest you ask your GP to order i...
by lyndacarol
Tue May 23, 2017 9:16 am
Forum: Undiagnosed
Topic: MRIs and SEP
Replies: 2
Views: 1052

Re: MRIs and SEP

For the info, I am a male in his mid-20s. I also was found to be Vitamin D deficient four months ago (i.e. 13 in my first blood test ), and now since I take supplement it has risen to probably around 30 or more (my last Vitamin D test showed 23 about one month and a half ago). Thank in advance for ...
by lyndacarol
Thu May 18, 2017 12:38 pm
Forum: General Discussion
Topic: Worried about my partner.
Replies: 36
Views: 2727

Re: Worried about my partner.

I dug up my doctor notes... "25-Hydroxyvitamin D Optimal Level: 25-100 ng/mL Deficiency: <10 ng/mL Toxicity: >150 ng/mL" Please compare your doctor's reference range to the chart found in the following article: https://www.vitamindcouncil.org/testkit/ I think your doctor's range is out of step with...
by lyndacarol
Thu May 18, 2017 12:22 pm
Forum: Undiagnosed
Topic: New symptom out of the blue
Replies: 66
Views: 6064

Re: New symptom out of the blue

Thanks for the info, lyndacarol. It hadn't occurred to me that they might not accept test results from somewhere else. My neurosurgeon is in Winston-Salem and they'd be likely to consider "outside results" less reliable. My local doctor's office still hasn't sent the order to the hospital. As of my...
by lyndacarol
Wed May 17, 2017 10:56 am
Forum: Undiagnosed
Topic: New symptom out of the blue
Replies: 66
Views: 6064

Re: New symptom out of the blue

I just thought of another question that someone might be able to answer for me. I'm currently taking 1800 mg of gabapentin daily for my neuralgias. Would this affect the results of the blood work in any way? I can only think that any test you can have now, before your other appointments, will indee...